I didn’t even know that this was out there until an RT blogger friend on Facebook told me. Mike and I are on page 61 of the current issue of the “AARC Times”.

The Times is a publication of the American Assoc for Respiratory Care, a national organization that thousands of Respiratory Therapists belong to. They also put out a science journal called “Respiratory Care” in which I was featured back in 2008.

Click the cover to see the article

Had a great weekend, one of the best actually, in quite some time. On Saturday I was breathing so well, that I was able to go a full 12 hours without having to take a neb treatment. I did use my inhaler a couple times, but overall, I think it was the best breathing day Ive had in the last 3 months and I am grateful.

Spent part of the weekend with two of my runner friends, Brandon and Rachel who came up for the marathon. I gave them a mini tour of the city like I always do, this time including a drive up to Twin peaks followed by lunch and shopping in the Castro. The weather was classic San Francisco with fog at the beach and total sun on the other side of the hill, perfect temps all weekend long.

After lunch we went out to the marathon Expo so my friends could pick up their bibs and goodie bags . I’m not sure why the SF marathon promoters moved the Expo so far away from the starting area where most people stay , but this is something Ive noticed happening at more and more marathon events. At the Rome marathon for example, the Expo is actually located a full 10 miles away from the actual race course. The Boston Expo is located 25 miles away from the starting line. I guess it has something to do with size and cost.

Later in the day we kicked back in their hotel room and picked through the goodie bags like they were Halloween candy bags or something. It was pretty much the standard stuff though… race advertisements, magazines, discounts coupons for shoes, chapstick a couple candy bars, etc.

My friend actually bought a bag full of 2006 finisher medals that they were selling at the Expo as coasters. They’re the actual finisher medals from that year,but without the ribbon attached. If you’ve never seen a SFM medal, these things are huge.
After a nice afternoon I said goodbye to my friends and headed home. I will meet up with them again in Las Vegas in 2 weeks for the ET marathon.

Sunday’s breathing wasn’t as good as Saturdays and I ended up needing a couple more neb treatments, but my breathing was still much better than in the previous weeks. Spent most of the day hanging around the house, eating junk food and trying to figure out what I’m gonna wear for ET race (costumes are big in that event.)

After a very depressing 3 months of bouncing in and out of the hospital and thinking I was near my end, this weekend gave me a little more reassurance that I still have a few good breathing days left in me…that are worth living for.

Congrats to all those who participated in the San Francisco marathon this weekend!

In much the same way that you would keep a diary of your asthma symptoms, I came up with the concept of posting my daily breathing parameters as a way of letting others out there know, (i.e. my doctors, family and fellow asthmatics), on how my lungs are doing on any particular day. I often forget though, that while most chronic lungers know what this stuff means, a lot of people who visit my blog probably don’t.  So, if anyone is interested, here’s a little explanation of what all that junk means…. I hope it’s not too confusing.

There are 4 major components to my daily breathing stats:  a Peak flow measurement , an FEV1 measurement a Breathing Update ( which is basically a subjective description of how I’m breathing on that particular day, and lastly, a section labeled Todays Fitness Activity where I jot down what, if any, exercise I did for that day. (Ive used the above links for general definitions of what Peak Flows and FEV1 measurements are )

Peak Flows : I do my peak flow measurements several times throughout the day on a digital peak flow meter, which also measures the FEV1. Those readings are then stored on a chip and uploaded to a database which can then be used to plot out trends and other useful info. I designed the peak flow meter graphic on my blog to correspond with my actual Green-Yellow-Red breathing zones , the same you would see on a real peak flow meter.

FEV1 : As far as pulmonary function terms go, FEV1 ( which stand for Forced Expiratory Volume in 1 second) is one of the most useful measurements in quantifying the severity of airway obstruction in a person with COPD or asthma. It’s usually expressed as a percent of normal, but can also be expressed as an actual volume. In the example shown in the graphic above, my FEV1 was 35% of predicted ( based on my height weight ,age etc ). The actual exhaled volume measured to come up with this percentage was 1.05 liters. This means, that blowing out as fast as I could, I was only able to exhale 1 liter of air from my lungs in the first one second, or appx 35% of what I should have been able to do if I was healthy. Since my FEV1 hovers in the 30-40% range, my disease severity is considered to be in the severe to very severe category.

Breathing update: Because I am a real person and not a machine, the way I “feel”, doesn’t always jive with what the numbers say I should feel like. Everybody perceives breathing discomfort differently. What I might perceive as mild respiratory distress, you might perceive as major distress, and visa versa. For that reason, Ive included a subjective description of my symptoms… or lack of.

