Posts from the Past
I look too Healthy

I look too Healthy

I get this all the time......... "You look so healthy" "You don't look like you have a disability" "You can walk farther then I can" "You look amazingly fit for someone with severe asthma" "You make ...

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Needle in a haystack

Needle in a haystack

What are the chances you could re-connect with a person you only met for a few hours while in a sea of 75,000 other runners, in a foreign country, that you never exchanged addresses with , or for that matter ...

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Cracking the stems off of Primatine mist bottles.

Cracking the stems off of Primatine mist bottles.

I don't usually write about my childhood, because frankly, its too painful and because most of it is so outrageous, that a lot of people wouldn't believe it anyway. But just for kicks, I thought Id share one of my ...

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Behind that finish line smile

Behind that finish line smile

Ok, so I look really strong in some of my finish line photos, but believe me.. looks can be very very deceiving. I'm an expert at hiding what I feel inside (I think most asthmatics are, to some degree.) ...

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A matter of timing

A matter of timing

Sometimes when I'm suffering from bouts of dyspnea, I'll divert my attention by writing about it .... or I should say... bitching about it. Nine out of ten times, I'll never actually post/publish these rantings, because by the ...

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The Recuperative phases of a severe asthma exacerbation

Suffice it to say, I wasn't exactly a happy camper when I wrote that Dr W helped me get through this awful time by reassuring me that what anguish I was experiencing, was a normal response after suffering such ...

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Off to the Eternal city

Off to the Eternal city

(Piazza Navona) Well, after a close call with my lungs this weekend , in just a few hours and with a ton medications in tow, I'll be on a plane to Italy for the start of my Roman adventure. This ...

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Walk kind of walker are you?

Walk kind of walker are you?

Just as runners come in a variety of flavors (joggers, runners, sprinters, hurdlers, marathoners, ultramarathoners, etc.),not all walkers are alike. They also come in an assortment of flavors. ( Marciatori Racewalking Track... Circa 1900 ) (Italy's Ugo Frigerio wins the 10-kilometer ...

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I'm a recovering  Albuter-holic

I'm a recovering Albuter-holic

Rick, the author of the Respiratory Therapy Cave , wrote to me the other day talking about what it was like growing up with severe asthma. One of the things he mentioned that I thought was kinda funny, ...

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I'm Hardcore Now

I'm Hardcore Now

GOT A NEW TATT !!! Hmmm...piercing sounds interesting too. Maybe next time.

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18 down, 8.2 to go

18 down, 8.2 to go

Here are a couple pictures I snapped during my 18 mile training walk, which brought me through the Sea Cliff area of San Francisco. This is one of the toughest training route Ive done, mainly because all the hills. It's ...

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Reflecting

Reflecting

It's weird, but when I look at my marathon photos, it's almost like I'm looking at a stranger . It's as though someone else did this race for me and I just went along for the ride. ...

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Did you bring a note with you??

Did you bring a note with you??

Back in the old days when you got sick and ended up in the hospital, it was probably because your primary care doctor put you there. Boy, have things changed. Nowadays you have one set of doctors ...

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Flat Faced Furry Friend is Family

Flat Faced Furry Friend is Family

Turns out that this is the second time in a week that this little cat was found by someone and taken to the animal shelter. After the first incident, the shelter kept it for a few days ...

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The nights are the worse.

The nights are the worse.

Ever notice the time stamp on many of my blog entries? I usually compose and publish them in the early morning hours...sometimes way before dawn. You know why? Because I'm usually awake at 3 or 4 in ...

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Walking Expenses

Walking Expenses

Living on a fixed income, I have to track all of my expenses closely. I just figured out that in the last 6 months ,I spent a total of $1175.97 on walking related stuff . This includes fees ...

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My cat has a shoe fetish

My cat has a shoe fetish

This has been going on long before I started fitness walking..............

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Propofol

Propofol

This is a picture of me on a ventilator last year during a severe asthma exacerbation ( what they call status asthmaticus). See the little IV bottle inside the blue rectangle with the milky looking stuff inside ? ...

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Battle Scars......Electrode Gum

Battle Scars......Electrode Gum

Can anyone out there relate to this...... You've been home from the hospital for a few days now, and you still can't get all that electrode gum off your chest? It's like a black rubber ...

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Up my nose with a rubber hose.

Up my nose with a rubber hose.

Does my new nose wire make a fashion statement? Or does it clash with my beautiful blue eyes ? Actually, I was really bummed about having to deal with this thing in my nose and stomach for the next 24 ...

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That's a lot of ABGs

That's a lot of ABGs

Can you believe I've had 118 arterial blood gases radial artery. If that were the case , my wrist would have fallen off by now. Some of those samples actually came from

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Night walking

This past weekend Douglas and I decided that rather than stay home and watch the same old crap on Sunday night television ,that we would start a new hobby, where once a month we would pick an interesting location somewhere ...

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The not so glamorous side of being a severely asthmatic marathon walker.

Yeah, I made it to Boston , Ive walked the Rome and Portland marathons a couple times, and yeah Ive been written up in lots of walk magazines and medical journals, but I think a lot of people who ...

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The SARP experience

The SARP experience

Welcome to Pittsburgh, Pennsylvania for the

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6 times a day

I had planned to write a post about my nebulizer treatment routine, but then I thought....what the heck,  I'll just video it! Its  spontaneous , unedited and kinda lame, but it's the real deal and it's what I have to do ...

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I’m Steroid free

.

…..Well, not exactly. I’m still getting my fix through steroid inhalers, but as far as the prednisone goes…..I’m totally off it ! ( at least for the time being.) I was on a low dose of it continuously for 14 months, but decided to stop, as it didn’t seem to prevent the more severe flare-ups.

