I swear you cant escape this shit, it follows you everywhere…. even into your sleep! Not that Im able to sleep that much anyway, when I do it’s usually from pure exhaustion. But when I do fall asleep it sure would be nice not to be interrupted by a terrifying nightmare involving an acute severe … Read moreIt follows me everywhere, even into my dreams.
I’m so much more than just the quirky little dude with bad lungs. I’m the original badass asthmatic. I made the words “fitness” and “lung disease” sound cool together. Im the first and only person with really severe asthma ever to finish the Boston marathon. Not once…but 3 times. Im also one who doesn’t gets … Read moreI almost forgot who I am
It’s too soon to tell if it’s helping, but 4 weeks ago I started on a trial of home Bipap. Essentially Im sleeping hooked up to a non -invasive ventilator. I’ve been using a full face mask which Im gradually getting used to. Right now I’m averaging about 4- 5 hours per night on the … Read moreBipap trial
Having documented a significant, but relatively slow decline in my lung function over the past decade, Ive often wondered what life must be like for other asthmatics who have a baseline FEV1 below 25%. Well, now I know. According to the last spirometry results, which I did for my annual SARP follow up visit last … Read moreHow low can it go?
If you’ve spent much time reading my blog, you’ve probably figured out that Im a huge promoter of daily exercise for people with lung disease. My favorite fitness activity of course, is distance walking. Aerobic exercise such as walking, uses large muscle groups to move at a steady, rhythmic pace. It’s an excellent way to … Read moreDon’t forget the upper body!
Yes, another update about treatment options. Things seem to be changing at a lightening pace now and it’s making my head explode. Too much for an over-thinker like me to think about. Gotta slow down and literally catch my breath. So my 3rd hospitalization and 5th intubation in just the first 4 months of this … Read moreTreatment overload
If you’ve suffered from asthma for any length of time and/or have been hospitalized for it, no doubt you’ve experienced some of the not so pleasant side effects of corticosteroids, or possible psychosis from being in the intensive care unit for any length of time. Being in and out of the hospital and on steroids … Read moreICU delirium got a hold on me
No..not as in hospitalizations ( I’ve lost count of those,) I’m talking about my 23rd endotracheal intubation with mechanical ventilation for respiratory failure. You heard that right, Ive been intubated 23 times now! (as of 5-23-2018, make that 42 times). That’s gotta be some kind of weird worlds record or something. How is this even … Read more23rd time’s a charm
Feeling like shit right now? Is your asthma, COPD or other breathing disorder flaring up or bothering you more than usual? Were you searching the web for asthma related stuff as a way to cope with your own crappy breathing? Is that how you reached my blog? Well I can tell you that you’re not … Read moreI feel your pain
Most people will tell you Im one of the sweetest, most caring people you’ll ever meet. But make no mistake, when Im recovering from a bad asthma exacerbation, I can become an obnoxious asshole… I get anxious, I get irritable, I get angry and nasty all at the same time. I snap at everyone and … Read moreIm an A hole when Im sick
After 9 years of blogging about life with severe asthma, I still get a lot of traffic from people searching the web for specific information about O2 saturation and how it relates to asthma or the severity of an asthma attack. So for those who might have missed my earlier posts, here’s a recap of … Read moreO2 sats and asthma attacks revisited
Dang… I haven’t written one of the training updates in years. Trying to get in shape to do this race has been challenging to say the least. It’s been 3 years since Ive attempted something crazy like this and I almost forgot just how grueling it can be when you don’t have any functional lung … Read moreTraining update Aug 2014
Always curious about things, earlier this week I did a series of FEV1 measurements on myself. I wanted to see if my dyspnea(shortness of breath)which waxes and wanes throughout the day, would correlate with my FEV1 readings. I took the first reading early in the morning when my breathing is at its best. I blew … Read moreSelf Observations: FEV1 and Breathlessness