Steroids, less is always better

Ive always had a hunch, but now there seems to be more and more scientific evidence that less is better when it comes to our favorite poison…corticosteroids! ( ie, prednisone pills and IV steroids.) And that applies not only to daily maintenance doses, but also to the treatment of severe exacerbations that require emergency hospital … Read moreSteroids, less is always better

And so it begins….Dupilumab

After waiting nearly 17 months with one setback after another and texting a friend saying “I’ll believe it the day the drug is actually inside my body” , well now I can actually say that, because today, Nov 6th 2017, I finally received my first two injections of a new anti IL-4 IL-13 biologic drug … Read moreAnd so it begins….Dupilumab

Macrolide therapy

This past week I started on yet another experimental therapy. This time it’s long- term Macrolide therapy using Azithromycin. As an add-on therapy, recent studies indicate that the long term use of macrolides can help decrease asthma symptoms, including wheezing and shortness of breath. I’ll will be starting with 250 mgs of Azithromycin every other … Read moreMacrolide therapy

Thankful for the little things.

Little, as in little charges. Like this prescription of Ambien, which cost me whopping 45 cents! I couldn’t believe it. Or how about a 30 day supply of prednisone for 60 cents. I get super low prices for my blood pressure and cholesterol meds as well, all thanks to the medicare prescription plan I started … Read moreThankful for the little things.

Paying my own way

After 12 and half years of receiving free healthcare benefits from my partner’s employer, the ridiculously increasing costs to maintain those benefits became unsustainable for the small company, forcing them to ditch the premium plan for a bare bones plan with such high deductibles, that the plan is virtually useless for someone like me. So, … Read morePaying my own way

New asthma drugs in the Pipeline

While doing some research and advocating for myself in hopes of obtaining the anti-IL drug, Dupilumab (on a compassionate use basis), I discovered that there are several other biologics in this new generation of targeted asthma therapy drugs that are in various stages of development. Here’s a list of some of the new biologics coming … Read moreNew asthma drugs in the Pipeline

Treatment overload

Yes, another update about treatment options. Things seem to be changing at a lightening pace now and it’s making my head explode. Too much for an over-thinker like me to think about. Gotta slow down and literally catch my breath. So my 3rd hospitalization and 5th intubation in just the first 4 months of this … Read moreTreatment overload

Evolving treatment plan

Things seems to be changing by the day. As of March 24th 2016, the latest plan is to put me back on Xolair until I can either obtain the biologic drug, Dupilumab, or until lung transplant becomes the only option left to extend my life. Sanofi/Regeneron, the makers of Dupilumab, need to get FDA permission … Read moreEvolving treatment plan

Did you bring a note ?

Back in the old days when you got sick and ended up in the hospital, it was probably because your primary care doctor put you there. Boy, have times changed. Nowadays you have one set of doctors who see you in the clinic when you’re doing well, another set of doctors who see you if … Read moreDid you bring a note ?

No matter how well I take care of myself

Not sure what’s going on. Since 2003 when my asthma started to get really bad, it was for the most part, relatively stable and the symptoms tolerable for several months at a time. Even the exacerbations, while still very severe on occasion, were somewhat predictable. Likewise, my lung function, specifically my FEV1 and FVC, though … Read moreNo matter how well I take care of myself

ICU delirium got a hold on me

If you’ve suffered from asthma for any length of time and/or have been hospitalized for it, no doubt you’ve experienced some of the not so pleasant side effects of corticosteroids, or possible psychosis from being in the intensive care unit for any length of time. Being in and out of the hospital and on steroids … Read moreICU delirium got a hold on me

6 times a day

I had planned to write a post about my nebulizer treatment routine, but then I thought what the heck… I’ll just video it! The point Im trying to make in the clip, is that the daily nebbing routine for many of us is a lot more time consuming than one would think. Managing asthma, COPD, … Read more6 times a day

The wonderful side effects of frequent asthma flares

Think a severe asthma exacerbation only effects your lungs? Check out the photos below. Each photo was taken appx 2-3 weeks after being discharged from the hospital after a serious asthma flare. Dehydrated? Perhaps, but interestingly, most people retain water while on prednisone. The thing about frequent severe asthma exacerbations and frequent use of steroids, … Read moreThe wonderful side effects of frequent asthma flares