Posts from the Past
No Thermoplasty for Steve

No Thermoplasty for Steve

[JP-Facebook-Like] Ive been getting a lot of email lately from people asking me if I'm gonna have the new clinical trials phase of this new procedure back in 2006, because my asthma was deemed “too severe” by the study investigators. People with ...

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#97 , misinformation and a virus from Hell

#97 , misinformation and a virus from Hell

[JP-Facebook-Like] Battle scars: 4 failed arterial line attempts and 12 failed IV attempts. I have no veins left and my radial arteries are so scarred up from previous insertions, that it's virtually impossible to get access unless they put a ...

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Propofol

Propofol

[JP-Facebook-Like] This is a picture of me on a ventilator last year during a severe asthma exacerbation ( what they call status asthmaticus). See the little IV bottle inside the blue rectangle with the milky looking stuff inside ? ...

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The not so glamorous side of being a severely asthmatic marathon walker

[JP-Facebook-Like] Yeah, I made it to Boston , Ive walked the Rome and Portland marathons a couple times, and yeah Ive been written up in lots of walk magazines and medical journals, but I think a lot of people who ...

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I look too Healthy

I look too Healthy

[JP-Facebook-Like] I get this all the time......... "You look so healthy" "You don't look like you have a disability" "You can walk farther then I can" "You look amazingly fit for someone with severe asthma" "You make ...

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Cracking the stems off of Primatine mist bottles.

Cracking the stems off of Primatine mist bottles.

[JP-Facebook-Like] I don't usually write about my childhood, because frankly, its too painful and because most of it is so outrageous, that a lot of people wouldn't believe it anyway. But just for kicks, I thought Id share one of my ...

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A quarter million puffs

A quarter million puffs

[JP-Facebook-Like] Care for some Albuterol? (Hey.....how did the primatine mist get in there?) I sometimes jokingly claim that Ive

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The Recuperative phases of a severe asthma exacerbation

[JP-Facebook-Like] Suffice it to say, I wasn't exactly a happy camper when I wrote that Dr W helped me get through this awful time by reassuring me that what anguish I was experiencing, was a normal response after suffering such ...

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Another piece of the asthma puzzle

Another piece of the asthma puzzle

[JP-Facebook-Like] Just got my lung biopsy report back from SARP study, are starting to paint a clearer picture of why my asthma is so severe. If there's any good news in all this, it's that there's a new drug ...

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Behind that finish line smile

Behind that finish line smile

[JP-Facebook-Like] Ok, so I look really strong in some of my finish line photos, but believe me.. looks can be very very deceiving. I'm an expert at hiding what I feel inside (I think most asthmatics are, to some degree.) ...

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The SARP experience

The SARP experience

[JP-Facebook-Like]Welcome to Pittsburgh, Pennsylvania for the

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My Lung Biopsy findings

My Lung Biopsy findings

Just got my lung biopsy report back from Dr Wenzel. Seems I have high levels of a type of cell called a mast cell. A “normal” (not cancer) cell that has long been seen in asthma patients. But, mine are ...

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Pre-Boston swag

Pre-Boston swag

Most of the marathon attire that Ive accumulated over the last 3 years usually ends up in a duffel bag crammed in the corner of my closet , never to be seen again. This jacket is gonna get worn a ...

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I'm a recovering  Albuter-holic

I'm a recovering Albuter-holic

Rick, the author of the Respiratory Therapy Cave , wrote to me the other day talking about what it was like growing up with severe asthma. One of the things he mentioned that I thought was kinda funny, ...

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Circa 1981

Circa 1981

Attending the recent taping of Barry Manilow's Music& Passion Special in Las Vegas and checking out all the sound production equipment and everything, made me flash back to a time when I was actually doing sound production for a living. ...

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The first few days are the worst

The first few days are the worst

First of all , thank you everyone! for all the nice comments. They mean a lot to me. My apologizes for the self pity thing in the previous post. I guess even us butch super hero ...

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The meeting

Before I begin, let me preface this post by saying that I haven't made up my mind as to whether I would even want lung transplant surgery, should it ever get to that point. I wanted however, to see ...

