At first I thought they sent it to me for putting in 25 years of devoted service to the profession, but it turns out that they sent these pins out to every licensed RCP ( Respiratory Care Practitioner) to commemorate 25 years of Respiratory Care as a state regulated profession here in California.

OK.. so maybe I’m not as special as I thought, but if you’re looking for a rewarding career in the medical field, you should consider becoming an RCP. Respiratory therapy has been very good to me over the years, and I can definitely recommend it as a career choice. Check out this brochure

It’s a good field to go into, especially if you’re into helping people who have breathing problems. There’s lots of variety and some great job benefits as well.

And take a look at the average salaries for RTs here in California….
Not bad for a 2 to 4 year education….eh?

How’s this for a view!

In just a few weeks , if all goes as planned, I hope to be standing on that very same rock with a half a dozen of my COPD friends.

The brainchild of my Boston marathon walking partner Mike Mc Bride, the “COPD Mt Evans Challenge” as he calls it, is simply about a bunch of friends with severe lung disease, getting together for a day and hiking to the summit of one of the tallest mountains in the Rockies of Colorado…. just for the heck of it! No, we’re not going to scale an entire mountain, but we will be walking up the steepest portion of one.

Starting in Idaho Springs,elevation 8,700 ft, we’re gonna drive up the mountain road 9 miles to Summit Lake, which is situated at the 12,800 ft level. From there we’re gonna hike the last 5 miles on foot up to the summit of the mountain, which sits 14,220 ft above sea level. My COPD friends will be using high -flow oxygen @ 15 lpm to make the trek up the mountain I hopefully, will not need supplemental O2, but I’ll be closely monitoring my O2 sats just in case.

As you can see in this photo taken earlier this year during a race up the mountain, the grade along certain portions of the road is pretty steep. The part that we’re gonna be doing, gains approximately 1600 ft in elevation in just over 5 miles.

( Mike Mc Bride and Roxlyn Cole testing out their oxygen equip)

What makes this particular walk such a challenge for me (and for the other lungers), is the altitude and the steepness of the climb.
Excluding being a passenger in a pressurized airplane, this will be the highest altitude my body has ever been exposed to. The last walk I did that involved a mountain, was back in 2008 when I did the ET midnight marathon in the Nevada desert. And while it was a much longer walk ( 13.1 miles) , we only reached a maximum elevation of 5,500 feet during the race. The summit of Mt Evans is almost 3 times higher.

My lungs are not a big fan of climbing hills. I can barely walk uphill the two blocks it takes to reach my house, let alone 5.5 miles up the side of a mountain. Putting the physical challenges aside though, the main reason I wanna do this is, is to take in the sheer beauty of it all. I think Mountains are awesome.

If you’d like to read more, or maybe even join us, check out at Roxlyn Coles blog

Hey, I gotta question for you? What’s the longest length of time you’ve ever been separated from a loved one until being reunited with them again? 5 years, 10 years, maybe even 20 years? How does four and a half decades sound?
About a week ago, my brother and I took a very special trip to see our father. It was the first time we saw him in 47 years. Yep. You read it right, 47 years, nearly a half a century!

It’s hard to express in words how it feels to reunite with a person you’ve been fond of your entire life,yet have only vague memories of.  As small children, we knew him as this special character in our lives. To us, our dad (after his divorce from our mom) was more like a favorite uncle who would come by and spoil us , than your typical Dad figure. And through the years, it was special memories of him and the wonderful way he treated us, that actually helped us get through some pretty tough times.

Getting to spend some time with him again after so many years, was a very surreal, but very worthwhile experience. I mean, here’s the guy who brought us into the world, who up until this reunion, knew very little about us, nor we about him. Yet, almost as soon as we met, we somehow managed to get past that 50 year void in our lives, and had a great time rediscovering things about each other, and putting some of the missing pieces back together. As it turns out, he’s a pretty neat guy.

And guess what? ….. my brother and I found out that we have a 38 year old Sister ( who has 3 children of her own) whom we’ve never met. I wonder if she’s as curious about us as we are about her?

