My application for membership with American Thoracic Societies Council of Public Representatives has been approved. I think this endorsement makes us the first Asthma support group on Facebook to be recognized by such a prestigious organization. Acceptance letter In May I’ll attending the Convention in San Francisco. This week long annual event is probably the [...]
Full Story »
Over the years Ive built up a pretty loyal following of friends who are interested in what Ive been up to and how I’m doing health wise , but the bulk of visitors to this blog still get here while searching for answers to asthma related questions or topics. The following (in order of popularity) [...]
Full Story »
Sorry for the huge gap in between posts. With my trip oversees, the Christmas holidays and a couple stints in the pokey… well, you know how it is. Lets just say that things have been a little crazy, not all bad, just crazy. Ive been out of the hospital for about month now and like [...]
Full Story »
After an estimated 104 hospital admissions for severe asthma and probably 10 times that number of IV sticks, I have no peripheral venous access left. A half a century of IV steroids has rendered my veins useless. The only place they can get lines in, are in my knuckles and toes. So rather than endure [...]
Full Story »
Figured I better update my blog before people think I died or something. Where do I start. Walking ,I’m happy to report that while my lung function hasn’t been all that great this year, I am indeed still walking. I’m putting in about 22 miles a week, which is actually more than I was doing [...]
Full Story »
Not only did my new Pulmonologist call me at home, but she called at 8:30 in the evening and talked with me for over an hour. So why am I writing about a silly phone call? Well, in all my years living with this disease I can’t remember a single time when a doctor cared [...]
Full Story »
It’s actually not a new passion, more like the reigniting of an on again, off again love affair Ive had since early childhood. I’m referring of course to the bass guitar, or for that matter any other heavy string instrument. My introduction into the world of making music actually began at the age of 8. [...]
Full Story »
Well, after going back and forth with this for almost 2 years, I finally made the switch to a different medical group. Next week I’ll be seeing a Primary care physician as well as a new Pulmonologist. Both are part of the John Muir healthcare network in the eastbay town of Walnut Creek. Should I [...]
Full Story »
The photo is from the movie “Awake” , but what happened to me last September was not fiction. It was the real deal. I’ll share with you now, what I couldn’t 9 months ago because of pending legal action. Ive since withdrawn my lawsuit against the parties involved and am now free to talk openly [...]
Full Story »
The next Asthma Support Group teleconference, moderated by Dr Sally Wenzel from the University of Pittsburgh’s Asthma Institute will be held on June 20th at 6pm (EST). If you’d like to participate in this or future meetings, please join my Severe Asthma Support Group on Facebook. Also check out Kerri’s new Living with asthma chat [...]
Full Story »
Ive written about this before, but this is such an important topic; one that effects most chronic lungers and causes more suffering than any other respiratory symptom, that Ive decided to come out of blog retirement to write about it again. Most of the information that Ive been able to find on the internet regarding [...]
Full Story »
Just a quick update on what Ive up too the last couple weeks. Lungs I’ve pretty much fully recovered from that last exacerbation and hospital stint. I think the intubation is what caused me to get so sick in the first place. An endotracheal tube is the perfect conduit for introducing bacteria and viruses deep [...]
Full Story »
The idea for this post came to me during the middle a recent severe exacerbation. Actually, it was the same exacerbation that put me in the hospital for 12 days, for which I am still recovering. Foremost on my mind during one of these really bad flares is the question….how bad will it get? Is [...]
Full Story »
Wanna learn from the best?
Learn from my coach!
