Advance Health Care Directive

Posted 5 CommentsPosted in Asthma, intubation, Recovering from severe asthma attack, Ventilator

The events of recent weeks has made me think really hard about just how long I want to continue this fight and under what conditions. With 135 hospitalizations under my belt, including dozens of near-fatal exacerbations and a declining quality of life, I find myself asking the question more and more, when is enough, enough? […]

Steroids, less is always better

Posted 6 CommentsPosted in Asthma, Asthma Medications, Steroids ( prednisone)

Ive always had a hunch, but now there seems to be more and more scientific evidence that less is better when it comes to our favorite poison…corticosteroids! ( ie, prednisone pills and IV steroids.) And that applies not only to daily maintenance doses, but also to the treatment of severe exacerbations that require emergency hospital […]

A common cold with not so common asthma

Posted 2 CommentsPosted in Asthma, Asthma exacerbations, Asthma hospitalization, Hospitals, intubation

Didn’t I just blog about my 133rd hospitalization for asthma? Well make that 134 now. This is getting F’ing ridiculous. This latest flare wasn’t triggered by some massive chest infection or the flu, but by a simple cold….aka Rhinovirus. Id been feeling pretty decent in recent weeks, but just like millions of other people during […]

My 133rd hospitalization for asthma

Posted 4 CommentsPosted in Arterial Blood gases, Asthma, Asthma hospitalization, Bipap, Bronchiolitis Obliterans, Intubation, Other medical problems, Secondary conditions, Severe asthma, Ventilator

My 133rd hospitalization occurred on 10-9-2017. The trigger wasn’t the usual environmental allergies or resp infection, this time it was smoke from wildfires that have been devastating portions of northern California the past couple weeks. I woke that morning (4am) to a house full of smoke . It was so bad, we had to put […]

You’re worthy

Posted 4 CommentsPosted in Asthma

What is it with chronic severe asthma, self esteem, self doubt or self worthiness? Why do we tend to hide or downplay our disease or the severity of our symptoms? Why do we delay seeking emergency medical care when it’s so obviously indicated? I can’t tell you how many people write to me in the […]

Azithromycin therapy

Posted 4 CommentsPosted in Asthma, Asthma Medications, Asthma treatments

This past week I started on yet another experimental therapy. This time it’s a long term antibiotic regimen with Azithromycin. As an add-on therapy, recent studies indicate that the long term use of macrolides can help decrease asthma symptoms, including wheezing and shortness of breath. I’ll will be starting with 250 mgs of Azithromycin every […]

Flavor of the month

Posted 3 CommentsPosted in Asthma

My asthma and the various sub-labels used to describe it seems to change day by day. First it was ACOS ( Asthma COPD overlap Syndrome), but because of it’s broad description it seems to be loosing favor with my doctors. One of my Pulmonologists even calls my asthma “Steve Gaudet Asthma” because to him it […]

Asthma T&A

Posted 7 CommentsPosted in Asthma

Tired and Angry at Asthma, I’m tired of being stoic and putting up a strong happy front, when on the inside I’m screaming. I’m angry because I have a type of asthma that is uncontrollable and not well understood. I’m tired of feeling like a fish out of water all the time. I’m angry that […]