SARP Follow-up

Wow, has it been an entire year already? I guess so, because I just completed my one year follow-up interview for SARP. This time it was just a phone interview. One of the researchers called me last weekend and asked me a bunch of follow-up questions. Most of the questions had to do with whether […]

Another piece of the asthma puzzle

Just got my lung biopsy report back from SARP study, are starting to paint a clearer picture of why my asthma is so severe. If there’s any good news in all this, it’s that there’s a new drug in the pipeline that could possibly help people like me who have this cellular abnormality. Dr Wenzel […]

Recovery progress note

So after each bad asthma exacerbation or flare-up, I feel compelled to write something about the recovery phase that follows. You would think that after going through this process more than a hundred times, that I would get use to it. You learn to deal with it a little better, but you never get used […]

Hospital stay #97

Battle scars: 4 failed arterial line attempts and 12 failed IV attempts. I have no veins left and my radial arteries are so scarred up from previous insertions, that it’s virtually impossible to get access unless they put a central line in. Very frustrating for the doctors and very painful for me. I’d been having […]

The meeting

Before I begin, let me preface this post by saying that I haven’t made up my mind as to whether I would even want lung transplant surgery, should it ever get to that point. I wanted however, to see what some of my Pulmonologists views were on this subject, and to get a feel for […]

Questions for Sally

Last week after finding out just how damaged my lungs really are, the only thing going through my head was..WHY? All of the assumptions I had made about my asthma throughout the years, suddenly didn’t seem to make sense anymore. I was beginning to wonder if I really ever had asthma at all? Maybe I just […]

Closing the loop on Asthma–Sally Wenzel

Found this interesting and informative article about Dr Sally Wenzel, and why she decided to get involved in severe asthma research. It gets a little technical in the middle , but well worth the read. The more I hear about this amazing women and all of her contributions to the study of this disease, the […]