SARP Newsletter

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The Severe Asthma Research Program’s first Newsletter. Well worth reading! A Breath of Fresh Air Related Posts:A SARP’in we will go…….Secondary conditions The “A” wordNot just Asthma, Severe Asthma!Lung ArtAsthma Phenotypes15 months Intubation Free!

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SARP III complete

Dr Wenzel and I

Well, almost. The study actually lasts for 3 years, but the bulk of the testing can usually be completed in 4 half day visits. After that, it’s annual follow ups and the occasional online questionnaire. Because I had a separate clinic appointment with Dr Wenzel, and because there has to be a 3 week space […]

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Self observations : Steriod insomnia

For probably the first time in 50 years of cycling on and off of steroids, it came to me in a flash last night, that the reason I can’t sleep when on steroids, is not because I have too much steroid in me, but rather not enough. For the past 14 days Ive been in […]

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UMPC Asthma Support Group

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Starting this month and every month going forward, I’ll be posting the minutes from the UMPC (University of Pittsburgh Medical Center) Severe Asthma Support Group conference calls. The calls are sponsored by the Asthma Institute at UMPC and moderated by Dr Sally Wenzel Pulmonologist and Deborah A. Gillman PhD, Clinical Psychologist. If you have difficult […]

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A SARP’in we will go…….

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In a few weeks I’m off to Pittsburgh again to participate in SARP III. The focus of SARP III is to study the stability of clinical and molecular phenotypes of severe Asthma. Basically they’re looking for the bio signature of certain mast cells in the serum and plasma and whether they are maintained over the […]

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Asthma Phenotypes

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Physician researchers at the University of Pittsburgh Asthma Institute at UPMC are now using molecular and genetic information to identify asthma phenotypes and customize therapies in order to improve patient outcomes. If you have asthma and would like to contribute to this on going research, please consider volunteering for

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Tour De Badass YVR

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“Badassmatic (adj.): Person with asthma better defined by badassery. Possesses insatiable desire for growth, change and adventure.“ ( Brought to you courtesy of Kerri Mac Kay) ***For more Badass adventures check out last years trip to Churchill *** Related Posts: Guest Post by Kerri Asthma Phenotypes24 Hours in the life of an AsthmaticSelf Service What’s […]

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24 Hours in the life of an Asthmatic

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Check out Kerri’s vlog post and follow us through a typical day living with asthma. Related Posts:Asthma Phenotypes Guest Post by Kerri 12 month Update The letterBehind that finish line smile Bound for Beantown#97 , misinformation and a virus from Hell

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Dupilumab , A Game Changer ?

Sally Interview

When I heard the news today that there’s a new drug in the pipeline for severe asthma, I about fell out of my chair. When you hear one of the world’s most respected asthma researchers proclaiming that this new drug is a “game changer”, you can’t help but feel a little more optimistic about the […]

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How to run like a severe asthmatic, by Bill Swan

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Saw this blog post by Bill Swan and liked it so much I just had to re-post it here. Bill provides us with a step by step instruction guide on how to run like a severe asthmatic. ( I think the photo says it all, don’t you?) Read more about Bill on his blog at […]

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Self Service

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Just one of the advantages of being an asthmatic Respiratory Therapist, though the hospital staff might not be so thrilled. They get a little grouchy when the patients start adjusting ventilator settings Now for the serious educational part: The rational for using non -invasive bipap therapy during a severe asthma exacerbations is simply to reduce […]

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So,what brings you here?

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Over the years Ive built up a pretty loyal following of friends who are interested in what Ive been up to and how I’m doing health wise , but the bulk of visitors to this blog still get here while searching for answers to asthma related questions or topics. The following (in order of popularity) […]

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Boston or Bust!

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So in just a few hours Bib# 21619 is off to the Boston area to take another stab at the mother of all foot races. Monday morning I will attempt to finish my 3rd Boston marathon in a row and my 8th full marathon since starting this incredible fitness journey 5 years ago. May not […]

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Most frequently asked question

"Can you have an asthma attack with a normal sat reading"?
The answer is..YES!
While it's a little unusual to see a person with a perfect O2 sat of a 100% during a severe exacerbation, its pretty typical to see sats in the 94-97% range. The reason for this, is that asthma is a disease of the airways , not the alveoli where gas exchange takes place. Most asthmatics dont desaturate during the early stages of an attack,unless theres a secondary problem such as pneumonia. You have to be extremely ill with asthma if your sats are low.

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