Miles Walked/Racewalked this year Total miles walked since starting this blog on 6-1-2005

Boston Update

I’m still in a Boston, but unfortunately in Hospital. I’m doing well enough to be discharged tomorrow or at least transferred to my local prison.

Some friends turned me on to these media clips.

Boston.com
Boston Globe

BTW…I got my medal ! ( they actually delivered it to the hospital)how cool is that!

It’s gonna take me some time to recuperate, but I hope to have a race report up within the next week.

My Prize

Again, thanks for all the comments and well wishes..it’s means a lot to me. Boston was awesome! discontinuing of effexor symptoms xr anemia prilosec does cause multiple clomid births and

On April 20th, We made History !

Mike Mc Bride and I crossed the finish line at the Boston marathon in under the time limit, making us the first registered athletes with severe lung disease to do so!

Unfortunately, I starting to flare-up pretty bad during the last two miles and within 5 minutes of crossing the finish line, I was wisked away to Boston Mass General hospital where Im now in stable condition and able to get this post out ( courtesy of the wonderful Social Services people at the hospital.) I ‘ll write a full race report in about a week when I return to California, but let me just say this..The Boston marathon is all what they say…and More!!

Thanks everyone for your support! puppy prednisone next step after clomid online chitosan

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A milestone of sorts

I don’t want to jinx myself , so I’ll try to keep this post short and to the point. Today makes 6 full months that Ive been hospital free!

May not sound like a big deal to some, but believe me, for me…it is! By comparison, last year I was hospitalized 5 times, (or appx once every 2.5 months) …a record even for me. The year before that wasn’t much better at 4 admissions.
Even during a so called “good breathing” year, I usually end up in the pokey at least once or twice, so wouldn’t it be something if I could go an entire year with NO ADMISSIONS!!! Oh my god…..UCSFs Respiratory Dept would go out of business.

I really don’t know what to attribute this success to. My disease hasn’t gotten any better, on the contrary…my PFTs are actually worse, but I think I’m getting a little better at quashing the minor flare-ups before they turn into big ones. It could also be that I’m doing a better of job of avoiding some of the environmental triggers , which probably aggravate my symptoms. A few months ago I totally re-did my sleeping space. I now keep that area of the house pet free, dust free and I think for the most part, allergen free . I even have one of those Ionic breeze things to filter the air.

Even more than just reducing my exposure to certain triggers, I think it’s the methods I use to cope with my disease that have changed. Subconsciously I think Ive raised the bar as to what I consider to be a ” hospital worthy” exacerbation. Severe breathing flare-ups that would have landed me in the ER just a year ago, Ive now somehow managed to tough out at home without all the hospital intervention and drama. Probably not the smartest thing to do for a high risk asthmatic, but I suppose its a way for me to maintain some kind of control over my own life.

Whatever the reason, I’m certainly grateful for the reprieve. One less day spent in the hospital, is one more day I can spend living like a normal person….whatever the heck that is. cytomel vs levothroid

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Getting jazzed about Boston

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With less than 2 weeks to go before the big day, the reality that I’m actually going to be doing the Boston marathon is finally starting to sink in and I’m starting to get jazzed about it.
I know this has always been a very popular and respected race among serious runners, but I had no idea just how big a deal the event is for the city of Boston and the neighboring communities that line the course. This is a race that attracts 500,000+ spectators and is broadcast all over the world. After you’ve been signed up, they send you this massive PDF file ( I think 300 pages) . Which lists all the stats from all the years that the race has been held.

And check out some of the runner comments for the 2008 race. I don’t think I read a single review that had less than 4.5 stars

Here are some other interesting facts about the race that I pulled of the main page:



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Getting down to the wire..

One week from tomorrow, I’m supposed to be on a plane heading to Italy, but as luck would have it, looks like my lungs might have the final say as to whether that actually happens. As is usually the case when it comes to me and marathons or travel…. it’s gonna get down to the wire.

I started flaring- up about 2 weeks and haven’t really recovered since…at least not to my baseline. That, plus the inability to train the way I should be for this marathon , has put somewhat of a damper on my enthusiasm for this long awaited trip. Hopefully, I’ll turn the corner in the next few days and everything will seem exciting again. I would hate to have to cancel the reservations with my Italian hosts on such short notice.

In the meantime, I’m just gonna start packing and getting things in order for the trip as if everything was normal. Man, you wouldn’t believe the planning that goes into a trip like this when you have serious health issues… especially when you travel alone. With just one suit case and one carry on to work with , I have to transport two separate stashes of medications, plus two separate nebulizer machines ( in case get my luggage gets lost, like it did last time). I also have to have multiple contingency plans in place, in case I get sick over there and need hospital care. I basically have to have a back up plan for everything I do when I travel. Not only costly, but a huge pain in the ass.

We’ll see how this all plays out by next weekend.

Oh..Almost forgot….as you can see , the old blog is getting a make-over. Should be finished in a couple days.

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Asthma Purgatory

Whenever the weather is bad, so is my asthma. My lungs are extremely sensitive to humidity in the air and/or the slightest changes in barometric changes. Changes in the climate, changes in the seasons, you name it…. my lungs will react to it. I’m a walking weather station! Well, it’s been raining on and off here in the San Francisco area for almost a month now, and while I love stormy wet weather, my lungs absolutely hate it.

For the past week, I’ve been in that old familiar breathing zone that I call “asthma purgatory”. You know, when your peak flows are only slightly off , but you feel like your suffocating anyway? You’re tight, but you’re not gasping for air? You feel like someone is sitting on your chest, but you’re not wheezing? You’re sick, but you’re not sick enough to warrant an ER visit. Ever feel like that? Well, if you’re a chronic lunger , chances are you have. In my case I think the symptoms are due to a mix of air trapping and some mild airway obstruction caused by the damp environment and possibly by last weeks extra long walk.

For lack of better words, I get these “breathless flare-ups” several times a year, and unless the symptoms snowball into a true asthma emergency, I usually just ride them out by taking extra neb treatments, doing some diaphragmatic breathing exercises and basically just trying to chill . Sometimes I have to take a little Ativan to take the edge off, but for the most part there’s not much you can do except wait it out, which can take days or even weeks. I just wish it wouldn’t happen so close to a big race or an overseas trip…makes it even more nerve racking.

For me, the key to surviving these mini flare-ups without going crazy (or ending up in the hospital), is refusing to get stressed out about by them …..which can be very difficult when you can’t breath . Rather, than giving into the feeling of helplessness that these breathless bouts bring on, I will often tackle them head on by forcing myself to exercise despite my increased shortness of breath. This morning for example , I will go to the Gym to do some easy exercise. I probably won’t be able to spend much time or walk very fast on the treadmill, but the mental boost it will give me, will last all day!

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