Here’s a question Ive been asking myself a lot lately (thanks to a most cool brother);

When it comes to improving my fitness, why should I go through all the pain and sacrifice of exercising my body hard everyday, if I’m gonna continue to throw toxic chemicals into it? Doesn’t make much sense.. does it?

Good old fashioned common sense (which sometimes eludes me), tells me that eating healthy and natural untainted foods, surely must be better you for you than ingesting food that is treated with hormones and pesticides. How could it not?
Convinced that this is not only the right thing to do, but also the wisest, I’ve decided to switch from a conventional diet, to an all Organic one.

Ive already started with fruits and vegetables because they’re easier to find at the local markets. As I get better at doing this, I’ll start including dry and canned goods, and then eventually on to meats and dairy. I’d like to be 90% organic in 3-4 months.

Going Organic is obviously more expensive, but cost shouldn’t be an excuse. I spend $60 on gym fees and $25 for a haircut every month without batting an eye. Why would I even think twice about spending a little extra on something that can only make my life better. Besides, there are informational web tools out there that can help you get the biggest bang for your organic buck… you just have to be a savvy shopper and know what to look for. Remember too, that locally grown food takes less gas to transport it to market, which means less environmental pollution. So there’s a positive impact on more than just ones own body.

Without getting into politics of what’s considered safe and healthy, the turning point for me was this; Why do something only half right? Improving your health requires more than just working out regularly, you also need to fuel and nourish your body with clean natural food.
I love this line by Michael Palin……
“All I ask of food, is that it doesn’t harm me.” (Monty Python’s Flying Circus)

Buon appetito!

I receive of dozens of letters from people living with really bad asthma, but this one really touched me, because the person who wrote it….. is only 16 years old.

Hey Stephen,

Read your website have to say it was quite intriguing! Just want to say you are a hero and a role model for me. Quite amazing what you’ve been through and I take my hat off to you dude! I am a 16 year old guy from Victoria BC Canada writing to you from my hospital bed on the pediatric 4d north tower. I also have neutrophillic predominant asthma I used to have eosinophillic asthma as my IGE level was 16,000 ug. Since then it has changed into neutrohilic and harder to take control of – I feel like you. Sorry if that offends you because I know it offends me when people ask me in the hospital what are you here for? and i say asthma they reply with oh yeah my son has asthma blah blah blah when they really have no idea…when I read your website I saw life through my moms eyes Pretty scary since im used to it. But I was wondering did you ever have high IGE at one point and then your lungs like changed into neutrophillic predominant? and like when you walk don’t you get out of breath at all? it was quite amazing how you walked al those miles. And have you ever used oxygen at home? And whats you’re criteria before you get to go home? for me its Q4 Nebs and 50% FEV1 which takes about 2 weeks every admission! WTF such a flipping frustration I’ve never met anyone like me before and I seem to see it in you. I’ve also been to national jewish hospital in america for further evaluation from ” the big shots” . My FEV1 varys from 45- 50% and FVC of 65%.

Drugs – Spiriva ( for copd) have you ever been on it?
Oxygen 1-2L nasal prongs when in hosp
Formorteral (oxeeze) 12mcg
flovent
azithromycin antibiotic apparently it helps with inflammation in the airways – that’s what they said in Denver at National Jewish hospital – Have you been there?
Ventolin Nebs Q4
Q30 mins when in hospital.
Prednisone 10mg one day 5mg the next alternating when in hops 60mg for 3 days since i had a steroid myopathy I cant get steroids for a long time because there worried abut that happening again ( Diaphragm paralysis) my diaphragm stopped working which made it hard for me to breath was on Bi pap for 6 months
I HATE PRED!
flutter – Chest physio
IVIG every 3 weeks
I am also getting a bronchoscopy which should tell them more about whats going on, as requested from Denver National jewish.

I’m sorry if im bugging you – just thought your page was really inspiring and something to look up to. Thanks for your time Stephen

Darcy Ablak

No Darcy, thank YOU for YOUR time.  It’s people like you who inspire ME !  Your letter made my day.

