133rd hospitalization for asthma and 1st one for Bronchiolitis Obliterans

Posted 4 CommentsPosted in Arterial Blood gases, Asthma, Asthma hospitalization, Bipap, Bronchiolitis Obliterans, Intubation, Other medical problems, Secondary conditions, Severe asthma, Ventilator

My 133rd hospitalization occurred on 10-9-2017. The trigger wasn’t the usual environmental allergies or resp infection, this time it was smoke from wildfires that have been devastating portions of northern California the past couple weeks. I woke that morning (4am) to a house full of smoke . It was so bad, we had to put […]

Azithromycin therapy

Posted 4 CommentsPosted in Asthma, Asthma Medications, Asthma treatments

This past week I started on yet another experimental therapy. This time it’s a long term antibiotic regimen with Azithromycin. As an add-on therapy, recent studies indicate that the long term use of macrolides can help decrease asthma symptoms, including wheezing and shortness of breath. I’ll will be starting with 250 mgs of Azithromycin every […]

In other news

Posted Leave a commentPosted in Asthma, asthma awareness, Asthma exacerbations, Funny asthma stuff, Intubation, intubation, Lifestyle changes, Lung Transplant, Other medical tests, Ventilator

And despite all the medical appointments, I still managed to learn a dozen new tunes. Related Posts:104th trip to the slammer for AsthmaNumber 94….a Bad One133rd hospitalization for asthma and 1st one for Bronchiolitis Obliterans23rd time’s a charmNumber 96 #131

New asthma drugs in the Pipeline

Posted 2 CommentsPosted in Alternative Asthma treatments, Asthma, Asthma Medications

While doing some research and advocating for myself in hopes of obtaining the anti-IL drug, Dupilumab (on a compassionate use basis), I discovered that there are several other biologics in this new generation of targeted asthma therapy drugs that are in various stages of development. Here’s a list of some of the new biologics coming […]

Treatment overload

Posted Leave a commentPosted in Air-trapping, Alternative Asthma treatments, Asthma, Asthma care plan, Asthma Co-Morbidities, Asthma medical tests, Asthma Medications, Bipap, Hospitals, Intubation, Lung Transplant, Other medical problems, Other medical tests, pre lung transplant, Shortness of Breath, Steroids ( prednisone), Ventilator

Yes, another update about treatment options. Things seem to be changing at a lightening pace now and it’s making my head explode. Too much for an over-thinker like me to think about. Gotta slow down and literally catch my breath. So my 3rd hospitalization and 5th intubation in just the first 4 months of this […]

Evolving treatment plan

Posted 2 CommentsPosted in Alternative Asthma treatments, Asthma, Asthma treatments, pre lung transplant, Severe asthma, Steroids ( prednisone)

Things seems to be changing by the day. As of March 24th 2016, the latest plan is to put me back on Xolair until I can either obtain the biologic drug, Dupilumab, or until lung transplant becomes the only option left to extend my life. Sanofi/Regeneron, the makers of Dupilumab, need to get FDA permission […]