Asthma Phenotypes

Physician researchers at the University of Pittsburgh Asthma Institute at UPMC are now using molecular and genetic information to identify asthma phenotypes and customize therapies in order to improve patient outcomes. If you have asthma and would like to contribute to this on going research, please consider volunteering for

Dupilumab , A Game Changer ?

When I heard the news today that there’s a new drug in the pipeline for severe asthma, I about fell out of my chair. When you hear one of the world’s most respected asthma researchers proclaiming that this new drug is a “game changer”, you can’t help but feel a little more optimistic about the […]

3 Good Weeks

For the life of me I can’t figure out why my breathing was so good from those last 2 weeks in January all the way till Feb 3rd. When I say “good” I don’t mean like a return to normal lung function or even a significant decrease in symptoms, but still what I experienced during […]

Life after the Blog

Just a quick update on what Ive up too the last couple weeks. Lungs I’ve pretty much fully recovered from that last exacerbation and hospital stint. I think the intubation is what caused me to get so sick in the first place. An endotracheal tube is the perfect conduit for introducing bacteria and viruses deep […]

Boston or Bust!

So in just a few hours Bib# 21619 is off to the Boston area to take another stab at the mother of all foot races. Monday morning I will attempt to finish my 3rd Boston marathon in a row and my 8th full marathon since starting this incredible fitness journey 5 years ago. May not […]

Lunch with Sally

Had the great fortune of having lunch last week with one of my most favorite people in the whole world. Dr Wenzel was in town for the annual AAAAI convention in San Francisco and managed to squeeze in some private time with me in between her busy presentation schedule. Although we keep in close contact […]

Cross Country Lab-Ratting

I just accepted an invitation to participate in a new clinical research project that studies the effects of a certain oral diabetes drug on people who have severe asthma. The technical name of the study is….. “A Randomized, Placebo-Controlled, Double-Blind Pilot Study of Pioglitazone Hydrochloride in Severe, Refractory Asthma” It’s being conducted at the NIH […]

I’m blessed

You know what? I might be cursed with crappy lungs, but I sure seem to be blessed with some cool and caring friends. Case in point: After spending a pretty ugly night in the local ER, I woke up the next day to find a bunch of Facebook alerts on my phone. My talented friend […]

SARP Follow-up

Wow, has it been an entire year already? I guess so, because I just completed my one year follow-up interview for SARP. This time it was just a phone interview. One of the researchers called me last weekend and asked me a bunch of follow-up questions. Most of the questions had to do with whether […]

Annual Asthma Report Card

It’s been almost a year since Ive updated my asthma status. Here’s the latest report card. For the year, I give myself a C + In general my lung function has only declined a couple percent which is good. The problem of course, is that when you’re down in the lower ranges like I am, […]

Bound for Beantown

( read more) Well, after all the training, all the planning, and all the hoping like crazy that my sore foot will somehow heal in time and that my lungs won’t act up too bad, for better or worse, to finish or not, the big daddy of race weekends is finally here! Saturday night I […]

Another piece of the asthma puzzle

Just got my lung biopsy report back from SARP study, are starting to paint a clearer picture of why my asthma is so severe. If there’s any good news in all this, it’s that there’s a new drug in the pipeline that could possibly help people like me who have this cellular abnormality. Dr Wenzel […]