I feel like I got run over by a truck

Im sure you’ve heard the expression “I feel like I was run over by a truck” to describe the aftermath of a really bad asthma exacerbation or some other aliment. Ive used it several times myself in my blog posts, but this time around Im not using it as an expression, I actually did get … Read moreI feel like I got run over by a truck

I live in the yellow zone

Always trying to figure out why my asthma is so difficult to control, I decided to look at my daily peak flow numbers, neb treatments and symptom data over the last 3 years to see if anything stood out. This is what emerged: Despite being on 1000mcg of inhaled inhaled steroids and a long acting … Read moreI live in the yellow zone

Transplant candidate rules

In addition to a litany of medical tests, UCSF requires all of their lung transplant candidates to follow a strict set of rules, including having a caregiver plan in place during the initial recovery process. They require you to have someone with you around the clock while staying at a local hotel for a period … Read moreTransplant candidate rules

Its what he DIDN’T say

If you’ve been dealing with complicated or persistent asthma for a long time, your doctor has no doubt given you the not so surprising…. “I don’t know what else we can do for you” talk. My doctors ran out of ideas years ago, so Im pretty used to hearing it, but at last weeks hospital … Read moreIts what he DIDN’T say

Thankful for the little things.

Little, as in little charges. Like this prescription of Ambien, which cost me whopping 45 cents! I couldn’t believe it. Or how about a 30 day supply of prednisone for 60 cents. I get super low prices for my blood pressure and cholesterol meds as well, all thanks to the medicare prescription plan I started … Read moreThankful for the little things.

The asthma app is finally here.

After a year long collaboration with some talented engineering friends of mine, the app we’ve been working on is finally available for I phone with Android following shortly. Introducing Ourbreeze . The first Asthma app that monitors multiple environmental indices, all of which can trigger or worsen symptoms in people with lung disease. You can … Read moreThe asthma app is finally here.

Dupilumab

3 and half years ago I wrote about the exciting news regarding a game changing drug called Dupilumab. Dr Wenzel and others believed that this drug was going to revolutionize the way certain forms of severe asthma are treated. Well, very soon now I’ll get to try it out myself! This past week I received … Read moreDupilumab

In other news

And despite all the medical appointments, I still managed to learn a dozen new tunes. Related Posts:104th trip to the slammer for AsthmaNumber 94….a Bad OneMy 133rd hospitalization for asthma23rd time’s a charmNumber 96 Nice try asthma, but I’m still here.

Paying my own way

After 12 and half years of receiving free healthcare benefits from my partner’s employer, the ridiculously increasing costs to maintain those benefits became unsustainable for the small company, forcing them to ditch the premium plan for a bare bones plan with such high deductibles, that the plan is virtually useless for someone like me. So, … Read morePaying my own way

Moving right along……

It’s been a very busy month indeed. When they say a lung transplant evaluation is thorough and exhausting, they’re not kidding. Every time I think Ive completed all the required tests, the transplant coordinator calls to say I still have more to do. In addition, some of these test have to be repeated every few … Read moreMoving right along……

But you look so healthy

How many of you with asthma problems can relate? “But you don’t look sick”, or “Your sats are OK” or ” “Maybe it’s just anxiety” or “If you’re so sick, how are you able to exercise and do normal things?” As a person with very severe lung disease who publicly flaunts his fitness achievements, Ive … Read moreBut you look so healthy

Nebbing Stations

Im sure my neb dependent friends would agree, that with nebulizer treatments being notorious time killers, incorporating some organization and convenience into the mix makes life just a little easier. For me this means neb stations in strategic locations throughout my house and in my vehicles. I even have a stand-by unit just for travel. … Read moreNebbing Stations

What’s up with the lung transplant eval?

Ive been posting fairly frequently, either here or on my Facebook page, about what’s been going on with my asthma treatment in the conventional sense, but a lot of people have been asking me what’s up with the lung transplant stuff. Things like, am I still considering it? Am I a potential candidate? Hows the … Read moreWhat’s up with the lung transplant eval?