133rd hospitalization for asthma and 1st one for Bronchiolitis Obliterans

Posted 4 CommentsPosted in Arterial Blood gases, Asthma, Asthma hospitalization, Bipap, Bronchiolitis Obliterans, Intubation, Other medical problems, Secondary conditions, Severe asthma, Ventilator

My 133rd hospitalization occurred on 10-9-2017. The trigger wasn’t the usual environmental allergies or resp infection, this time it was smoke from wildfires that have been devastating portions of northern California the past couple weeks. I woke that morning (4am) to a house full of smoke . It was so bad, we had to put […]

In other news

Posted Leave a commentPosted in Asthma, asthma awareness, Asthma exacerbations, Funny asthma stuff, Intubation, intubation, Lifestyle changes, Lung Transplant, Other medical tests, Ventilator

And despite all the medical appointments, I still managed to learn a dozen new tunes. Related Posts:104th trip to the slammer for AsthmaNumber 94….a Bad One133rd hospitalization for asthma and 1st one for Bronchiolitis Obliterans23rd time’s a charmNumber 96 #131

Treatment overload

Posted Leave a commentPosted in Air-trapping, Alternative Asthma treatments, Asthma, Asthma care plan, Asthma Co-Morbidities, Asthma medical tests, Asthma Medications, Bipap, Hospitals, Intubation, Lung Transplant, Other medical problems, Other medical tests, pre lung transplant, Shortness of Breath, Steroids ( prednisone), Ventilator

Yes, another update about treatment options. Things seem to be changing at a lightening pace now and it’s making my head explode. Too much for an over-thinker like me to think about. Gotta slow down and literally catch my breath. So my 3rd hospitalization and 5th intubation in just the first 4 months of this […]

Techno-Patient

Posted Leave a commentPosted in Arterial Blood gases, Asthma, Hospitals, Other medical tests, Respiratory Therapist

The Hospital I go to when my asthma gets really bad, recently upgraded their electronic charting and patient care computer systems. They’re using the EPIC system, which includes a patient portal via the web. It’s pretty cool because things like labs and xray results are made available to patient almost as soon as they’re available […]

Bloated

Posted 4 CommentsPosted in Air-trapping, Asthma, COPD, Diet, Health & Nutrition, Other medical problems, Other medical tests, Shortness of Breath

Everyone experiences a little indigestion and bloating from time to time. Did you know that it’s very common for people with chronic lung disease to experience frequent abdominal bloating? What’s not so normal however, is to actually become so distended that it impairs your ability to breath effectively, but that’s what was happening to me. […]

Alin

Posted 8 CommentsPosted in Friends/Bloggers, Inspiration, Other Lung diseases, Other medical problems, People, Places and Events

I probably sound like a broken record when I say this, but it’s true… I might have crappy lungs, but it’s because of those crappy lungs that I’ve been able to meet so many wonderful and interesting people. My friend Alin certainly fits in that category. Alin has Autism, Spastic Quadriplegia Cerebral Palsy and an […]

The Recovery phases of a severe asthma exacerbation

Posted 124 CommentsPosted in Asthma, Asthma exacerbations, Asthma hospitalization, Asthma Symptoms, Exacerbation Recovery, Other medical problems

Suffice it to say, I wasn’t exactly a happy camper when I wrote that last post about a recent hospitalization… I apologize for that. At the time, I was roided out of my mind and was still very sick. Dr W helped me get through this awful time by reassuring me that what anguish I […]

Questions for Sally

Posted 6 CommentsPosted in Asthma, Other Lung diseases, Other medical problems, People, Places and Events, pulmonary fibrosis, Pulmonary function tests, Sally Wenzel, SARP

Last week after finding out just how damaged my lungs really are, the only thing going through my head was..WHY? All of the assumptions I had made about my asthma throughout the years, suddenly didn’t seem to make sense anymore. I was beginning to wonder if I really ever had asthma at all? Maybe I┬ájust […]