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Off to the Eternal city

Off to the Eternal city

(Piazza Navona) Well, after a close call with my lungs this weekend , in just a few hours and with a ton medications in tow, I'll be on a plane to Italy for the start of my Roman adventure. This ...

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Walk kind of walker are you?

Walk kind of walker are you?

Just as runners come in a variety of flavors (joggers, runners, sprinters, hurdlers, marathoners, ultramarathoners, etc.),not all walkers are alike. They also come in an assortment of flavors. ( Marciatori Racewalking Track... Circa 1900 ) (Italy's Ugo Frigerio wins the 10-kilometer ...

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I'm Hardcore Now

I'm Hardcore Now

GOT A NEW TATT !!! Hmmm...piercing sounds interesting too. Maybe next time.

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Reflecting

Reflecting

It's weird, but when I look at my marathon photos, it's almost like I'm looking at a stranger . It's as though someone else did this race for me and I just went along for the ride. ...

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The nights are the worse.

The nights are the worse.

Ever notice the time stamp on many of my blog entries? I usually compose and publish them in the early morning hours...sometimes way before dawn. You know why? Because I'm usually awake at 3 or 4 in ...

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Walking Expenses

Walking Expenses

Living on a fixed income, I have to track all of my expenses closely. I just figured out that in the last 6 months ,I spent a total of $1175.97 on walking related stuff . This includes fees ...

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My cat has a shoe fetish

My cat has a shoe fetish

This has been going on long before I started fitness walking..............

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Battle Scars......Electrode Gum

Battle Scars......Electrode Gum

Can anyone out there relate to this...... You've been home from the hospital for a few days now, and you still can't get all that electrode gum off your chest? It's like a black rubber ...

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Run the Rome Marathon right from your Computer.

In preparing to do this marathon for the second time, I thought it would be cool to retrace the marathon route step-by -step. However, the only available map of the course ,which is located on the marathon website , is more of a illustration than an actual map. So I decided to create my own map using Google maps. With a little research I was able to obtain some of the actual street names. Using that info, along with the website illustrations and my own recollections of what I actually saw while doing the marathon , I was able to piece together, what I believe, is a very accurate virtual tour of the Marathon course. The only part of the map that might not be a 100% accurate , is where the course goes through St Peters square near the Vatican. (That part of the marathon route was just added for the 2009 race)

Talk about deja vu , as I was viewing the completed map , going street by street as the course weaves in and out along the Tigress river, I was actually getting goose bumps. I had forgotten just how overwhelming an experience this whole thing was for me at the time. Things that I had totally forgotten about were starting to come back in my head clearer than ever. Walking past certain buildings or seeing certain street scenes in this virtual trip, triggered almost the same emotions that I felt when I was there for real. I can even remember what I was thinking at the very moment I passed certain landmarks along the way…

To take a virtual tour of the marathon course at street level, click on “larger view” at the bottom of the map.When the new page opens , zoom in on any part of the course ( the purple line). Look for the little yellow man located on the toolbar on the left upper side of the viewing window and drag him anywhere along that purple line. Click the arrows to move forward and drag within the viewing window to get a 360 degree view. The start of the marathon is the in front of the Colosseum ( blue bubble) , the finish line is behind the Colosseum.


View Larger Map

Btw….The Rome marathon people were so impressed by my map, they made it their own and put it on their Website!

Drink Drink Drink

That’s my motto from now on.

One of my New Years resolutions for 2009 was to force myself to drink more liquids, namely water. I’m notorious for not hydrating enough, especially during exercising and training periods. It’s no secret that Ive had terrible problems with muscle cramps and soreness and it’s a pretty good bet that at least part of this is due to under hydrating.

Believe it or not, during an average day I drink less than 16 oz of fluids, and half of that comes from my morning tea or coffee.
On a day when I’m going to the gym or doing a long walk, I’ll end up probably doubling that amount , but still, that’s not enough to replace what I sweat out.
During the Rome marathon for example, I only downed 16 oz of liquids total for the entire 7 hour walk. I had pretty severe leg cramps during the last 10 miles and when I finished the race I weight 6 lbs less than when I started. It’s no wonder I had cramping problems.
In contrast, six months earlier at the Portland marathon, I drank 3 times that amount during the race, as well as in the two days preceding the race and I had no legs cramps or nausea at all.

