Dupilumab

3 and half years ago I wrote about the exciting news regarding a game changing drug called Dupilumab. Dr Wenzel and others believed that this drug was going to revolutionize the way certain forms of severe asthma are treated. Well, very soon now I’ll get to try it out myself! This past week I received […]

New asthma drugs in the Pipeline

While doing some research and advocating for myself in hopes of obtaining the anti-IL drug, Dupilumab (on a compassionate use basis), I discovered that there are several other biologics in this new generation of targeted asthma therapy drugs that are in various stages of development. Here’s a list of some of the new biologics coming […]

Treatment overload

Yes, another update about treatment options. Things seem to be changing at a lightening pace now and it’s making my head explode. Too much for an over-thinker like me to think about. Gotta slow down and literally catch my breath. So my 3rd hospitalization and 5th intubation in just the first 4 months of this […]

Evolving treatment plan

Things seems to be changing by the day. As of March 24th 2016, the latest plan is to put me back on Xolair until I can either obtain the biologic drug, Dupilumab, or until lung transplant becomes the only option left to extend my life. Sanofi/Regeneron, the makers of Dupilumab, need to get FDA permission […]

Jumping back into the ring

After a 4 year break, Im back to doing monthly visits over at the UCSF severe asthma clinic. Im super lucky, because my doctor there is John Fahy MD, a colleague of Dr Wenzel and one of the principal investigators for the SARP program, for which I’m also patient research subject. To get right to […]

15 months Intubation Free!

It feels good to brag about something positive for a change. This week marks 15 whole months since Ive had to have a tube shoved down my windpipe in order to breath. Ive had zero, what I would call “critical condition” type hospitalizations in that time period as well. Granted, I’m still ending up in […]

Getting that Monkey off my Back

I haven’t blogged about this experience until now, because frankly, I been too sick to sit in front of the computer for more than a few minutes at a time. You see exactly 2 weeks today, I stopped taking one the most physically addictive substances known to man.. Methadone! (Some might say even worse than […]

Considering BT ?

As this new treatment for severe asthma becomes more readily available to the general public, I think it’s important that prospective patients arm themselves with as much information as they can about the procedure. A physician by the name Steve Gupta, a board certified internist and an allergy immunology specialist practicing in Southern California, has […]

Going Organic

Here’s a question Ive been asking myself a lot lately (thanks to a most cool brother); When it comes to improving my fitness, why should I go through all the pain and sacrifice of exercising my body hard everyday, if I’m gonna continue to throw toxic chemicals into it? Doesn’t make much sense.. does it? […]

No Thermoplasty for Steve

Ive been getting a lot of email lately from people asking me if I’m gonna have the new clinical trials phase of this new procedure back in 2006, because my asthma was deemed “too severe” by the study investigators. People with very severe chronic asthma usually have a fair amount of scarring, and some have […]

First Xolair Injection

(this is the actual bottle) Finally, after months of delay , I got my first Xolair injection . 150mg slowly infused under the skin. It’s used to treat the allergic component of my asthma. I get one of these shots every month for ..who knows how long. I’m not expecting any miracles, but if this […]

They Don’t want me

Today, I spoke with one of the Bronchial Thermoplasty researchers at the University of Southern California , he was kind enough to explain this new and potentially revolutionary treatment for severe asthma. The theory, is that if you reduce the amount of smooth muscle ( one of the culprits that causes airway narrowing… which in […]