I’m phenotyped

Posted 2 CommentsPosted in Asthma, asthma phenotypes, Sally Wenzel, SARP, Severe asthma

Thanks to the efforts of the SARP researchers and the new era of severe asthma phenotyping, my particular flavor of the disease has finally been described. Drum roll please………………… It’s called “Long duration Th2 low/mast cell high with remodeling“, asthma. It probably sounds like a bunch of googly gob, but about half the people with […]

PFTs Du Jour

Posted 1 CommentPosted in Asthma, Asthma medical tests, COPD, FEV1, Peak Flows, Pulmonary function tests, SARP

For those interested, here are my latest spirometry results from last weeks SARP follow-up visit at UCSF last week. It’s kind of a bad-good-bad then good-good-bad story. Starting with the not so good news… my initial FEV1 was only 28% (.83 liters) this time. That’s down 4 percentage points from last years visit. The good […]

SARP ends, but the research continues

Posted 1 CommentPosted in Asthma, asthma awareness, Sally Wenzel, SARP, Severe asthma, University of Pittsburgh Asthma Institute

Though still in operation, the NIH funded Severe Asthma Research Program (SARP), which started 14 years ago, is now officially closed to new enrollees. Sadly, it looks like SARP will be the last large observational study of severe asthmatics, at least for the foreseeable future. The good news, is that there’s still a lot of […]

Lung Art

Posted 1 CommentPosted in Asthma, Bronchoscopy, Friends/Bloggers, Funny asthma stuff, lung anatomy, Lung physiology, Sally Wenzel, SARP, University of Pittsburgh Asthma Institute

I thought this was so clever. A few months ago a good friend of mine from Toronto, asked me if I could she use one of the images I had of some mast cells and lung tissue that was collected from my airways during an earlier bronchoscopy. She was going to somehow use them for […]

UMPC Asthma Support Group

Posted Leave a commentPosted in Asthma, asthma advocacy, asthma awareness, Asthma Education, Asthma Support Group, Questions and Answers, Sally Wenzel, SARP, University of Pittsburgh Asthma Institute

Starting this month and every month going forward, I’ll be posting the minutes from the UMPC (University of Pittsburgh Medical Center) Severe Asthma Support Group conference calls. The calls are sponsored by the Asthma Institute at UMPC and moderated by Dr Sally Wenzel Pulmonologist and Deborah A. Gillman PhD, Clinical Psychologist. If you have difficult […]

A SARP’in we will go…….

Posted 1 CommentPosted in Asthma, asthma advocacy, asthma awareness, asthma phenotypes, Asthma research, Doctor appointments, People, Places and Events, Sally Wenzel, SARP, Severe asthma

In a few weeks I’m off to Pittsburgh again to participate in SARP III. The focus of SARP III is to study the stability of clinical and molecular phenotypes of severe Asthma. Basically they’re looking for the bio signature of certain mast cells in the serum and plasma and whether they are maintained over the […]

Asthma Phenotypes

Posted Leave a commentPosted in Asthma, asthma awareness, Asthma Education, asthma phenotypes, Sally Wenzel, SARP, Severe asthma

Physician researchers at the University of Pittsburgh Asthma Institute at UPMC are now using molecular and genetic information to identify asthma phenotypes and customize therapies in order to improve patient outcomes. If you have asthma and would like to contribute to this on going research, please consider volunteering for

Lunch with Sally

Posted 7 CommentsPosted in Asthma, asthma awareness, Asthma Education, Asthma research, People, Places and Events, Sally Wenzel, SARP

Had the great fortune of having lunch last week with one of my most favorite people in the whole world. Dr Wenzel was in town for the annual AAAAI convention in San Francisco and managed to squeeze in some private time with me in between her busy presentation schedule. Although we keep in close contact […]