It’s been just over 2 weeks now since I did the Boston marathon, and except for today, which I can’t blame on the marathon, Ive managed to stay pretty healthy. That hasn’t always been the case right after a big race. Looking back on how things played out on Boston weekend, I think the strategy of proactively medicating with prednisone, paid off . If you remember, I bumped up my pred to 60 mg 2 days prior to the race and then rapidly weaned back down afterward. I still got really tight and wheezy immediately after the race and had to take several back to back neb treatments throughout that evening, but thanks to the prednisone I was able to keep things from escalating. I think a lot of the post-race flaring was caused by my body being in state of shock from all the exertion I put it through. As much as I hate the stuff, I think the prednisone did a great good job at protecting my airways during the race and in the hours and days that followed. It might have even kept me out of the hospital.

Another thing I learned from doing this marathon, is that I need to take off a few pounds. I mean it just makes sense that the lighter you are on your feet, the faster you’ll be on your feet. The less you weigh, the less stress you’ll put on your legs and feet and even your heart and lungs. I might not look real fat, but the fact is, I’m 10 lbs over my ideal body weight. For the Boston marathon I weighed in at 150 lbs, which is the heaviest Ive ever been at any of the marathons Ive done. Part of that weight gain was probably from steroids, but I’m sure the bulk of it was from eating too much fattening food during the winter holidays.
Back in 2006 when I walked my fastest marathon ever, I weighed 144lbs. We’re only talking 6lbs less , but that 6 lbs made a world of difference when it came to speed. I ended up finishing that race almost 30 minutes faster than I did this one. Too bad I didn’t pre-medicate with prednisone during that 2006 race, because two days after that race I ended up in the hospital. But back then, the whole marathon/ severe asthma thing was still new to me , and I wasn’t yet convinced that walking a marathon could actually make me sick(which by the way, I fully believe is the case now.) As far as my weight goes, you might not know this, but since I began walking for fitness back in 2004, Ive actually lost and kept off nearly 20 pounds. That’s right, the steroids along with a lack of physical activity, was turning me into a little blimp.

So anyway, to put into action the things Ive learned from the Boston experience, Ive set a goal to loose 7 lbs and then keep it off. I will accomplish this by doing more strength training at the gym and by eliminating some of the junk food from my diet. I hoping to knock these pound off in about 2 months, just in time for my next gig ( whatever that might me). And from now, every race I do, I’m going to bump up my pred. Yes, I hate the drug, but if it will keep me out of the intensive care unit, I’ll take it.

Speaking of the Boston marathon, my friend and ever so funny walking partner/guide in that race , Miss Dizzy Lizzy, is finally getting caught up on her blogging ( Some excuse about not having her laptop). Anyways, she promises to have a race report about the Boston marathon , up by this weekend. I love reading other people accounts of that race.

Congrats to two of my favorite running people, Hansi and Francis, for completing the Boston to Big Sur Challenge this past Sunday. These 2 wonderfully nutty people, along with a couple hundred other crazy people, ran BOTH the Boston marathon in Massachusetts AND the Big Sur marathon in California just 6 days apart. Two tough marathons in less than a week on opposite sides of the country. Francis came all the way from Toronto Canada to do these races.

At Hansi’s Carmel home the day before the Big Sur marathon

To make the challenge even more rewarding, Hansi ended up taking 1st place at Big Sur. Francis had respectable finish times in both races as well. Heck, between the two of them, they’ve probably finished more than a hundred marathons in just about every country on the planet. My hat’s off to the both of them!

Read Frans 2010 Boston marathon race report. Lots of pics and vids too.

Ok, so I look really strong in some of my finish line photos, but believe me.. looks can be very very deceiving. I’m an expert at hiding what I feel inside (I think most asthmatics are, to some degree.) Behind those smiles were waves of excruciating pain shooting down my legs. My breathing was really labored at times and my calf muscles felt like they were going to explode, but I told myself at the start of this race that if I made it past mile 21, that no matter how bad my breathing was, or how much pain I might be in, that I would push on with positive thoughts in my head and a smile on my face….And that’s exactly what I did! And if for no other reason, that’s why I’m so proud of myself for finishing the race in style.

