It’s your turn

  Since you’re reading this post, Im assuming that you’re either living with asthma yourself, or you know someone else who is. If you’ve been to my site before, then you probably know that I blog extensively about my asthma and the impact it’s had on my life.  Ah, but except for a few who […]

Sally doing her thing

Im referring to Dr Sally Wenzel of course. I never get tired of listening to her speak and educating others on the subject of asthma, particularly severe asthma. So here’s a full hour of Sally goodness! The audience in the video are physicians, but even if you’re not a medical person, if you’ve lived with […]

In other news

And despite all the medical appointments, I still managed to learn a dozen new tunes. Related Posts:104th trip to the slammer for AsthmaNumber 94….a Bad OneMy 133rd hospitalization for asthma23rd time’s a charmNumber 96 Nice try asthma, but I’m still here.

No matter how well I take care of myself

Not sure what’s going on. Since 2003 when my asthma started to get really bad, it was for the most part, relatively stable and the symptoms tolerable for several months at a time. Even the exacerbations, while still very severe on occasion, were somewhat predictable. Likewise, my lung function, specifically my FEV1 and FVC, though […]

ICU delirium got a hold on me

If you’ve suffered from asthma for any length of time and/or have been hospitalized for it, no doubt you’ve experienced some of the not so pleasant side effects of corticosteroids, or possible psychosis from being in the intensive care unit for any length of time. Being in and out of the hospital and on steroids […]

Asthma Tree

We all have an upside down tree in our chests. The trunk resembles the main bronchus (the windpipe), the branches are the large and small airways, and the bright green leaves are the little air sacs (alveoli) where oxygen and carbon dioxide exchange takes place. These are healthy lungs…. In some forms of COPD, such […]

Survive an attack, register for a marathon

Makes sense to me…… Get really sick, spend time in the hospital, come home exhausted and depressed, and then immediately sign up to do a 26.2 mile foot race. But then again I’m probably not your typical chronic lunger. After finishing my 8th marathon back in 2011, I had basically shrugged off the notion of […]

SARP ends, but the research continues

Though still in operation, the NIH funded Severe Asthma Research Program (SARP), which started 14 years ago, is now officially closed to new enrollees. Sadly, it looks like SARP will be the last large observational study of severe asthmatics, at least for the foreseeable future. The good news, is that there’s still a lot of […]

Are ER Asthma Treatment Protocols changing?

Is it just me or are things changing? Being a frequently flyer in the ER asthma world, Ive noticed more and more changes over the years in the ER treatment protocols for acute asthma flares. Most notably are the changes in dosage and frequency of administering steroids and certain bronchodilators. When it comes to IV […]

Survivors Guilt

Every time I hear about someone who died from asthma, especially when it’s a child, I can’t help but feel just a little guilty for living as long as I have. Despite having one of the lowest asthma mortality rates in the world, 3500-4000 people still die from asthma each year in the United States, […]

SARP Newsletter

The Severe Asthma Research Program’s first Newsletter. Well worth reading! A Breath of Fresh Air Related Posts:The do- another- race verdict is in.Steroids, less is always betterA common cold with not so common asthmaMy first 7 weeks on DupilumabMy 133rd hospitalization for asthmaFlavor of the month

SARP III complete

Well, almost. The study actually lasts for 3 years, but the bulk of the testing can usually be completed in 4 half day visits. After that, it’s annual follow ups and the occasional online questionnaire. Because I had a separate clinic appointment with Dr Wenzel, and because there has to be a 3 week space […]

Self observations : Steriod insomnia

For probably the first time in 50 years of cycling on and off of steroids, it came to me in a flash last night, that the reason I can’t sleep when on steroids, is not because I have too much steroid in me, but rather not enough. For the past 14 days Ive been in […]