Treatment overload

Posted on Leave a commentPosted in Air-trapping, Alternative Asthma treatments, Asthma, Asthma care plan, Asthma Co-Morbidities, Asthma medical tests, Asthma Medications, Bipap, Hospitals, Intubation, Lung Transplant, Other medical problems, Other medical tests, pre lung transplant, Shortness of Breath, Steroids ( prednisone), Ventilator

Yes, another update about treatment options. Things seem to be changing at a lightening pace now and it’s making my head explode. Too much for an over-thinker like me to think about. Gotta slow down and literally catch my breath. So my 3rd hospitalization and 5th intubation in just the first 4 months of this […]

I feel your pain

Posted on 5 CommentsPosted in Air-trapping, Asthma, asthma advocacy, Asthma Support Group, blogging, COPD Awareness, Dyspnea, Shortness of Breath, Wheeze

Feeling like shit right now? Is your asthma, COPD or other breathing disorder flaring up or bothering you more than usual? Were you searching the web for asthma related stuff as a way to cope with your own crappy breathing? Is that how you reached my blog? Well I can tell you that you’re not […]

Self Observations: FEV1 and Breathlessness

Posted on 3 CommentsPosted in Air-trapping, Asthma, Asthma Symptoms, Dyspnea, FEV1, lung disease and exercise, Peak Flows, Pulmonary function tests, Shortness of Breath, Walking

Always curious about things, earlier this week I did a series of FEV1 measurements on myself. I wanted to see if my dyspnea(shortness of breath)which waxes and wanes throughout the day, would correlate with my FEV1 readings. I took the first reading early in the morning when my breathing is at its best. I blew […]

Plan B

Posted on Leave a commentPosted in Achievements, Air-trapping, Asthma, Asthma & Exercise, Asthma exacerbations, Asthma Symptoms, Boston Marathon, Exercise&Fitness, Fitness/Training Update, lung disease and exercise, Marathon Training, Marathons, Portland Marathon, San Francisco Marathon/Half marathon, Severe asthma, training progress, Walking, walking events

Yesterday I completed my final “test” walk in a series of trial walks that started a month ago to see if training for a future marathon might be doable. The plan was to do the Portland marathon this October ( my 3rd time) and then hopefully obtain a qualifying time to enter Boston in 2014 […]

Bloated

Posted on 4 CommentsPosted in Air-trapping, Asthma, COPD, Diet, Health & Nutrition, Other medical problems, Other medical tests, Shortness of Breath

Everyone experiences a little indigestion and bloating from time to time. Did you know that it’s very common for people with chronic lung disease to experience frequent abdominal bloating? What’s not so normal however, is to actually become so distended that it impairs your ability to breath effectively, but that’s what was happening to me. […]

Double Whammy Asthma

Posted on 2 CommentsPosted in Air-trapping, Asthma, Dyspnea, lung anatomy, Lung physiology, pulmonary fibrosis, Shortness of Breath

I often find it frustrating that here I am, a life long asthmatic, a Respiratory therapist and an asthma educator, yet still unable in normal conversation, to describe what makes my type of asthma so different from others. When asked to define asthma in general, I usually give the spiel about how asthma is an […]

Is too much of a good thing, bad?

Posted on 3 CommentsPosted in Air-trapping, Asthma, COPD, Dyspnea, Exercise&Fitness, Fitness Walking, lung disease and exercise, Other Lung diseases, Shortness of Breath

For 5 years now, I’ve been heralding the benefits of daily exercise in people who have severe lung disease. That message is plastered all over this blog, and I believe is the reason that Ive lived so long. But wait, just as with every other facet of this frustrating disease, there’s a catch 22. While […]

Opiates and Lung disease

Posted on 12 CommentsPosted in Air-trapping, Asthma, Asthma Medications, COPD, Dyspnea, Opiates, Shortness of Breath

No longer just reserved for severe pain control or to relieve end of life suffering, today a growing number of people with severe lung disease are using opiate medications to help quell their severe dyspnea . Well, you can now add to that list, a certain asthmatic marathon walker by the name of Steve. The […]

Darn Dyspnea Dilemma

Posted on 2 CommentsPosted in Air-trapping, Asthma, Asthma exacerbations, Asthma Symptoms, COPD, Shortness of Breath

……………….Try saying that 5 times really fast. Before reading this post, you might find it useful to read the first two of paragraphs in the “Rick over at the Respiratory Therapy Cave, does a great job of explaining how asthma can sometimes turn into COPD. *************************** On Thursday I had my first appointment at this […]

The nights are the worse.

Posted on 17 CommentsPosted in Air-trapping, Asthma, Asthma exacerbations, Asthma Symptoms, Peak Flows, Shortness of Breath, Wheeze

Ever notice the time stamp on many of my blog entries? I usually compose and publish them in the early morning hours…sometimes way before dawn. You know why? Because I’m usually awake at 3 or 4 in the morning. And why am I up that early? Because Ive usually had a bad night of breathing […]