If you look really deep, you can see the pain starting to come through
(Finish line photos)

I don’t care how healthy you are, even if just walking a marathon, when you get to a certain distance in a race, your body starts to hurt really bad (I think that’s what they mean by “Hitting the WALL”). The problem is, you can’t really stop moving or you run the risk of your whole body cramping up. It’s happened to me before, and I’m telling ya..it ain’t a pretty scene. A full body cramp would end the race for you , right then and there. So after 20 miles, you do whatever you can to stretch out those muscles while you’re moving, but you never stop.

So what did it take to get this 55 year old severe asthmatic across the finish line at the Boston marathon?
Well, how about lot’s of training, lots of medications and a ton of determination and willpower! Having a good friend walking along side of you , who makes you laugh constantly, probably helps as well.. Thank goodness for Lizzy.

Here are couple photos I left out of the main photo set. I think you know why…

(Had to stop to sneek a neb treatment about every 7 miles along the course… this eats up a lot of time )

( Needed 3 neb treatments back to back after crossing the finish line. )

Here are a few other things you probably didn’t know

*To control my asthma during this 26.2 mile race, in addition to the neb treatments every 7 miles, I took appx 24 hits off my inhaler ( about 3 puffs per hour). On top of the inhaled drugs, I swallowed 10 mg of prednisone every hour , chased by an antacid to control the stomach burning that the prednisone causes in the first place . Thank You Jon ( our spotter who went and got me some TUMS in the middle of the race.

*To control the pain in my calve muscles and the metatarsalgia pain in my feet, I took 2 Motrins every 2 hours along the course, 6 in total.

*For energy and hydration , I consumed 2-4 oz of plain water every mile, alternating with Gatorade every other mile. I did this for the first 20 miles, then switched to a 50-50 blend of electrolytes and water (2 oz) every mile for the rest of the race. In addition, I swallowed one Powerbar gel ( tangerine with double caffeine) every 6 miles.

So as you can see, doing this race ( or any other for that matter) wasn’t as as easy for me as most people might think. I just make it look that way:-)

During this trip I took close to 500 still photos and about 20 different video clips, which I still haven’t sorted completely.
I’ll be adding more photos to these albums as I get them.

Rather than bore you with a mile-by-mile account of everything that happened during this entire 7 hour-17 minute very fun but challenging, and at times a excruciatingly painful journey, this year I decided only to post what I can consider to be the highlights. The experience was a little overwhelming and with so many pictures , videos and texts to prepare and post, I’m gonna have to dole them out little by little over the coming days.

But, first let me start by acknowledging some wonderful people who helped make this a truly special day for me.

My walking partner in the race, Mike Mc Bride.
Our super cool spotters, John and Chris from the BAA
Our fantastic crew, Pete from Apria Health Care, and Tom and Brett from Caire Medical and Brett’s wife Shay.
The wonderful folks at the University of Pittsburgh’s Asthma Institute
And finally, our special course guide, the one and only Lis Shepard , who drove the spectators wild and who stuck by me the entire distance just so she could cross the finish line with me. A pretty awesome lady I’d say!

Introducing
“TEAM WHEEZY”

(hey…where’s Lis at? )

( Oh that’s…right, she’s yacking it up with the Boston Globe reporter dude)

So here’s a collection of unedited short clips that I took with my phone camera. Sorry, the video quality isn’t too good, but I wanted to give you a sense of what it’s like to be the first AND last people out on the Boston course. This pandemonium goes on goes on for 7 FULL hours!! See if you can hear my name being shouted during the middle and end portions of the clip. Every time my spotter John would see I was having problems with my breathing or my legs, he’s get the crowd cheering for me. It was like a magic potion that kept me going.

26 miles and 7 hours later , watch how Lizzy works the crowd and helps me make it to the finish line 6 minutes later. Again, this clip is a little long, but I wanted give you an idea of just how many die hard spectators waited for us to finish and how much fun it was to have Liz along for the ride.