Steroids, less is always better

Ive always had a hunch, but now there seems to be more and more scientific evidence that less is better when it comes to our favorite poison…corticosteroids! ( ie, prednisone pills and IV steroids.) And that applies not only to daily maintenance doses, but also to the treatment of severe exacerbations that require emergency hospital […]

Treatment overload

Yes, another update about treatment options. Things seem to be changing at a lightening pace now and it’s making my head explode. Too much for an over-thinker like me to think about. Gotta slow down and literally catch my breath. So my 3rd hospitalization and 5th intubation in just the first 4 months of this […]

Evolving treatment plan

Things seems to be changing by the day. As of March 24th 2016, the latest plan is to put me back on Xolair until I can either obtain the biologic drug, Dupilumab, or until lung transplant becomes the only option left to extend my life. Sanofi/Regeneron, the makers of Dupilumab, need to get FDA permission […]

ICU delirium got a hold on me

If you’ve suffered from asthma for any length of time and/or have been hospitalized for it, no doubt you’ve experienced some of the not so pleasant side effects of corticosteroids, or possible psychosis from being in the intensive care unit for any length of time. Being in and out of the hospital and on steroids […]

The wonderful side effects of frequent asthma flares

Think a severe asthma exacerbation only effects your lungs? Check out the photos below. Each photo was taken appx 2-3 weeks after being discharged from the hospital after a serious asthma flare. Dehydrated? Perhaps, but interestingly, most people retain water while on prednisone. The thing about frequent severe asthma exacerbations and frequent use of steroids, […]

The impatient patient

Oh goody, another post about asthma exacerbation recovery. After being discharged from the hospital only 3 days ago, it’s probably a little early to be writing about this topic again, but something is definitely different this time around. The recovery seems excruciatingly slow( gee, where have I heard that before?). In my mind I should […]

Self observations : Steriod insomnia

For probably the first time in 50 years of cycling on and off of steroids, it came to me in a flash last night, that the reason I can’t sleep when on steroids, is not because I have too much steroid in me, but rather not enough. For the past 14 days Ive been in […]

Prednisone Skin

Just one of the many joys of taking prednisone. I know chronic steroid use can cause paper thin skin ( what we call “crepe paper” skin in the biz), which then makes you more susceptible to spontaneous bruising, but Ive noticed lately that if I brush up against almost any surface, no matter how gently, […]

For the 112th time

Gee I haven’t written about a good ole hospital admission for quite sometime. Since I just completed my 112th, maybe now’s a good time. The theme for this latest admission is fun with steroid psychosis and why IV fluids should always be monitored closely. The fun begins The trigger to the flare leading up to […]

A Cookbook for Asthmatics!

Friend, Award-winning Chef , severe asthmatic and fellow SARP alumnus, Sheila Brillhard, wrote me the other day to tell me about her new cookbook . She created it for people who have to take prednisone for their asthma or other medical conditions. What a cleaver idea! I’m sure I don’t have to tell you how […]

Trapped in the yellow zone

We all know what it’s like to be in asthma purgatory for a few days or maybe even a few weeks, but for 2 months? Geeze, cut me some slack would ya! Seriously, except for a string of 6 days in the middle October when I still on high doses of pred, Ive been in […]

Running on empty

I actually had something else prepared for this weeks post, but since there’s a good chance I’ll be heading to the slammer shortly, I thought Id do a quick update on what’s been happening. If you’ve been watching my sidebar lately you probably noticed that my numbers have been all over the place. Ive been […]

Lessons learned from Boston/

It’s been just over 2 weeks now since I did the Boston marathon, and except for today, which I can’t blame on the marathon, Ive managed to stay pretty healthy. That hasn’t always been the case right after a big race. Looking back on how things played out on Boston weekend, I think the strategy […]