It’s now been a full 2 weeks since I tapered off that poison, and so far, so good .My adrenals seems to be working fine, doing what they’re supposed to do. My peak flow readings, though a little lower overall, seem to be less wobbly (variable) and have been consistently in the green zone. My dyspnea level has been for the most part…mild. About the only negative thing I can think of, is that my neck and back and shoulder pain have increased 10 fold , but that was to be expected . Too me though, pain is the lesser of the two evils and I can deal with that.

I guess only time will tell how this is all going to effect me. One things for sure, from now on I’m only taking the drug when I get really really sick, and then, just long enough to recover.

Again with the disclaimer…This is a personal choice I made after discussing it with my doctors.

Pain in the neck.

Just as I’m beginning to see results with my gym workouts ( I actually have visible biceps now:-), I’ve also been trying to solve the mystery of this new, and very nagging neck and shoulder muscle pain Ive been experiencing ever since I began those workouts.

At first I thought maybe I was just over-doing it with the weights, but I only go to the gym 2-3 times a week and I spend less than 30 minutes on the actual weight machines, so I figure it can’t be that. I can understand being a little sore after beginning a new exercise routine, but Ive been in pain since the very first day ( 4 months now) . The pain and stiffness is persistent and tends to get really bad in the middle of the night. Sometimes it gets so intense, that I actually have to get out of bed to get any relief. Between my breathing problems and this new muscle pain, its getting to the point where I’m unable to get very much restful sleep.

I discussed this with my primary care doc, and thinks it could be from not stretching the opposing muscles groups properly. She also thinks that I don’t drink enough water during the day to flush out the accumulated lactic acid that builds up in my muscles. Then there’s also the question of whether some of medications I take have anything to do with this ….All these things sound logical I guess.

I don’t know if you remember, but I also had a problem with my calve muscles cramping up all the time. I think we concluded that the cramping was caused by too much walking, improper hydration and steroids. Maybe the same is true for this new problem?

If any of you fitness people have any advice on what might be causing this problem or how I can treat it , Id certainly appreciate hearing from you. I’ll probably start going to Physical Therapy once a week and sign up for a yoga class at the gym, to see if that helps.

The main reason I started going to the gym in the first place was because I wanted to add weight training to my walking regimen and tone up a little bit. I’m very interested to see if this type of cross- training will make a difference at the Rome marathon next year.

Thanks !

Asthma

It’s getting expensive to stay alive

The bills have been tallied.  During these past 12 months,  I’ve managed to rack-up an astounding $492,338.53 in hospital bills. Add to that, all the outpatient clinic charges, prescription costs and so on, and we’re easily over the half million dollar mark.  That’s pretty scary. Did you know , that a single day in the [...]

Achievements

I’m in

Today I received my entry confirmation for the 2009 Maratona Di Roma in Rome Italy next March. I know it”s still 5 months away, but I”m very psyched! This to me, is the marathon of all marathons. And new for 2009, they’ve incorporated St Peters Square into the Marathon course. How cool is that? Here’s [...]

Asthma

Did you bring a note with you??

Back in the old days when you got sick and ended up in the hospital, it was probably because your primary care doctor put you there. Boy, have things changed. Nowadays you have one set of doctors who see you in the clinic when you’re doing well, another set of doctors who see if you [...]

Arterial Blood gases

The first few days are the worst

First of all , thank you everyone! for all the nice comments. They mean a lot to me. My apologizes for the self pity thing in the previous post. I guess even us butch super hero types carry a bit of the drama queen gene. I don’t care how many times I go through this, [...]

Asthma

In the hospital again

A week of continuous Albuterol running at 20mg/hr, mixed with feelings of guilt and overwhelming frustration, was pretty much the theme for incarceration number 92. Maybe I’ve been reading too many other bloggers accounts of their brittle asthma experiences while in the hospital setting, or maybe it was the steroid psychosis kicking in, but this [...]

Cats

For the cat lovers

A good friend of mine , who knows I love cats….. sent me this video.

Achievements

Sto Imparando L’italiano

Today I began a new Italian language class at the Scula di Lingua e Cultura Italiana  ( School of Italian Language and Culture) in South San Francisco.   The class only meets once a week for 3 hours, but it”s a total immersion environment for those 3 hours. The instructor speaks minimal English while teaching… and [...]

Marathon walking

Long ass walk

I’ve been lagging way behind on this years Portland Marathon training, and with only 4 weeks till the actual race, I had no choice but to cram in a 20 miler this past Saturday. Needless to say, my lungs and legs aren’t to happy right now. This walk was extremely difficult, and at times… painful. [...]

Barry Manilow

The “Ultimate” way to spend a Wednesday Evening

…..How about sitting 6 feet away from your favorite performer in a classy Las Vegas theater? Yup, it was another fantastic performance from this musical genius. I liked “Music&Passion” , but I like “Ultimate Manilow the Hits” …even more. A little less glitzy, with more music…and much more Manilow!! There’s always something special and/or unique [...]

Barry Manilow

Back To Vegas to see Barry

For exercising hard and never allowing this disease to get the better of me, I occasionally reward myself with a trip to see the is an all new show for Barry, replacing Music& Passion, which has been headlining and selling out shows at the Hilton theater for the past 3 years. Among is fan base,the [...]

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Today, Friday July 30th, 2010

Broke my own rule and walked when I was in my yellow zone. Walked 8 miles yesterday, and now I'm paying for it with crappy peak flows and increased dyspnea. I just wanted to try my new shoes out. When will I learn. Taking 2 days off from walking.

FEV1:39% O2 SAT: ⇩ 96% Peak Flows:⇧ 80%

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Approaching a record number of days that Ive been hospital -free

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