And despite all the medical appointments, I still managed to learn a dozen new tunes. Related Posts:104th trip to the slammer for AsthmaNumber 94….a Bad OneMy 133rd hospitalization for asthma23rd time’s a charmNumber 96 Nice try asthma, but I’m still here.
Yes, another update about treatment options. Things seem to be changing at a lightening pace now and it’s making my head explode. Too much for an over-thinker like me to think about. Gotta slow down and literally catch my breath. So my 3rd hospitalization and 5th intubation in just the first 4 months of this … Read moreTreatment overload
The Hospital I go to when my asthma gets really bad, recently upgraded their electronic charting and patient care computer systems. They’re using the EPIC system, which includes a patient portal via the web. It’s pretty cool because things like labs and xray results are made available to patient almost as soon as they’re available … Read moreTechno-Patient
Everyone experiences a little indigestion and bloating from time to time. Did you know that it’s very common for people with chronic lung disease to experience frequent abdominal bloating? What’s not so normal however, is to actually become so distended that it impairs your ability to breath effectively, but that’s what was happening to me. … Read moreBloated
It’s generally been a rough couple of months on the asthma front. This disease has been kicking my butt. Seems like I’ve been sick more often than not. A couple weeks ago I started flaring again pretty severely, and, as a result, had to up my prednisone to 50mg for a few days. The prednisone … Read moreAsthma and marathon training updates
As I mentioned in a Paroxysmal nocturnal dyspnea” (“PND”) , also known as , believe it or not…Cardiac Asthma. Wouldn’t that be just swell if I had Cardiac asthma on top of Bronchial asthma? So anyways, tonight they’re doing a Transthoracic Echocardiogram to check my heart valves and to see if my pulmonary hypertension is … Read moreSleep Study
Can you believe I’ve had 118 arterial blood gases radial artery. If that were the case , my wrist would have fallen off by now. Some of those samples actually came from arterial catheters that were placed in my artery during different hospitalizations. I estimate that about 50 of the 118 ABG samples sent to … Read moreThat’s a lot of ABGs
Monday, Visit with Dyspnea specialist Dr.Susan Jansen She spent a generous amount of time with me (almost 2 hours) and I actually learned quite a bit. I was impressed by her knowledge of pulmonary mechanics and the neuro-mechanisms of dyspnea . Because she knew I was an RT by trade, she was able to speak … Read moreLong week of Medical stuff
Does my new nose wire make a fashion statement? Or does it clash with my beautiful blue eyes ? Actually, I was really bummed about having to deal with this thing in my nose and stomach for the next 24 hours. It’s irritating as hell. But then I got to hold Winston… Pets are amazing … Read moreUp my nose with a rubber hose.
Had my bi monthly follow up visit at the UCSF Chest Clinic on Wednesday. This is the latest plan: Asthma Care Plan –We tweaked my current asthma action plan whereby I won’t come into the hospital for treatment unless my peak flows drops below 250 and remains there for more than 24hours. The way it … Read moreAsthma Laundry List
As promised, here are two of the lesser gross pictures of yesterdays bone graft surgery. You can see how swollen the gum is around the implant .After scraping out the area, he filled it with synthetic bone and tightened it all up with 12 sutures. As soon as the local anesthetic wore off , it … Read morePost op
As part of the Shortness of breath self-Management research study that I’m involved in over at UCSF, every 3 months I have to go into the lab where they check my PFTs and then have me do a series of physical fitness exercises. Sometimes they have me get on the treadmill and walk uphill until … Read moreRacewalking for Science
There was a scheduling conflict with my 14 mile LSD, and a follow-up visit I have at the stroke center at UCSF medical center this Wednesday. Since I pride myself on my time management skills, I thought the following remedy would be appropriate……………Incorporate the two! I’ve chosen a scenic 14 mile long slow walk which … Read more14 mile walk to see the Neurologist