In other news

Posted on Leave a commentPosted in Asthma, asthma awareness, Asthma exacerbations, Funny asthma stuff, Intubation, intubation, Lifestyle changes, Lung Transplant, Other medical tests, Ventilator

And despite all the medical appointments, I still managed to learn a dozen new tunes. Related Posts:23rd time’s a charm104th trip to the slammer for AsthmaNumber 94….a Bad OneDepressing trendIm the the conundrum, the outlier, the oddball asthmatic15 months Intubation Free!

Depressing trend

Posted on 4 CommentsPosted in Asthma, asthma awareness, Asthma Education, Asthma exacerbations, Asthma hospitalization, Asthma Medications, Intubation, Severe asthma, Ventilator

Not sure what’s going on. Since 2003 when my asthma started to get really bad, it was for the most part, relatively stable and the symptoms tolerable for several months at a time. Even the exacerbations, while still very severe on occasion, were somewhat predictable. Likewise, my lung function, specifically my FEV1 and FVC, though […]

ICU delirium got a hold on me

Posted on 3 CommentsPosted in Asthma, asthma awareness, Asthma hospitalization, Bipap, Dyspnea, Intubation, intubation, Shortness of Breath, Steroids ( prednisone), Ventilator

If you’ve suffered from asthma for any length of time and/or have been hospitalized for it, no doubt you’ve experienced some of the not so pleasant side effects of corticosteroids, or possible psychosis from being in the intensive care unit for any length of time. Being in and out of the hospital and on steroids […]

Survive an attack, register for a marathon

Posted on 7 CommentsPosted in Asthma, asthma advocacy, asthma awareness, Exercise&Fitness, Fitness Walking, Marathons, People, Places and Events, Recovering from severe asthma attack, Walking

Makes sense to me…… Get really sick, spend time in the hospital, come home exhausted and depressed, and then immediately sign up to do a 26.2 mile foot race. But then again I’m probably not your typical chronic lunger. After finishing my 8th marathon back in 2011, I had basically shrugged off the notion of […]

SARP ends, but the research continues

Posted on 1 CommentPosted in Asthma, asthma awareness, Sally Wenzel, SARP, Severe asthma, University of Pittsburgh Asthma Institute

Though still in operation, the NIH funded Severe Asthma Research Program (SARP), which started 14 years ago, is now officially closed to new enrollees. Sadly, it looks like SARP will be the last large observational study of severe asthmatics, at least for the foreseeable future. The good news, is that there’s still a lot of […]

Are ER Asthma Treatment Protocols changing?

Posted on 3 CommentsPosted in Asthma, asthma awareness, Asthma Education, Asthma Symptoms, Asthma treatments, Doctor appointments, Hospitals, Misc, Respiratory Therapist, Respiratory Therapy

Is it just me or are things changing? Being a frequently flyer in the ER asthma world, Ive noticed more and more changes over the years in the ER treatment protocols for acute asthma flares. Most notably are the changes in dosage and frequency of administering steroids and certain bronchodilators. When it comes to IV […]

UMPC Asthma Support Group

Posted on Leave a commentPosted in Asthma, asthma advocacy, asthma awareness, Asthma Education, Asthma Support Group, Questions and Answers, Sally Wenzel, SARP, University of Pittsburgh Asthma Institute

Starting this month and every month going forward, I’ll be posting the minutes from the UMPC (University of Pittsburgh Medical Center) Severe Asthma Support Group conference calls. The calls are sponsored by the Asthma Institute at UMPC and moderated by Dr Sally Wenzel Pulmonologist and Deborah A. Gillman PhD, Clinical Psychologist. If you have difficult […]

A SARP’in we will go…….

Posted on 1 CommentPosted in Asthma, asthma advocacy, asthma awareness, Asthma research, Doctor appointments, People, Places and Events, phenotypes, Sally Wenzel, SARP, Severe asthma

In a few weeks I’m off to Pittsburgh again to participate in SARP III. The focus of SARP III is to study the stability of clinical and molecular phenotypes of severe Asthma. Basically they’re looking for the bio signature of certain mast cells in the serum and plasma and whether they are maintained over the […]