From the Archives

Venous Access Port ( VAP)

After an estimated 104 hospital admissions for asthma and probably 10 times that number of IV sticks, I have no peripheral venous access left. A half a century of IV steroids has rendered my veins useless. The only place they can get lines in, are in my knuckles and toes. ...

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Do you know when it's time to go in?

The idea for this post came to me during the middle a recent severe exacerbation. Actually, it was the same exacerbation that put me in the hospital for 12 days, for which I am still recovering. Foremost on my mind during one of these really bad flares is the ...

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The Recovery phases of a severe asthma exacerbation

Suffice it to say, I wasn't exactly a happy camper when I wrote that Dr W helped me get through this awful time by reassuring me that what anguish I was experiencing was a normal response after suffering such a severe flare up, and that my complaints were ...

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15 months Intubation Free!

It feels good to brag about something positive for a change. This week marks 15 whole months since Ive had to have a tube shoved down my windpipe in order to breath. Ive had zero, what I would call "critical condition" type hospitalizations in that time period as well. Granted, ...

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Double Whammy Asthma

( updated 2-2014) I often find it frustrating that here I am, a life long asthmatic, a Respiratory therapist and an asthma educator, yet still unable in normal conversation, to describe what makes my type of asthma so different from others. When asked to define asthma in general, I usually ...

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I'm a recovering Albuter-holic

Rick, the author of the Respiratory Therapy Cave , wrote to me the other day talking about what it was like growing up with severe asthma. One of the things he mentioned that I thought was kinda funny, was how he used to sleep with an inhaler ...

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Propofol

Propofol

This is a picture of me on a ventilator last year during a severe asthma exacerbation ( what they call status asthmaticus). See the little IV bottle inside the blue rectangle with the milky looking stuff inside ? That's Propofol ! Also known as ...

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My Trip to Churchill

My journey begins in Winnipeg (my very first time crossing the Canadian border). Just 2 days earlier there had been a pretty bad snow storm and potential weather delays at the airport were a big concern.Fortunately things worked out and I got there on time without any problems. ...

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Lung Lingo

Yes it's true, we asthmatics have a language all our own.   Here's my current list. Please feel free to add new words and definitions to it .   Yellow Zoning When someone is stuck in their yellow breathing zone. Cradle Asthmatic A person who has had asthma since earlier childhood or ...

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Healing Walks

Carolyn Scott Kortge's new book is finally out and guess who's in one of the chapters? Carolyn contacted me about year ago for this project. She thought I had an interesting story to tell, and that it would fit in nicely with the motivational theme of the book. It's really ...

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Asthma guilt trip

How many times have you had a really bad asthma flare, but had serious trepidations about going to the emergency room for treatment? How many times have you felt guilty that maybe you weren't sick enough to be admitted to the hospital? Well, that's pretty much been the ...

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A quarter million puffs

A quarter million puffs

Care for some Albuterol? (Hey.....how did the primatine mist get in there?) I sometimes jokingly claim that Ive

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The SARP experience

The SARP experience

Welcome to Pittsburgh, Pennsylvania for the

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Lung Transplant Evaluation Approved.

It's been way too long since I posted to my blog. Been doing most of my updating via my asthma support group on Facebook. So anyways, after 6 months of going around and around with the insurance company, they have finally agreed to pay for a full lung transplant evaluation. ...

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Boston 2011 Race Report

They don't call it the best marathon in the world for nothing , and this year was no exception. The weather was near perfect and the spectators and volunteers outdid themselves. The moment I entered athletes village and the disabled athletes staging area early Monday morning, my worries and stress about ...

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I'm Honored

Just found out that my story is appearing in the RCB's annual Newsletter.... "Breathing Matters". I'm always flattered when an organization or a person writes an article about my fitness walking achievements, but this one is special because it comes from the same government agency that regulates Respiratory Care in the ...

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Buried Alive

The photo is from the movie "Awake", but what happened to me last September was not fiction.. It was the real deal! Back on Sept 20th of 2010, I was admitted to the hospital for a severe asthma exacerbation(so what else is new). About 8 hours into the exacerbation, my ...

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Bassist extraordinaire

Bassist Extraordinaire.... Rick Shaw

A couple of Saturdays ago I had the pleasure of meeting one of my favorite bassists of all time, Rick Shaw. Rick has worked with all kinds of recording artists and is also the bassist for Johnny Mathis and Gordon Goodwin's Big Phat Band, my favorite jazz band. ...