One of the reasons it’s so hard for me to drink a lot, is because it makes me feel bloated. When you have severe lung disease, anything you put in your gut puts stress on your diaphragm, making you feel full. Even when I eat, I never have large portions at one time. I snack on things all day long that don’t fill me up. Unfortunately , most of that stuff is junk food loaded with sugar.

Well, Ive had enough of these debilitating cramps and have decided to do a little experiment to see if I can modify my behavior and get in the habit of drinking more water. Since I have to drink water to swallow the tons of pills I take everyday, I thought one of the ways I could get more fluids into my body is to associate drinking with taking my medications. I take my pill medications on a 4 times per day schedule, so what Ive started to do is chase my meds with a full 8 oz of water each time ( instead of one small sip). As I get used to doing that, I will gradually increase that amount to 12 oz each time. That would more than quadruple my daily fluid intake. They say you should drink 8 full glasses a day, but I will be happy as pie with 5 or 6.

Tomorrow I’m supposed to do a 13 mile training walk, it will be interesting to see if this new hydration plan has a positive effect.

Funny walking stuff

Walk kind of walker are you?

Just as runners come in a variety of flavors (joggers, runners, sprinters, hurdlers, marathoners, ultramarathoners, etc.),not all walkers are alike. They also come in an assortment of flavors. ( Marciatori Racewalking Track… Circa 1900 ) (Italy’s Ugo Frigerio wins the 10-kilometer race walk at the 1924 Olympics) By definition, “walking” requires one foot to be [...]

Italy

Earthquake In Central Italy

My sympathies go out to the victims and families of the Earthquake which occurred in the town of L’Aquila in central Italy early Monday morning. It breaks my heart that so many people died or were injured. The destruction appears to be massive. We in California are not exactly strangers to Earthquakes. I know all [...]

Asthma

2008 in Review

OK, everyone seems to be doing a 2008 year in review, so here’s mine. I fitness walked 838 miles , which is way down from the almost 1,000 miles I walked in 2007 and more than 1,200 miles I walked in 2006. Most of that decline was planned, because I wanted to spend more time [...]

Asthma

That was a close call

That last flare up was a bit too close for comfort. With the speed at which my PF’s and sats were dropping, I’m really lucky I didn’t crash and burn. On Monday afternoon I finally turned the corner and now I think I’m out of the danger zone. I have a much better handle on [...]

Asthma

I eat 10 milers for Breakfast

Today I did my first 11 miler (actually 10.8) of this training session and I think it went pretty well. I did a combination of regular walking and slow racewalking , finishing in just under 3 hours , which is just about right for this distance on a slow walk. My body has become so [...]

My Cats

Christmas Kitties

My kids .. Happy Holidays!

Asthma

Marathon training starts now

With my health kinda all over the place and now with the crummy weather , it’s been really tough to set an official start date for the Rome marathon training. Well, on Saturday morning in between storms ,I finally took the plunge and completed my first semi long slow distance training walk of the season. [...]

Asthma

Decision Time Again

With the Rome marathon training window rapidly narrowing (not to mention the availability of airline tickets to Italy in March), I need to make a decision soon, as to whether or not I’m actually going to do the marathon this year. I’m already registered, but saying I wanna do it, and actually committing to it, [...]

Italian Language

La Befana

Boy….How time flies ! Seems like I just started this class, but the semester is already over, and today I graduated from the first grade!

Asthma

RT/Asthmatic/Patient

All this buzz about inhalers ,nebulizers and hospitals , got me to thinking of various situations, in which Ive been involved. Not always practicing what I preach. As I’m sureHeliox . As is pretty typical, they kept me on the continuous neb for about 96 hours. That’s’ around 736 Albuterol treatments in just a 4 [...]

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Today, Friday , September 3rd, 2010

Symptoms: Breathing pretty good today.

Fitness: Walking a total of 13 miles today. 11 miles this morning in San Francisco and 2 miles this evening in Crockett.

Other News: Next race is only 4 weeks away!

FEV1:41% O2 SAT: ⇧ 98% Peak Flows:⇧ 87%

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