Advance Health Care Directive

Posted 10 CommentsPosted in Asthma, intubation, Recovering from severe asthma attack, Ventilator

The events of recent weeks has made me think really hard about just how long I want to continue this fight and under what conditions. With 135 hospitalizations under my belt, including dozens of near-fatal exacerbations and a declining quality of life, I find myself asking the question more and more….When is enough, enough? I […]

My 133rd hospitalization for asthma

Posted 4 CommentsPosted in Arterial Blood gases, Asthma, Asthma hospitalization, Bipap, Bronchiolitis Obliterans, Intubation, Other medical problems, Secondary conditions, Severe asthma, Ventilator

My 133rd hospitalization occurred on 10-9-2017. The trigger wasn’t the usual environmental allergies or resp infection, this time it was smoke from wildfires that have been devastating portions of northern California the past couple weeks. I woke that morning (4am) to a house full of smoke . It was so bad, we had to put […]

In other news

Posted Leave a commentPosted in Asthma, asthma awareness, Asthma exacerbations, Funny asthma stuff, Intubation, intubation, Lifestyle changes, Lung Transplant, Other medical tests, Ventilator

And despite all the medical appointments, I still managed to learn a dozen new tunes. Related Posts:104th trip to the slammer for AsthmaNumber 94….a Bad OneMy 133rd hospitalization for asthma23rd time’s a charmNumber 96 A common cold with not so common asthma

Treatment overload

Posted Leave a commentPosted in Air-trapping, Alternative Asthma treatments, Asthma, Asthma care plan, Asthma Co-Morbidities, Asthma medical tests, Asthma Medications, Bipap, Hospitals, Intubation, Lung Transplant, Other medical problems, Other medical tests, pre lung transplant, Shortness of Breath, Steroids ( prednisone), Ventilator

Yes, another update about treatment options. Things seem to be changing at a lightening pace now and it’s making my head explode. Too much for an over-thinker like me to think about. Gotta slow down and literally catch my breath. So my 3rd hospitalization and 5th intubation in just the first 4 months of this […]

No matter how well I take care of myself

Posted 8 CommentsPosted in Asthma, asthma awareness, Asthma Education, Asthma exacerbations, Asthma hospitalization, Asthma Medications, Intubation, Severe asthma, Ventilator

Not sure what’s going on. Since 2003 when my asthma started to get really bad, it was for the most part, relatively stable and the symptoms tolerable for several months at a time. Even the exacerbations, while still very severe on occasion, were somewhat predictable. Likewise, my lung function, specifically my FEV1 and FVC, though […]

ICU delirium got a hold on me

Posted 5 CommentsPosted in Asthma, asthma awareness, Asthma hospitalization, Bipap, Dyspnea, Intubation, intubation, Shortness of Breath, Steroids ( prednisone), Ventilator

If you’ve suffered from asthma for any length of time and/or have been hospitalized for it, no doubt you’ve experienced some of the not so pleasant side effects of corticosteroids, or possible psychosis from being in the intensive care unit for any length of time. Being in and out of the hospital and on steroids […]

What’s it like to be intubated for asthma?

Posted 19 CommentsPosted in Arterial Blood gases, Asthma, Asthma hospitalization, Hospitals, Intubation, Ventilator

The search term “Intubation” comes up fairly often on my blog’s traffic logs, so I thought I take a moment to write about it. Heaven knows I’ve had my share of them(39 times as of Dec 22, 2017). I truly hope your asthma never gets to point where you actually need to be intubated for […]

23rd time’s a charm

Posted 3 CommentsPosted in Arterial Blood gases, Asthma, Bipap, Intubation, Nebulizer treatments, Shortness of Breath

No..not as in hospitalizations ( I’ve lost count of those,) I’m talking about my 23rd endotracheal intubation with mechanical ventilation for respiratory failure. You heard that right, Ive been intubated 23 times now! (as of 12-22-2017, make that 39 times). That’s gotta be some kind of weird worlds record or something. How is this even […]

The impatient patient

Posted 5 CommentsPosted in Asthma, Asthma exacerbations, Asthma hospitalization, Intubation, Marathon Training, Marathon walking, Portland Marathon, Steroids ( prednisone), Ventilator

Oh goody, another post about asthma exacerbation recovery. After being discharged from the hospital only 3 days ago, it’s probably a little early to be writing about this topic again, but something is definitely different this time around. The recovery seems excruciatingly slow( gee, where have I heard that before?). In my mind I should […]

Not just Asthma, Severe Asthma!

Posted 2 CommentsPosted in Asthma, asthma phenotypes, Intubation, Severe asthma

Not to downplay the heartache and suffering that people with milder forms of asthma have to sometimes contend with; obviously it’s a big deal when you can’t breath, but the healthcare establishment needs to stop lumping all asthmatics together under the same general heading of “asthma”.This is a problem because severe asthma is not the […]

For the 112th time

Posted 6 CommentsPosted in Asthma, Asthma exacerbations, Asthma hospitalization, Asthma medical tests, Asthma Medications, Asthma Symptoms, Asthma treatments, Bipap, Exacerbation Recovery, Hospitals, Intubation, Nebulizer treatments, People, Places and Events, Severe asthma, Steroids ( prednisone)

Gee I haven’t written about a good ole hospital admission for quite sometime. Since I just completed my 112th, maybe now’s a good time. The theme for this latest admission is fun with steroid psychosis and why IV fluids should always be monitored closely. The fun begins The trigger to the flare leading up to […]

15 months Intubation Free!

Posted 4 CommentsPosted in Alternative Asthma treatments, Asthma, Asthma care plan, Asthma exacerbations, Asthma hospitalization, Asthma treatments, Bipap, Intubation, intubation, Peak Flows, Severe asthma

It feels good to brag about something positive for a change. This week marks 15 whole months since Ive had to have a tube shoved down my windpipe in order to breath. Ive had zero, what I would call “critical condition” type hospitalizations in that time period as well. Granted, I’m still ending up in […]