Need proof that asthma is an expensive disease? So far this year the medical bills associated with treating my asthma total $1,362,067.99. If that, plus the fact that 3500 people still die of the disease annually in the US alone, is not enough reason to invest more in severe asthma research, I don’t know what … Read moreThe Price tag for 2018
You’ll probably have to zoom in on these images, but do any of the drug labels on my IV pole look familiar to you? You may have heard of these drugs before, but you might not beware that they are also used in the critical care treatment of severe asthma exacerbations, what they call status … Read moreAsthma party drugs
This is a generic notebook that they give ICU patients at the hospital I go to when my asthma gets really bad. With it, they encourage patients and their families to keep a sort of diary, which often times can help in with the persons recovery. I have a stack of them at home. Well … Read moreICU angels
I post my personal hospital bills from time to time to show how incredibly expensive an asthma exacerbation in the San Francisco day area can be, but this one takes the cake. At first glance $56,000 may seem like a drop in the bucket compared to some of my other hospital bills. That is, until … Read moreSticker shock
Didn’t I just blog about my 133rd hospitalization for asthma? Well make that 134 now. This is getting F’ing ridiculous. This latest flare wasn’t triggered by some massive chest infection or the flu, but by a simple cold….aka Rhinovirus. Id been feeling pretty decent in recent weeks, but just like millions of other people during … Read moreA common cold with not so common asthma
My 133rd hospitalization occurred on 10-9-2017. The trigger wasn’t the usual environmental allergies or resp infection, this time it was smoke from wildfires that have been devastating portions of northern California the past couple weeks. I woke that morning (4am) to a house full of smoke . It was so bad, we had to put … Read moreMy 133rd hospitalization for asthma
If you’ve been following my medical journey, you might recall that last summer I began the evaluation process for lung transplant at UCSF medical center. The conclusion of that evaluation came 6 months later in Dec 2016. At that time I was deemed a suitable candidate for transplant, but that my listing with UNOS would … Read moreNo transplant for me, but that’s OK.
So my asthma is acting up again and I feel like I have the proverbial elephant sitting on my chest. I say my asthma is acting up, but in actuality it’s always acting up. So I guess what I really mean is that my symptoms are ramping up from my norm, getting more intense by … Read morePrelude to an asthma flare
Need proof of just how expensive asthma can be? These are my hospital bills for the last two years, coming in at just over 2.1 million and change. 2016 2015 Related Posts:A common cold with not so common asthma104th trip to the slammer for AsthmaThe Recovery phases of a severe asthma exacerbationNumber 96 Number 95My … Read more2 years, 2 million dollars
3 and half years ago I wrote about the exciting news regarding a game changing drug called Dupilumab. Dr Wenzel and others believed that this drug was going to revolutionize the way certain forms of severe asthma are treated. Well, very soon now I’ll get to try it out myself! This past week I received … Read moreDupilumab
And despite all the medical appointments, I still managed to learn a dozen new tunes. Related Posts:104th trip to the slammer for AsthmaNumber 94….a Bad OneMy 133rd hospitalization for asthma23rd time’s a charmNumber 96 Nice try asthma, but I’m still here.
After 12 and half years of receiving free healthcare benefits from my partner’s employer, the ridiculously increasing costs to maintain those benefits became unsustainable for the small company, forcing them to ditch the premium plan for a bare bones plan with such high deductibles, that the plan is virtually useless for someone like me. So, … Read morePaying my own way
Back in the old days when you got sick and ended up in the hospital, it was probably because your primary care doctor put you there. Boy, have times changed. Nowadays you have one set of doctors who see you in the clinic when you’re doing well, another set of doctors who see you if … Read moreDid you bring a note ?