It follows me everywhere, even into my dreams.

I swear you cant escape this shit, it follows you everywhere…. even into your sleep! Not that Im able to sleep that much anyway, when I do it’s usually from pure exhaustion. But when I do fall asleep it sure would be nice not to be interrupted by a terrifying nightmare involving an acute severe … Read moreIt follows me everywhere, even into my dreams.

My asthma has changed again

I’m not talking about the disease itself, I still have the classic text book definition of asthma, maybe even to a greater degree than many. What I’m referring to is the changing ways in which my asthma manifests itself. Like many inflammatory diseases, asthma symptoms tends to be cyclic in nature, where you have periods … Read moreMy asthma has changed again

I almost forgot who I am

I’m so much more than just the quirky little dude with bad lungs. I’m the original badass asthmatic. I made the words “fitness” and “lung disease” sound cool together. Im the first and only person with really severe asthma ever to finish the Boston marathon. Not once…but 3 times. Im also one who doesn’t gets … Read moreI almost forgot who I am

Prelude to an asthma flare

So my asthma is acting up again and I feel like I have the proverbial elephant sitting on my chest. I say my asthma is acting up, but in actuality it’s always acting up. So I guess what I really mean is that my symptoms are ramping up from my norm, getting more intense by … Read morePrelude to an asthma flare

Bipap trial

It’s too soon to tell if it’s helping, but 4 weeks ago I started on a trial of home Bipap. Essentially Im sleeping hooked up to a non -invasive ventilator. I’ve been using a full face mask which Im gradually getting used to. Right now I’m averaging about 4- 5 hours per night on the … Read moreBipap trial

How low can it go?

Having documented a significant, but relatively slow decline in my lung function over the past decade, Ive often wondered what life must be like for other asthmatics who have a baseline FEV1 below 25%. Well, now I know. According to the last spirometry results, which I did for my annual SARP follow up visit last … Read moreHow low can it go?

Don’t forget the upper body!

If you’ve spent much time reading my blog, you’ve probably figured out that Im a huge promoter of daily exercise for people with lung disease. My favorite fitness activity of course, is distance walking. Aerobic exercise such as walking, uses large muscle groups to move at a steady, rhythmic pace. It’s an excellent way to … Read moreDon’t forget the upper body!

Treatment overload

Yes, another update about treatment options. Things seem to be changing at a lightening pace now and it’s making my head explode. Too much for an over-thinker like me to think about. Gotta slow down and literally catch my breath. So my 3rd hospitalization and 5th intubation in just the first 4 months of this … Read moreTreatment overload

Did you bring a note ?

Back in the old days when you got sick and ended up in the hospital, it was probably because your primary care doctor put you there. Boy, have times changed. Nowadays you have one set of doctors who see you in the clinic when you’re doing well, another set of doctors who see you if … Read moreDid you bring a note ?

ICU delirium got a hold on me

If you’ve suffered from asthma for any length of time and/or have been hospitalized for it, no doubt you’ve experienced some of the not so pleasant side effects of corticosteroids, or possible psychosis from being in the intensive care unit for any length of time. Being in and out of the hospital and on steroids … Read moreICU delirium got a hold on me

23rd time’s a charm

No..not as in hospitalizations ( I’ve lost count of those,) I’m talking about my 23rd endotracheal intubation with mechanical ventilation for respiratory failure. You heard that right, Ive been intubated 23 times now! (as of 5-23-2018, make that 42 times). That’s gotta be some kind of weird worlds record or something. How is this even … Read more23rd time’s a charm

I feel your pain

Feeling like shit right now? Is your asthma, COPD or other breathing disorder flaring up or bothering you more than usual? Were you searching the web for asthma related stuff as a way to cope with your own crappy breathing? Is that how you reached my blog? Well I can tell you that you’re not … Read moreI feel your pain

Im an A hole when Im sick

Most people will tell you Im one of the sweetest, most caring people you’ll ever meet. But make no mistake, when Im recovering from a bad asthma exacerbation, I can become an obnoxious asshole… I get anxious, I get irritable, I get angry and nasty all at the same time. I snap at everyone and … Read moreIm an A hole when Im sick