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Questions for Dr. Wenzel

Last week after finding out just how damaged my lungs really are, the only thing going through my head was..WHY? All of the assumptions I had made about my asthma throughout the years, suddenly didn't seem to make sense anymore. I was beginning to wonder if I really ever ...

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O2 sats and asthma attacks revisited

After 9 years of blogging about life with severe asthma, I still get tons of traffic from people searching the internet for specific information on O2 saturation and how it relates to asthma or the severity of an asthma attack. So for those who might have missed earlier posts, here’s a recap of that topic. […]

November 22, 2014 0
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Asthmatics Needed !!

Calling all asthmatics in Northern California and San Francisco Bay area. Enrollment for the current nationwide, NIH funded,  Severe Asthma Research Program (SARP) is nearing completion and the study site at UCSF could really use your help to meet their study quotas. Please consider volunteering as a research subject for this very important asthma study.  Not only will you be contributing to […]

October 28, 2014 0
show off
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Steve – 9, Lung disease—a big fat ZERO!

This might sound corny, but I feel like Ive just been reborn. On Oct 5th I finished my 9th marathon at the Portland Marathon. If you’ve been reading my updates, this was a scheme I had hatched while hospitalized back in July. I was feeling incredibly down at the time and was curious to see […]

October 9, 2014 3
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Self Observations: Severe Asthma and Endurance walking

Ive been doing endurance walks now for about 10 years, and because of the severity of my lung disease, I often experience significant symptom exacerbations afterwards. Well something quite unexpected and encouraging has happened recently during the peak of this current training cycle, or should I say…didn’t happen! On 3 separate occasions over a 4 […]

September 13, 2014 0
lrt license
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Hanging up the stethoscope

The deed is done. As of today Im longer allowed to practice Respiratory Care in the State California. I finally submitted the paperwork to place my RCP license into retirement status, bringing my 3 and a half decade career in this field to an end…at least for now. Ive been going back and forth on […]

August 23, 2014 7
It hurts so good...
( the hell is does)
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Training update Aug 2014

Dang… I haven’t written one of the training updates in years. Trying to get in shape to do this race has been challenging to say the least. It’s been 3 years since Ive attempted something crazy like this and I almost forgot just how grueling it can be when you don’t have any functional lung […]

August 21, 2014 1
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The impatient patient

Oh goody, another post about asthma exacerbation recovery. After being discharged from the hospital only 3 days ago, it’s probably a little early to be writing about this topic again, but something is definitely different this time around. The recovery seems excruciatingly slow( gee, where have I heard that before?). In my mind I should […]

July 26, 2014 5
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Are ER Asthma Treatment Protocols changing?

Is it just me or are things changing? Being a frequently flyer in the ER asthma world, Ive noticed more and more changes over the years in the ER treatment protocols for acute asthma flares. Most notably are the changes in dosage and frequency of administering steroids and certain bronchodilators. When it comes to IV […]

July 24, 2014 3
UPMC ICU
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The captions say it all

What is Status Asthmaticus? Lucky me, on July 23th 2014, I survived my 115th hospital admission and 20th intubation for asthma. I didn’t think I was that sick, but apparently I was. Related Posts: Self Observations: Severe Asthma and Endurance walkingTraining update Aug 2014Secondary conditions SARP NewsletterThe “A” wordNot just Asthma, Severe Asthma!

July 24, 2014 5
Portland Finish Line 2007
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Training to walk my 9th marathon

Hard to believe that it’s been 3 years since I’ve trained for a race. I came close to doing one last year, but a lot of stuff was happening and I was getting sick too often. Well except for my little dental mishap a couple weeks ago, things have been much better lately and that’s […]

July 8, 2014 0
Steve marathon
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Uh-oh… He’s at it again

Tell me that I can’t do something and it’s a pretty sure bet that I’ll find a way to prove you wrong. That’s pretty much the way Ive been feeling these past couple years, only it wasn’t other people telling me I couldn’t do things, it was myself. I swore when I finally crossed the […]

June 22, 2014 3
The Frankenstein look
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Add Sleep Apnea to the list

To say that this new diagnosis was a shock would be an understatement. Talk about denial, I went into the sleep lab a few weeks ago thinking that by doing these tests we could finally rule out the notion that I suffer from OSA. I told myself..No way do I have sleep apnea, after all, […]

May 23, 2014 1
pulse ox
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Self Observations: O2 Sats and exercise

Related Posts:O2 sats and asthma attacks revisitedBreathing Basics —O2 Saturation and Oximeters Self Observations: Severe Asthma and Endurance walkingUh-oh… He’s at it again Self Observations: FEV1 and Breathlessness12 month Update

May 17, 2014 0
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