Asthma Tree

The tree forming the form of human organ, as lungs

We all have an upside down tree in our chests. The trunk resembles the main bronchus (the windpipe), the branches are the large and small airways, and the bright green leaves are the little air sacs (alveoli) where oxygen and carbon dioxide exchange takes place. These are healthy lungs…. In some forms of COPD, such […]

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Survive an attack, register for a marathon

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Makes sense to me…… Get really sick, spend time in the hospital, come home exhausted and depressed, and then immediately sign up to do a 26.2 mile foot race. But then again I’m probably not your typical chronic lunger. After finishing my 8th marathon back in 2011, I had basically shrugged off the notion of […]

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SARP ends, but the research continues

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Though still in operation, the NIH funded Severe Asthma Research Program (SARP), which started 14 years ago, is now officially closed to new enrollees. Sadly, it looks like SARP will be the last large observational study of severe asthmatics, at least for the foreseeable future. The good news, is that there’s still a lot of […]

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Are ER Asthma Treatment Protocols changing?

Is it just me or are things changing? Being a frequently flyer in the ER asthma world, Ive noticed more and more changes over the years in the ER treatment protocols for acute asthma flares. Most notably are the changes in dosage and frequency of administering steroids and certain bronchodilators. When it comes to IV […]

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The photos say it all

UPMC ICU

What is Status Asthmaticus? Lucky me, on July 23th 2014, I survived my 115th hospital admission and 20th intubation for asthma. I didn’t think I was that sick, but apparently I was. Related Posts:Downsizing23rd time’s a charm Self Observations: Severe Asthma and Endurance walkingTraining update Aug 2014Secondary conditions SARP Newsletter

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Survivors Guilt

Asthma obits Google images

Every time I hear about someone who died from asthma, especially when it’s a child, I can’t help but feel just a little guilty for living as long as I have. Despite having one of the lowest asthma mortality rates in the world, 3500-4000 people still die from asthma each year in the United States, […]

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SARP Newsletter

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The Severe Asthma Research Program’s first Newsletter. Well worth reading! A Breath of Fresh Air Related Posts:A SARP’in we will go…….Downsizing23rd time’s a charmPFTs Du Jour Self Observations: Severe Asthma and Endurance walkingTraining update Aug 2014

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SARP III complete

Dr Wenzel and I

Well, almost. The study actually lasts for 3 years, but the bulk of the testing can usually be completed in 4 half day visits. After that, it’s annual follow ups and the occasional online questionnaire. Because I had a separate clinic appointment with Dr Wenzel, and because there has to be a 3 week space […]

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Self observations : Steriod insomnia

For probably the first time in 50 years of cycling on and off of steroids, it came to me in a flash last night, that the reason I can’t sleep when on steroids, is not because I have too much steroid in me, but rather not enough. For the past 14 days Ive been in […]

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UMPC Asthma Support Group

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Starting this month and every month going forward, I’ll be posting the minutes from the UMPC (University of Pittsburgh Medical Center) Severe Asthma Support Group conference calls. The calls are sponsored by the Asthma Institute at UMPC and moderated by Dr Sally Wenzel Pulmonologist and Deborah A. Gillman PhD, Clinical Psychologist. If you have difficult […]

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A SARP’in we will go…….

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In a few weeks I’m off to Pittsburgh again to participate in SARP III. The focus of SARP III is to study the stability of clinical and molecular phenotypes of severe Asthma. Basically they’re looking for the bio signature of certain mast cells in the serum and plasma and whether they are maintained over the […]

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Asthma Phenotypes

asthma pnenotypes

Physician researchers at the University of Pittsburgh Asthma Institute at UPMC are now using molecular and genetic information to identify asthma phenotypes and customize therapies in order to improve patient outcomes. If you have asthma and would like to contribute to this on going research, please consider volunteering for

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Tour De Badass YVR

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“Badassmatic (adj.): Person with asthma better defined by badassery. Possesses insatiable desire for growth, change and adventure.“ ( Brought to you courtesy of Kerri Mac Kay) ***For more Badass adventures check out last years trip to Churchill *** Related Posts: Guest Post by Kerri Survive an attack, register for a marathon6 times a dayLet’s build […]

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Leading the Research

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