For the 112th time

Posted on 6 CommentsPosted in Asthma, Asthma exacerbations, Asthma hospitalization, Asthma medical tests, Asthma Medications, Asthma Symptoms, Asthma treatments, Bipap, Exacerbation Recovery, Hospitals, Intubation, Nebulizer treatments, People, Places and Events, Severe asthma, Steroids ( prednisone)

Gee I haven’t written about a good ole hospital admission for quite sometime. Since I just completed my 112th, maybe now’s a good time. The theme for this latest admission is fun with steroid psychosis and why IV fluids should always be monitored closely. The fun begins The trigger to the flare leading up to […]

A SARP’in we will go…….

Posted on 1 CommentPosted in Asthma, asthma advocacy, asthma awareness, asthma phenotypes, Asthma research, Doctor appointments, People, Places and Events, Sally Wenzel, SARP, Severe asthma

In a few weeks I’m off to Pittsburgh again to participate in SARP III. The focus of SARP III is to study the stability of clinical and molecular phenotypes of severe Asthma. Basically they’re looking for the bio signature of certain mast cells in the serum and plasma and whether they are maintained over the […]

Asthma Phenotypes

Posted on Leave a commentPosted in Asthma, asthma awareness, Asthma Education, asthma phenotypes, Sally Wenzel, SARP, Severe asthma

Physician researchers at the University of Pittsburgh Asthma Institute at UPMC are now using molecular and genetic information to identify asthma phenotypes and customize therapies in order to improve patient outcomes. If you have asthma and would like to contribute to this on going research, please consider volunteering for

15 months Intubation Free!

Posted on 4 CommentsPosted in Alternative Asthma treatments, Asthma, Asthma care plan, Asthma exacerbations, Asthma hospitalization, Asthma treatments, Bipap, Intubation, intubation, Peak Flows, Severe asthma

It feels good to brag about something positive for a change. This week marks 15 whole months since Ive had to have a tube shoved down my windpipe in order to breath. Ive had zero, what I would call “critical condition” type hospitalizations in that time period as well. Granted, I’m still ending up in […]

Dupilumab , A Game Changer ?

Posted on 4 CommentsPosted in Asthma, asthma awareness, Asthma Medications, asthma phenotypes, Asthma research, Sally Wenzel, Severe asthma

When I heard the news today that there’s a new drug in the pipeline for severe asthma, I about fell out of my chair. When you hear one of the world’s most respected asthma researchers proclaiming that this new drug is a “game changer”, you can’t help but feel a little more optimistic about the […]

Plan B

Posted on Leave a commentPosted in Achievements, Air-trapping, Asthma, Asthma & Exercise, Asthma exacerbations, Asthma Symptoms, Boston Marathon, Exercise&Fitness, Fitness/Training Update, lung disease and exercise, Marathon Training, Marathons, Portland Marathon, San Francisco Marathon/Half marathon, Severe asthma, training progress, Walking, walking events

Yesterday I completed my final “test” walk in a series of trial walks that started a month ago to see if training for a future marathon might be doable. The plan was to do the Portland marathon this October ( my 3rd time) and then hopefully obtain a qualifying time to enter Boston in 2014 […]

12 month Update

Posted on 6 CommentsPosted in Asthma, Asthma and travel, Asthma exacerbations, Asthma Symptoms, Asthma treatments, Dyspnea, Nebulizer treatments, Severe asthma, Shortness of Breath

It’s almost 2013 and I just realized I really haven’t posted a breathing status update in almost a year. Probably the biggest change that I’m noticing, is that my dyspnea is getting more pronounced and more constant. Where I used get 8 or so “good” breathing hours a day, I’m down now to less than […]

Buried Alive

Posted on 23 CommentsPosted in Asthma, Asthma hospitalization, Intubation, intubation, People, Places and Events, Recovering from severe asthma attack, Severe asthma

The photo is from the movie “Awake”, but what happened to me last September was not fiction.. It was the real deal! Back on Sept 20th of 2010, I was admitted to the hospital for a severe asthma exacerbation(so what else is new). About 8 hours into the exacerbation, my breathing took a turn for […]

Do you know when it’s time to go in?

Posted on 33 CommentsPosted in Asthma, Asthma care plan, Asthma exacerbations, Asthma hospitalization, Asthma Symptoms, Severe asthma, Shortness of Breath

The idea for this post came to me during the middle a recent severe exacerbation. Actually, it was the same exacerbation that put me in the hospital for 12 days, for which I am still recovering. Foremost on my mind during an asthma excerbation is the question….how bad will it get? Is this flare going […]

104th trip to the slammer for Asthma

Posted on 12 CommentsPosted in Asthma, Asthma exacerbations, Exacerbation Recovery, Intubation, intubation, People, Places and Events, Recovering from severe asthma attack, Severe asthma, Ventilator

Greetings from the 14th floor isolation room a top the Moffitt building at UCSF medical center in San Francisco. Your guest host for tonight’s show is..well, me of course. I’ll be discussing how much fun it is being a patient in the hospital with severe asthma. Just happy to be alive, I was hoping to […]

Boston or Bust!

Posted on 11 CommentsPosted in Asthma, Asthma & Exercise, asthma awareness, Boston Marathon, Exercise&Fitness, Fitness Walking, Marathon walking, Marathons, Mobility Impaired Division, People, Places and Events, Sally Wenzel, Severe asthma, Walking

So in just a few hours Bib# 21619 is off to the Boston area to take another stab at the mother of all foot races. Monday morning I will attempt to finish my 3rd Boston marathon in a row and my 8th full marathon since starting this incredible fitness journey 5 years ago. May not […]

Cross Country Lab-Ratting

Posted on 5 CommentsPosted in Asthma, Asthma research, Severe asthma

I just accepted an invitation to participate in a new clinical research project that studies the effects of a certain oral diabetes drug on people who have severe asthma. The technical name of the study is….. “A Randomized, Placebo-Controlled, Double-Blind Pilot Study of Pioglitazone Hydrochloride in Severe, Refractory Asthma” It’s being conducted at the NIH […]