Air-Trapping

Overinflated lungs

Ive written about this before, but this is such an important topic; one that effects most chronic lungers and causes more suffering than any other respiratory symptom, that Ive decided to come out of blog retirement to write about it again. Most of the information that Ive been able to find on the internet regarding [...]

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Bloated

Bloat 1

Everyone experiences a little indigestion and bloating from time to time. Did you know that it’s very common for people with chronic lung disease to experience frequent abdominal bloating? What’s not so normal however, is to actually become so distended that it impairs your ability to breath effectively, but that’s what was happening to me. [...]

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Double Whammy Asthma

copdfig1

I often find it frustrating that here I am, a life long asthmatic, a Respiratory therapist and an asthma educator, yet still unable in normal conversation, to describe what makes my type of asthma so different from others. When asked to define asthma in general, I usually give the spiel about how asthma is an [...]

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Is too much of a good thing, bad?

Boston 125

For 5 years now, I’ve been heralding the benefits of daily exercise in people who have severe lung disease. That message is plastered all over this blog, and I believe is the reason that Ive lived so long. But wait, just as with every other facet of this frustrating disease, there’s a catch 22. While [...]

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Opiates, Dyspnea and Me

No longer just reserved for severe pain control or to relieve end of life suffering, today a growing number of people with severe lung disease are using opiate medications to help quell their severe dyspnea . Well, you can now add to that list, a certain quirky little asthmatic marathon walker, by the name of [...]

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The SARP experience

Me and Sally

Welcome to Pittsburgh, Pennsylvania for the

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Darn Dyspnea Dilemma ( Part 1)

……………….Try saying that 5 times really fast. Before reading this post, you might find it useful to read the first two of paragraphs in the “Rick over at the Respiratory Therapy Cave, does a great job of explaining how asthma can sometimes turn into COPD. *************************** On Thursday I had my first appointment at this [...]

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The nights are the worse.

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Ever notice the time stamp on many of my blog entries? I usually compose and publish them in the early morning hours…sometimes way before dawn. You know why? Because I’m usually awake at 3 or 4 in the morning. And why am I up that early? Because Ive usually had a bad night of breathing [...]

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SARP podcast

Interesting article from a 2008 SARP study, titled… “More than a Matter of Degree: Severe Asthma May Be a Different Form of the Disease”. Seems to answer a lot of questions Ive always wondered about. Dr Sorkness does a great job of explaining the basics of asthma as well as the research the SARP is [...]

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The not so glamorous side of being a severely asthmatic marathon walker

Yeah, I made it to Boston , Ive walked the Rome and Portland marathons a couple times, and yeah Ive been written up in lots of walk magazines and medical journals, but I think a lot of people who hear about me or read my blog, assume that because Ive done all these things, that [...]

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Getting down to the wire..

One week from tomorrow, I’m supposed to be on a plane heading to Italy, but as luck would have it, looks like my lungs might have the final say as to whether that actually happens. As is usually the case when it comes to me and marathons or travel…. it’s gonna get down to the [...]

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Asthma Purgatory

Suffocating

Whenever the weather is bad, so is my asthma. My lungs are extremely sensitive to humidity in the air and/or the slightest changes in barometric changes. Changes in the climate, changes in the seasons, you name it…. my lungs will react to it. I’m a walking weather station! Well, it’s been raining on and off [...]

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Training to get sick?

Seems to be the new theme around here. Do a long training walk……get sick. ( by sick I mean an asthma exacerbation) Thursday I did the second to the last of my really long training walks for the Boston and Rome marathons (18.1 miles to be exact), and now, a day later, I’m having a [...]

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