Treatment overload

Posted on Leave a commentPosted in Air-trapping, Alternative Asthma treatments, Asthma, Asthma care plan, Asthma Co-Morbidities, Asthma medical tests, Asthma Medications, Bipap, Hospitals, Intubation, Lung Transplant, Other medical problems, Other medical tests, pre lung transplant, Shortness of Breath, Steroids ( prednisone), Ventilator

Yes, another update about treatment options. Things seem to be changing at a lightening pace now and it’s making my head explode. Too much for an over-thinker like me to think about. Gotta slow down and literally catch my breath. So my 3rd hospitalization and 5th intubation in just the first 4 months of this […]

Techno-Patient

Posted on Leave a commentPosted in Arterial Blood gases, Asthma, Hospitals, Other medical tests, Respiratory Therapist

The Hospital I go to when my asthma gets really bad, recently upgraded their electronic charting and patient care computer systems. They’re using the EPIC system, which includes a patient portal via the web. It’s pretty cool because things like labs and xray results are made available to patient almost as soon as they’re available […]

Bloated

Posted on 4 CommentsPosted in Air-trapping, Asthma, COPD, Diet, Health & Nutrition, Other medical problems, Other medical tests, Shortness of Breath

Everyone experiences a little indigestion and bloating from time to time. Did you know that it’s very common for people with chronic lung disease to experience frequent abdominal bloating? What’s not so normal however, is to actually become so distended that it impairs your ability to breath effectively, but that’s what was happening to me. […]

Alin

Posted on 8 CommentsPosted in Friends/Bloggers, Inspiration, Other Lung diseases, Other medical problems, People, Places and Events

I probably sound like a broken record when I say this, but it’s true… I might have crappy lungs, but it’s because of those crappy lungs that I’ve been able to meet so many wonderful and interesting people. My friend Alin certainly fits in that category. Alin has Autism, Spastic Quadriplegia Cerebral Palsy and an […]

Questions for Sally

Posted on 6 CommentsPosted in Asthma, Other Lung diseases, Other medical problems, People, Places and Events, pulmonary fibrosis, Pulmonary function tests, Sally Wenzel, SARP

Last week after finding out just how damaged my lungs really are, the only thing going through my head was..WHY? All of the assumptions I had made about my asthma throughout the years, suddenly didn’t seem to make sense anymore. I was beginning to wonder if I really ever had asthma at all? Maybe I┬ájust […]

Asthma and marathon training updates

Posted on 6 CommentsPosted in Asthma, Asthma exacerbations, Asthma Symptoms, Exercise&Fitness, Marathon Training, Other medical tests, People, Places and Events, Racewalking, Shortness of Breath, walking events

It’s generally been a rough couple of months on the asthma front. This disease has been kicking my butt. Seems like I’ve been sick more often than not. A couple weeks ago I started flaring again pretty severely, and, as a result, had to up my prednisone to 50mg for a few days. The prednisone […]