New asthma drugs in the Pipeline

Posted on 2 CommentsPosted in Alternative Asthma treatments, Asthma, Asthma Medications

While doing some research and advocating for myself in hopes of obtaining the anti-IL drug, Dupilumab (on a compassionate use basis), I discovered that there are several other biologics in this new generation of targeted asthma therapy drugs that are in various stages of development. Here’s a list of some of the new biologics coming […]

Don’t forget the upper body!

Posted on 2 CommentsPosted in Asthma, Asthma & Exercise, Asthma Education, COPD, Exercise&Fitness, Lifestyle changes, lung disease and exercise, pre lung transplant, Shortness of Breath, Walking

If you’ve spent much time reading my blog, you’ve probably figured out that Im a huge promoter of daily exercise for people with lung disease. My favorite fitness activity of course, is distance walking. Aerobic exercise such as walking, uses large muscle groups to move at a steady, rhythmic pace. It’s an excellent way to […]

Treatment overload

Posted on Leave a commentPosted in Air-trapping, Alternative Asthma treatments, Asthma, Asthma care plan, Asthma Co-Morbidities, Asthma medical tests, Asthma Medications, Bipap, Hospitals, Intubation, Lung Transplant, Other medical problems, Other medical tests, pre lung transplant, Shortness of Breath, Steroids ( prednisone), Ventilator

Yes, another update about treatment options. Things seem to be changing at a lightening pace now and it’s making my head explode. Too much for an over-thinker like me to think about. Gotta slow down and literally catch my breath. So my 3rd hospitalization and 5th intubation in just the first 4 months of this […]

Evolving treatment plan

Posted on Leave a commentPosted in Alternative Asthma treatments, Asthma, Asthma treatments, pre lung transplant, Severe asthma, Steroids ( prednisone)

Things seems to be changing by the day. As of March 24th 2016, the latest plan is to put me back on Xolair until I can either obtain the biologic drug, Dupilumab, or until lung transplant becomes the only option left to extend my life. Sanofi/Regeneron, the makers of Dupilumab, need to get FDA permission […]

Nebulizer Stew

Posted on Leave a commentPosted in Asthma

Some people put them in the dishwasher, some clean them in sink, some soak them in vinegar, some use ultrasonic cleaning devices……. I just boil mine on the stove. At last count I have about 20 reusable nebulizer sets to go with the 5 portable compressors that I keep in various places around the house […]

Co pay assistance for two expensive asthma medications

Posted on Leave a commentPosted in Asthma, Asthma treatments

Having a serious and/or chronic disease like asthma, can be stressful enough. And for most people figuring out how you’re going to pay for some of these newer and outrageously expensive drugs, just adds to that stress. Well, here’s some information I put together from my own experiences that I hope someone out there might […]

Depressing trend

Posted on 4 CommentsPosted in Asthma, asthma awareness, Asthma Education, Asthma exacerbations, Asthma hospitalization, Asthma Medications, Intubation, Severe asthma, Ventilator

Not sure what’s going on. Since 2003 when my asthma started to get really bad, it was for the most part, relatively stable and the symptoms tolerable for several months at a time. Even the exacerbations, while still very severe on occasion, were somewhat predictable. Likewise, my lung function, specifically my FEV1 and FVC, though […]

ICU delirium got a hold on me

Posted on 3 CommentsPosted in Asthma, asthma awareness, Asthma hospitalization, Bipap, Dyspnea, Intubation, intubation, Shortness of Breath, Steroids ( prednisone), Ventilator

If you’ve suffered from asthma for any length of time and/or have been hospitalized for it, no doubt you’ve experienced some of the not so pleasant side effects of corticosteroids, or possible psychosis from being in the intensive care unit for any length of time. Being in and out of the hospital and on steroids […]