Sally doing her thing

Posted Leave a commentPosted in Asthma, asthma advocacy, asthma awareness, Asthma Education, asthma phenotypes, Asthma research, People, Places and Events, Sally Wenzel

Im referring to Dr Sally Wenzel of course. I never get tired of listening to her speak and educating others on the subject of asthma, particularly severe asthma. So here’s a full hour of Sally goodness! The audience in the video are physicians, but even if you’re not a medical person, if you’ve lived with […]

I’m phenotyped

Posted 2 CommentsPosted in Asthma, asthma phenotypes, Sally Wenzel, SARP, Severe asthma

Thanks to the efforts of the SARP researchers and the new era of severe asthma phenotyping, my particular flavor of the disease has finally been described. Drum roll please………………… It’s called “Long duration Th2 low/mast cell high with remodeling“, asthma. It probably sounds like a bunch of googly gob, but about half the people with […]

SARP ends, but the research continues

Posted 1 CommentPosted in Asthma, asthma awareness, Sally Wenzel, SARP, Severe asthma, University of Pittsburgh Asthma Institute

Though still in operation, the NIH funded Severe Asthma Research Program (SARP), which started 14 years ago, is now officially closed to new enrollees. Sadly, it looks like SARP will be the last large observational study of severe asthmatics, at least for the foreseeable future. The good news, is that there’s still a lot of […]

Lung Art

Posted 1 CommentPosted in Asthma, Bronchoscopy, Friends/Bloggers, Funny asthma stuff, lung anatomy, Lung physiology, Sally Wenzel, SARP, University of Pittsburgh Asthma Institute

I thought this was so clever. A few months ago a good friend of mine from Toronto, asked me if I could she use one of the images I had of some mast cells and lung tissue that was collected from my airways during an earlier bronchoscopy. She was going to somehow use them for […]

A SARP’in we will go…….

Posted 1 CommentPosted in Asthma, asthma advocacy, asthma awareness, asthma phenotypes, Asthma research, Doctor appointments, People, Places and Events, Sally Wenzel, SARP, Severe asthma

In a few weeks I’m off to Pittsburgh again to participate in SARP III. The focus of SARP III is to study the stability of clinical and molecular phenotypes of severe Asthma. Basically they’re looking for the bio signature of certain mast cells in the serum and plasma and whether they are maintained over the […]

Asthma Phenotypes

Posted Leave a commentPosted in Asthma, asthma awareness, Asthma Education, asthma phenotypes, Sally Wenzel, SARP, Severe asthma

Physician researchers at the University of Pittsburgh Asthma Institute at UPMC are now using molecular and genetic information to identify asthma phenotypes and customize therapies in order to improve patient outcomes. If you have asthma and would like to contribute to this on going research, please consider volunteering for

Dupilumab , A Game Changer ?

Posted 4 CommentsPosted in Asthma, asthma awareness, Asthma Medications, asthma phenotypes, Asthma research, Sally Wenzel, Severe asthma

When I heard the news today that there’s a new drug in the pipeline for severe asthma, I about fell out of my chair. When you hear one of the world’s most respected asthma researchers proclaiming that this new drug is a “game changer”, you can’t help but feel a little more optimistic about the […]

Life after the Blog

Posted 4 CommentsPosted in Asthma, Asthma and travel, Exercise&Fitness, Fitness Walking, intubation, Lifestyle changes, Music, People, Places and Events, Sally Wenzel, travel, Walking

Just a quick update on what Ive up too the last couple weeks. Lungs I’ve pretty much fully recovered from that last exacerbation and hospital stint. I think the intubation is what caused me to get so sick in the first place. An endotracheal tube is the perfect conduit for introducing bacteria and viruses deep […]

Boston or Bust!

Posted 11 CommentsPosted in Asthma, Asthma & Exercise, asthma awareness, Boston Marathon, Exercise&Fitness, Fitness Walking, Marathon walking, Marathons, Mobility Impaired Division, People, Places and Events, Sally Wenzel, Severe asthma, Walking

So in just a few hours Bib# 21619 is off to the Boston area to take another stab at the mother of all foot races. Monday morning I will attempt to finish my 3rd Boston marathon in a row and my 8th full marathon since starting this incredible fitness journey 5 years ago. May not […]

Lunch with Sally

Posted 7 CommentsPosted in Asthma, asthma awareness, Asthma Education, Asthma research, People, Places and Events, Sally Wenzel, SARP

Had the great fortune of having lunch last week with one of my most favorite people in the whole world. Dr Wenzel was in town for the annual AAAAI convention in San Francisco and managed to squeeze in some private time with me in between her busy presentation schedule. Although we keep in close contact […]

I’m blessed

Posted 17 CommentsPosted in Asthma, Asthma exacerbations, Asthma hospitalization, Exacerbation Recovery, Fan mail, Friends/Bloggers, Inspiration, People, Places and Events, Recovering from severe asthma attack, Sally Wenzel

You know what? I might be cursed with crappy lungs, but I sure seem to be blessed with some cool and caring friends. Case in point: After spending a pretty ugly night in the local ER, I woke up the next day to find a bunch of Facebook alerts on my phone. My talented friend […]