The events of recent weeks has made me think really hard about just how long I want to continue this fight and under what conditions. With 135 hospitalizations under my belt, including dozens of near-fatal exacerbations and a declining quality of life, I find myself asking the question more and more….When is enough, enough? I … Read moreAdvance Health Care Directive
My 133rd hospitalization occurred on 10-9-2017. The trigger wasn’t the usual environmental allergies or resp infection, this time it was smoke from wildfires that have been devastating portions of northern California the past couple weeks. I woke that morning (4am) to a house full of smoke . It was so bad, we had to put … Read moreMy 133rd hospitalization for asthma
And despite all the medical appointments, I still managed to learn a dozen new tunes. Related Posts:104th trip to the slammer for AsthmaNumber 94….a Bad OneMy 133rd hospitalization for asthma23rd time’s a charmNumber 96 Nice try asthma, but I’m still here.
Yes, another update about treatment options. Things seem to be changing at a lightening pace now and it’s making my head explode. Too much for an over-thinker like me to think about. Gotta slow down and literally catch my breath. So my 3rd hospitalization and 5th intubation in just the first 4 months of this … Read moreTreatment overload
Not sure what’s going on. Since 2003 when my asthma started to get really bad, it was for the most part, relatively stable and the symptoms tolerable for several months at a time. Even the exacerbations, while still very severe on occasion, were somewhat predictable. Likewise, my lung function, specifically my FEV1 and FVC, though … Read moreNo matter how well I take care of myself
If you’ve suffered from asthma for any length of time and/or have been hospitalized for it, no doubt you’ve experienced some of the not so pleasant side effects of corticosteroids, or possible psychosis from being in the intensive care unit for any length of time. Being in and out of the hospital and on steroids … Read moreICU delirium got a hold on me
The search term “Intubation” comes up fairly often on my blog’s traffic logs, so I thought I take a moment to write about it. Lord knows I’ve had my share of them. I truly hope your asthma never gets to point where you actually need to be intubated and put on a ventilator, but here’s … Read moreWhat’s it like to be intubated for asthma?
Oh goody, another post about asthma exacerbation recovery. After being discharged from the hospital only 3 days ago, it’s probably a little early to be writing about this topic again, but something is definitely different this time around. The recovery seems excruciatingly slow( gee, where have I heard that before?). In my mind I should … Read moreThe impatient patient
Greetings from the 14th floor isolation room a top the Moffitt building at UCSF medical center in San Francisco. Your guest host for tonight’s show is..well, me of course. I’ll be discussing how much fun it is being a patient in the hospital with severe asthma. Just happy to be alive, I was hoping to … Read more104th trip to the slammer for Asthma
I wasn’t going to post this, but I just couldn’t resist. Here’s the bill for my little New Years week stint at the local pokey. For fun, I threw in one of the 12 pages of itemized charges to give you an idea how much individual things cost. Like for example, the Ventilator charge per … Read moreAn expensive New Years party
[Not lookin too bad for someone who was on a ventilator just 11 days earlier..eh?] I’m not totally out of the woods yet and I don’t want to jinx myself, but for the first time in 2 weeks, I actually feel like a human being again. I can breath! To celebrate, I went ahead and … Read moreBack to Life
Battle scars: 4 failed arterial line attempts and 12 failed IV attempts. I have no veins left and my radial arteries are so scarred up from previous insertions, that it’s virtually impossible to get access unless they put a central line in. Very frustrating for the doctors and very painful for me. I’d been having … Read moreHospital stay #97
Just in time for Halloween! Some newly discovered horror show pictures. Last week while I was clearing out my cell phone, I stumbled upon these eerie photos that my partner Douglas must have taken when I was in the hospital this past June. If you recall, I was intubated for an asthma exacerbation, but had … Read moreNewly discovered horror pictures