Todays Fitness Activity: Finally, because this is after all… a fitness/asthma blog, I wanted to place to record my physical fitness activity. This is where I usually input what kind of exercise I did ( or did not do ) on a particular day. As far as my fitness and /or racewalking goes, all the miles I walk are represented by the little odometers you see just below the header of the blog. These are not estimates, they are the actual number of miles Ive walked and are taken from my Garmin Forerunner GPS.

I always try to write a little something about each and every hospitalization Ive experienced, but this is one Id just as soon forget about. In total , I spent 7 days in the hospital, 6 of them in the Intensive care unit, 3 of those days spent on continuous Bipap with an Albuterol bleed-in of 15mg/hr, in what seemed more like a living hell then a type of therapy.

This time around when asked what my wishes were concerning intubation, I chose not to.. ( not to be intubated that is) …..Big Mistake, I thought I was doing the brave thing by declining to be intubated if my breathing got bad enough. Feeling like a old pro at this, I thought I could easily fight off the attack with only continuous nebs and Bipap. Had I known just how difficult it was going to be to breath on a bipap machine during an asthma crisis, I would have definitely opted for the breathing tube and ventilator. Bipap therapy supposedly decreases the work of breathing during an acute attack, though in my opinion, the feeling of suffocation you get from having a mask strapped tightly over your face, outweighs any clinical benefits you might have achieved . We were however, able to prevent my CO2 from climbing into the 70s, though it took 3 days to do it. I can’t fault the medical staff, they were great as usual. During those first critical hours they asked me repeatedly..are you “getting tired?” I kept refusing, confident that I could tough it out on the bipap.

Can you say Ativan and Dilaudid? Very untraditional for a severe asthmatic to receive opiates during a respiratory crisis, but in my case these drugs help quell the severe air- hunger associated with fighting the attack.

Hey…I’m usually the first to poke fun at my own disease , and sometimes I’ll even video tape some not- so- pleasant moments in the hospital, but the video my partner captured this time, actually made me cringe. At the end of the clip you can hear the Nurse jokingly say….”your CO2 hasn’t even hit 60 yet”! She says this because Ive been known to have PCO2 as high as 90 during an attack without being intubated. ( Btw…normal PCO2 is 45 or less)

Today, thankfully I’m home breathing considerably better, but the whole experience has left me physically and emotionally drained. Its taken me 95 hospitalizations to finally come to the realization, that I’m probably going to die from this stinking disease. That’s fine, but you know what? …Screw the “dying with dignity” bit! If my death should come in the form of an asthma attack, I hope it happens quickly, or at the very least ,with a tube shoved down my throat, with me peacefully asleep on a ventilator. I’ve lived 54 long years with this disease. I have no desire to suffer anymore. Ive paid my dues. Call me a coward if you want, but I’m changing my advance directives back to a “full code”. Though I would prefer not being resuscitated if it was evident that I would suffer probable brain damage in the process.

Released from the hospital on July 14th, but still very sick. This was a real bad one. Will try to update in a few days when I’m breathing better. Thanks for all the well wishes!

I was going to blog about a nicer topic this evening, but my breathing kinda put a damper on that. Ive been flaring mildly on and off all week, but on Monday afternoon, my peak flows took a nose dive. In a matter of minutes my chest got really tight and my peak flows dropped from 350 to 190. A possible suspect for the flare -up could be allergies ,as my eyes having been bothering me too. The fact that I’m so tight and not wheezing, has me a little concerned.

It’s now 4 am Tuesday morning and I just emailed my doctors to tell them whats going on. Ive been awake all night trying to fight off this attack,but I’m starting to get a little pooped out. Ive been taking neb treatments every 30 minutes with only minimal relief and a few minutes ago I bolused myself with 60mg of pred. As crazy as it sounds, the only reason I haven’t gone to the ER yet, is because based on the way I’m feeling right now, they would for sure intubate me…yeah it’s that bad. I just can’t deal with the whole hospital thing again so soon. The thought of being jabbed and tortured with a million needles is a strong deterrent.

Its really difficult for me to update my blog to let people know how I’m doing when I’m sick or in the ER, but I always try to get word out ( my family reads my blog too). Hopefully this flare -up is more bark than bite, and I’ll shake it off by tomorrow. If not, number 95 might come sooner than expected. If I do end up in the slammer (it will say so on the sidebar), you can use this link to reach me.

OK.. I’m too short of breath to write anymore tonight. Everyone have a great week!