A SARP’in we will go…….

Posted 1 CommentPosted in Asthma, asthma advocacy, asthma awareness, asthma phenotypes, Asthma research, Doctor appointments, People, Places and Events, Sally Wenzel, SARP, Severe asthma

In a few weeks I’m off to Pittsburgh again to participate in SARP III. The focus of SARP III is to study the stability of clinical and molecular phenotypes of severe Asthma. Basically they’re looking for the bio signature of certain mast cells in the serum and plasma and whether they are maintained over the […]

Asthma Phenotypes

Posted Leave a commentPosted in Asthma, asthma awareness, Asthma Education, asthma phenotypes, Sally Wenzel, SARP, Severe asthma

Physician researchers at the University of Pittsburgh Asthma Institute at UPMC are now using molecular and genetic information to identify asthma phenotypes and customize therapies in order to improve patient outcomes. If you have asthma and would like to contribute to this on going research, please consider volunteering for

Dupilumab , A Game Changer ?

Posted 4 CommentsPosted in Asthma, asthma awareness, Asthma Medications, asthma phenotypes, Asthma research, Sally Wenzel, Severe asthma

When I heard the news today that there’s a new drug in the pipeline for severe asthma, I about fell out of my chair. When you hear one of the world’s most respected asthma researchers proclaiming that this new drug is a “game changer”, you can’t help but feel a little more optimistic about the […]

Life after the Blog

Posted 4 CommentsPosted in Asthma, Asthma and travel, Exercise&Fitness, Fitness Walking, intubation, Lifestyle changes, Music, People, Places and Events, Sally Wenzel, travel, Walking

Just a quick update on what Ive up too the last couple weeks. Lungs I’ve pretty much fully recovered from that last exacerbation and hospital stint. I think the intubation is what caused me to get so sick in the first place. An endotracheal tube is the perfect conduit for introducing bacteria and viruses deep […]

Boston or Bust!

Posted 11 CommentsPosted in Asthma, Asthma & Exercise, asthma awareness, Boston Marathon, Exercise&Fitness, Fitness Walking, Marathon walking, Marathons, Mobility Impaired Division, People, Places and Events, Sally Wenzel, Severe asthma, Walking

So in just a few hours Bib# 21619 is off to the Boston area to take another stab at the mother of all foot races. Monday morning I will attempt to finish my 3rd Boston marathon in a row and my 8th full marathon since starting this incredible fitness journey 5 years ago. May not […]

Lunch with Sally

Posted 7 CommentsPosted in Asthma, asthma awareness, Asthma Education, Asthma research, People, Places and Events, Sally Wenzel, SARP

Had the great fortune of having lunch last week with one of my most favorite people in the whole world. Dr Wenzel was in town for the annual AAAAI convention in San Francisco and managed to squeeze in some private time with me in between her busy presentation schedule. Although we keep in close contact […]

Cross Country Lab-Ratting

Posted 5 CommentsPosted in Asthma, Asthma research, Severe asthma

I just accepted an invitation to participate in a new clinical research project that studies the effects of a certain oral diabetes drug on people who have severe asthma. The technical name of the study is….. “A Randomized, Placebo-Controlled, Double-Blind Pilot Study of Pioglitazone Hydrochloride in Severe, Refractory Asthma” It’s being conducted at the NIH […]

I’m blessed

Posted 17 CommentsPosted in Asthma, Asthma exacerbations, Asthma hospitalization, Exacerbation Recovery, Fan mail, Friends/Bloggers, Inspiration, People, Places and Events, Recovering from severe asthma attack, Sally Wenzel

You know what? I might be cursed with crappy lungs, but I sure seem to be blessed with some cool and caring friends. Case in point: After spending a pretty ugly night in the local ER, I woke up the next day to find a bunch of Facebook alerts on my phone. My talented friend […]

Annual Asthma Report Card

Posted 5 CommentsPosted in Asthma, Asthma & Exercise, Asthma care plan, Asthma exacerbations, Asthma Medications, Asthma research, Asthma Symptoms, Asthma treatments, lung disease and exercise, Opiates, Shortness of Breath

It’s been almost a year since Ive updated my asthma status. Here’s the latest report card. For the year, I give myself a C + In general my lung function has only declined a couple percent which is good. The problem of course, is that when you’re down in the lower ranges like I am, […]

Bound for Beantown

Posted 7 CommentsPosted in Asthma, Asthma research, Boston Marathon, Exercise&Fitness, Inspiration, Marathon walking, Marathons, People, Places and Events, Walking, walking events

( read more) Well, after all the training, all the planning, and all the hoping like crazy that my sore foot will somehow heal in time and that my lungs won’t act up too bad, for better or worse, to finish or not, the big daddy of race weekends is finally here! Saturday night I […]