Figured I better update my blog before people think I died or something. Where do I start. Walking ,I’m happy to report that while my lung function hasn’t been all that great this year, I am indeed still walking. I’m putting in about 22 miles a week, which is actually more than I was doing [...]
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Had the great fortune of having lunch last week with one of my most favorite people in the whole world. Dr Wenzel was in town for the annual AAAAI convention in San Francisco and managed to squeeze in some private time with me in between her busy presentation schedule. Although we keep in close contact [...]
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I was talking with one of the Asthma Research Recruiters over at the NIH in Bethesda Maryland where I’ll be involved in a study later this year( more about that in a future post), and I was shocked to learn that they were having a really hard time getting volunteers for there asthma research projects, [...]
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Wow, has it been an entire year already? I guess so, because I just completed my one year follow-up interview for SARP. This time it was just a phone interview. One of the researchers called me last weekend and asked me a bunch of follow-up questions. Most of the questions had to do with whether [...]
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Just got my lung biopsy report back from SARP study, are starting to paint a clearer picture of why my asthma is so severe. If there’s any good news in all this, it’s that there’s a new drug in the pipeline that could possibly help people like me who have this cellular abnormality. Dr Wenzel [...]
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[Not lookin too bad for someone who was on a ventilator just 11 days earlier..eh?] I’m not totally out of the woods yet and I don’t want to jinx myself, but for the first time in 2 weeks, I actually feel like a human being again. I can breath! To celebrate, I went ahead and [...]
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Before I begin, let me preface this post by saying that I haven’t made up my mind as to whether I would even want lung transplant surgery, should it ever get to that point. I wanted however, to see what some of my Pulmonologists views were on this subject, and to get a feel for [...]
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Last week after finding out just how damaged my lungs really are, the only thing going through my head was..WHY? All of the assumptions I had made about my asthma throughout the years, suddenly didn’t seem to make sense anymore. I was beginning to wonder if I really ever had asthma at all? Maybe I just [...]
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I’m a lab rat…. and proud of it ! Later today I’m off to Pittsburgh, Pennsylvania for the Sally Wenzel . She’s done so much to advance the knowledge of the severe forms of this disease. I admire her and feel like I already know her. My plane leaves at 11 pm tonight, and with [...]
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Found this interesting and informative article about Dr Sally Wenzel, and why she decided to get involved in severe asthma research. It gets a little technical in the middle , but well worth the read. The more I hear about this amazing women and all of her contributions to the study of this disease, the [...]
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Interesting article from a 2008 SARP study, titled… “More than a Matter of Degree: Severe Asthma May Be a Different Form of the Disease”. Seems to answer a lot of questions Ive always wondered about. Dr Sorkness does a great job of explaining the basics of asthma as well as the research the SARP is [...]
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