In other news

Posted on Leave a commentPosted in Asthma, asthma awareness, Asthma exacerbations, Funny asthma stuff, Intubation, intubation, Lifestyle changes, Lung Transplant, Other medical tests, Ventilator

And despite all the medical appointments, I still managed to learn a dozen new tunes. Related Posts:104th trip to the slammer for AsthmaNumber 94….a Bad One23rd time’s a charmNumber 96 2 years, 2 million dollarsNo matter how well I take care of myself

Treatment overload

Posted on Leave a commentPosted in Air-trapping, Alternative Asthma treatments, Asthma, Asthma care plan, Asthma Co-Morbidities, Asthma medical tests, Asthma Medications, Bipap, Hospitals, Intubation, Lung Transplant, Other medical problems, Other medical tests, pre lung transplant, Shortness of Breath, Steroids ( prednisone), Ventilator

Yes, another update about treatment options. Things seem to be changing at a lightening pace now and it’s making my head explode. Too much for an over-thinker like me to think about. Gotta slow down and literally catch my breath. So my 3rd hospitalization and 5th intubation in just the first 4 months of this […]

Techno-Patient

Posted on Leave a commentPosted in Arterial Blood gases, Asthma, Hospitals, Other medical tests, Respiratory Therapist

The Hospital I go to when my asthma gets really bad, recently upgraded their electronic charting and patient care computer systems. They’re using the EPIC system, which includes a patient portal via the web. It’s pretty cool because things like labs and xray results are made available to patient almost as soon as they’re available […]

Bloated

Posted on 4 CommentsPosted in Air-trapping, Asthma, COPD, Diet, Health & Nutrition, Other medical problems, Other medical tests, Shortness of Breath

Everyone experiences a little indigestion and bloating from time to time. Did you know that it’s very common for people with chronic lung disease to experience frequent abdominal bloating? What’s not so normal however, is to actually become so distended that it impairs your ability to breath effectively, but that’s what was happening to me. […]

Asthma and marathon training updates

Posted on 6 CommentsPosted in Asthma, Asthma exacerbations, Asthma Symptoms, Exercise&Fitness, Marathon Training, Other medical tests, People, Places and Events, Racewalking, Shortness of Breath, walking events

It’s generally been a rough couple of months on the asthma front. This disease has been kicking my butt. Seems like I’ve been sick more often than not. A couple weeks ago I started flaring again pretty severely, and, as a result, had to up my prednisone to 50mg for a few days. The prednisone […]

Sleep Study

Posted on 2 CommentsPosted in Asthma, Asthma medical tests, Asthma Symptoms, Other medical problems, Other medical tests, Shortness of Breath

As I mentioned in a Paroxysmal nocturnal dyspnea” (“PND”) , also known as , believe it or not…Cardiac Asthma. Wouldn’t that be just swell if I had Cardiac asthma on top of Bronchial asthma? So anyways, tonight they’re doing a Transthoracic Echocardiogram to check my heart valves and to see if my pulmonary hypertension is […]

That’s a lot of ABGs

Posted on 2 CommentsPosted in Arterial Blood gases, Asthma medical tests, Intubation, Other medical tests, Respiratory Therapy

Can you believe I’ve had 118 arterial blood gases radial artery. If that were the case , my wrist would have fallen off by now. Some of those samples actually came from arterial catheters that were placed in my artery during different hospitalizations. I estimate that about 50 of the 118 ABG samples sent to […]

Long week of Medical stuff

Posted on 1 CommentPosted in Asthma, Asthma research, Asthma Symptoms, Other medical tests, People, Places and Events

Monday, Visit with Dyspnea specialist Dr.Susan Jansen She spent a generous amount of time with me (almost 2 hours) and I actually learned quite a bit. I was impressed by her knowledge of pulmonary mechanics and the neuro-mechanisms of dyspnea . Because she knew I was an RT by trade, she was able to speak […]

Racewalking for Science

Posted on 4 CommentsPosted in Asthma, Asthma medical tests, Asthma research, Other medical tests, People, Places and Events, Pulmonary function tests, Racewalking, Shortness of Breath, Walking

As part of the Shortness of breath self-Management research study that I’m involved in over at UCSF, every 3 months I have to go into the lab where they check my PFTs and then have me do a series of physical fitness exercises. Sometimes they have me get on the treadmill and walk uphill until […]

14 mile walk to see the Neurologist

Posted on Leave a commentPosted in Asthma, Marathon Training, Other medical problems, Other medical tests

There was a scheduling conflict with my 14 mile LSD, and a follow-up visit I have at the stroke center at UCSF medical center this Wednesday. Since I pride myself on my time management skills, I thought the following remedy would be appropriate……………Incorporate the two! I’ve chosen a scenic 14 mile long slow walk which […]