Paying my own way

Posted on 1 CommentPosted in Asthma, asthma advocacy, Asthma exacerbations, Asthma medical tests, Asthma Medications, Hospitals

After 12 and half years of receiving free healthcare benefits from my partner’s employer, the ridiculously increasing costs to maintain those benefits became unsustainable for the small company, forcing them to ditch the premium plan for a bare bones plan with such high deductibles, that the plan is virtually useless for someone like me. So, […]

New asthma drugs in the Pipeline

Posted on 2 CommentsPosted in Alternative Asthma treatments, Asthma, Asthma Medications

While doing some research and advocating for myself in hopes of obtaining the anti-IL drug, Dupilumab (on a compassionate use basis), I discovered that there are several other biologics in this new generation of targeted asthma therapy drugs that are in various stages of development. Here’s a list of some of the new biologics coming […]

Treatment overload

Posted on Leave a commentPosted in Air-trapping, Alternative Asthma treatments, Asthma, Asthma care plan, Asthma Co-Morbidities, Asthma medical tests, Asthma Medications, Bipap, Hospitals, Intubation, Lung Transplant, Other medical problems, Other medical tests, pre lung transplant, Shortness of Breath, Steroids ( prednisone), Ventilator

Yes, another update about treatment options. Things seem to be changing at a lightening pace now and it’s making my head explode. Too much for an over-thinker like me to think about. Gotta slow down and literally catch my breath. So my 3rd hospitalization and 5th intubation in just the first 4 months of this […]

Evolving treatment plan

Posted on Leave a commentPosted in Alternative Asthma treatments, Asthma, Asthma treatments, pre lung transplant, Severe asthma, Steroids ( prednisone)

Things seems to be changing by the day. As of March 24th 2016, the latest plan is to put me back on Xolair until I can either obtain the biologic drug, Dupilumab, or until lung transplant becomes the only option left to extend my life. Sanofi/Regeneron, the makers of Dupilumab, need to get FDA permission […]

No matter how well I take care of myself

Posted on 7 CommentsPosted in Asthma, asthma awareness, Asthma Education, Asthma exacerbations, Asthma hospitalization, Asthma Medications, Intubation, Severe asthma, Ventilator

Not sure what’s going on. Since 2003 when my asthma started to get really bad, it was for the most part, relatively stable and the symptoms tolerable for several months at a time. Even the exacerbations, while still very severe on occasion, were somewhat predictable. Likewise, my lung function, specifically my FEV1 and FVC, though […]

ICU delirium got a hold on me

Posted on 3 CommentsPosted in Asthma, asthma awareness, Asthma hospitalization, Bipap, Dyspnea, Intubation, intubation, Shortness of Breath, Steroids ( prednisone), Ventilator

If you’ve suffered from asthma for any length of time and/or have been hospitalized for it, no doubt you’ve experienced some of the not so pleasant side effects of corticosteroids, or possible psychosis from being in the intensive care unit for any length of time. Being in and out of the hospital and on steroids […]

The Wonderful Side effects of frequent asthma flares

Posted on Leave a commentPosted in Asthma, Asthma medical tests, Asthma Medications, Asthma treatments, Exacerbation Recovery, Secondary conditions, Steroids ( prednisone)

Think a severe asthma exacerbation only effects your lungs? Check out the photos below. Each photo was taken appx 2-3 weeks after being discharged from the hospital after a serious asthma flare. Dehydrated? Perhaps, but interestingly, most people retain water while on prednisone. The thing about frequent severe asthma exacerbations and frequent use of steroids, […]

The impatient patient

Posted on 5 CommentsPosted in Asthma, Asthma exacerbations, Asthma hospitalization, Intubation, Marathon Training, Marathon walking, Portland Marathon, Steroids ( prednisone), Ventilator

Oh goody, another post about asthma exacerbation recovery. After being discharged from the hospital only 3 days ago, it’s probably a little early to be writing about this topic again, but something is definitely different this time around. The recovery seems excruciatingly slow( gee, where have I heard that before?). In my mind I should […]