And so it begins….Dupilumab

After waiting nearly 17 months with one setback after another and texting a friend saying “I’ll believe it the day the drug is actually inside my body” , well now I can actually say that, because today, Nov 6th 2017, I finally received my first two injections of a new anti IL-4 IL-13 biologic drug […]

My 133rd hospitalization for asthma

My 133rd hospitalization occurred on 10-9-2017. The trigger wasn’t the usual environmental allergies or resp infection, this time it was smoke from wildfires that have been devastating portions of northern California the past couple weeks. I woke that morning (4am) to a house full of smoke . It was so bad, we had to put […]

You’re worthy

What is it with chronic severe asthma, self esteem, self doubt or self worthiness? Why do we tend to hide or downplay our disease or the severity of our symptoms? Why do we delay seeking emergency medical care when it’s so obviously indicated? I can’t tell you how many people write to me in the […]

Macrolide therapy

This past week I started on yet another experimental therapy. This time it’s long- term Macrolide therapy using Azithromycin. As an add-on therapy, recent studies indicate that the long term use of macrolides can help decrease asthma symptoms, including wheezing and shortness of breath. I’ll will be starting with 250 mgs of Azithromycin every other […]

Flavor of the month

My asthma and the various sub-labels used to describe it seems to change day by day. First it was ACOS ( Asthma COPD overlap Syndrome), but because of it’s broad description it seems to be loosing favor with my doctors. One of my Pulmonologists even calls my asthma “Steve Gaudet Asthma” because to him it […]

Angel- Devil

It’s looking more and more like there really are 2 of me. By day Im the sweetest gentlest person you’ll ever meet, by night Im a steroid fueled asthma devil. Blame it on the disease or on all the drugs, but this week I reached new levels of ICU delirium of which I am truly […]

Asthma T&A

Asthma T&A Tired and Angry I’m tired of being stoic and putting up a strong happy front, when on the inside I’m screaming. I’m angry because I have a type of asthma that is uncontrollable and not well understood. I’m tired of feeling like a fish out of water all the time. I’m angry that […]

#131

I haven’t written about an asthma hospitalization since my 104th admission back in May of 2011, which by my calculations makes a total of 27 more severe exacerbations requiring hospitalization in just a 6 year period. That’s just plain crazy, which is why Im writing about this topic again. So here goes #131 This particular […]

Never trust asthma

Never let your guard down or be fooled into thinking that you have this disease under total control. No matter how good the drugs are or how long you’ve been symptom free or at your baseline, asthma can lurk in the shadows for months, years, even decades, then WHAM! just when you think the tables […]

Sally doing her thing

Im referring to Dr Sally Wenzel of course. I never get tired of listening to her speak and educating others on the subject of asthma, particularly severe asthma. So here’s a full hour of Sally goodness! The audience in the video are physicians, but even if you’re not a medical person, if you’ve lived with […]

It follows me everywhere, even into my dreams.

I swear you cant escape this shit, it follows you everywhere…. even into your sleep! Not that Im able to sleep that much anyway, when I do it’s usually from pure exhaustion. But when I do fall asleep it sure would be nice not to be interrupted by a terrifying nightmare involving an acute severe […]

My asthma has changed again

I’m not talking about the disease itself, I still have the classic text book definition of asthma, maybe even to a greater degree than many. What I’m referring to is the changing ways in which my asthma manifests itself. Like many inflammatory diseases, asthma symptoms tends to be cyclic in nature, where you have periods […]

My 8th year in the SARP

Hard to believe, but this week I began my 8th year as a research subject for the Severe Asthma Research Program (SARP). This is actually the 3rd study (SARP III) in a series of 3 that started back in the early 2000s. Each had a different focus. They stopped recruiting new participants for SARP a […]