Posts from the Past
No Thermoplasty for Steve

No Thermoplasty for Steve

[JP-Facebook-Like] Ive been getting a lot of email lately from people asking me if I'm gonna have the new clinical trials phase of this new procedure back in 2006, because my asthma was deemed “too severe” by the study investigators. People with ...

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#97 , misinformation and a virus from Hell

#97 , misinformation and a virus from Hell

[JP-Facebook-Like] Battle scars: 4 failed arterial line attempts and 12 failed IV attempts. I have no veins left and my radial arteries are so scarred up from previous insertions, that it's virtually impossible to get access unless they put a ...

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Propofol

Propofol

[JP-Facebook-Like] This is a picture of me on a ventilator last year during a severe asthma exacerbation ( what they call status asthmaticus). See the little IV bottle inside the blue rectangle with the milky looking stuff inside ? ...

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The not so glamorous side of being a severely asthmatic marathon walker

[JP-Facebook-Like] Yeah, I made it to Boston , Ive walked the Rome and Portland marathons a couple times, and yeah Ive been written up in lots of walk magazines and medical journals, but I think a lot of people who ...

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I look too Healthy

I look too Healthy

[JP-Facebook-Like] I get this all the time......... "You look so healthy" "You don't look like you have a disability" "You can walk farther then I can" "You look amazingly fit for someone with severe asthma" "You make ...

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Cracking the stems off of Primatine mist bottles.

Cracking the stems off of Primatine mist bottles.

[JP-Facebook-Like] I don't usually write about my childhood, because frankly, its too painful and because most of it is so outrageous, that a lot of people wouldn't believe it anyway. But just for kicks, I thought Id share one of my ...

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A quarter million puffs

A quarter million puffs

[JP-Facebook-Like] Care for some Albuterol? (Hey.....how did the primatine mist get in there?) I sometimes jokingly claim that Ive

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The Recuperative phases of a severe asthma exacerbation

[JP-Facebook-Like] Suffice it to say, I wasn't exactly a happy camper when I wrote that Dr W helped me get through this awful time by reassuring me that what anguish I was experiencing, was a normal response after suffering such ...

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Another piece of the asthma puzzle

Another piece of the asthma puzzle

[JP-Facebook-Like] Just got my lung biopsy report back from SARP study, are starting to paint a clearer picture of why my asthma is so severe. If there's any good news in all this, it's that there's a new drug ...

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Behind that finish line smile

Behind that finish line smile

[JP-Facebook-Like] Ok, so I look really strong in some of my finish line photos, but believe me.. looks can be very very deceiving. I'm an expert at hiding what I feel inside (I think most asthmatics are, to some degree.) ...

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The SARP experience

The SARP experience

[JP-Facebook-Like]Welcome to Pittsburgh, Pennsylvania for the

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My Lung Biopsy findings

My Lung Biopsy findings

Just got my lung biopsy report back from Dr Wenzel. Seems I have high levels of a type of cell called a mast cell. A “normal” (not cancer) cell that has long been seen in asthma patients. But, mine are ...

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Pre-Boston swag

Pre-Boston swag

Most of the marathon attire that Ive accumulated over the last 3 years usually ends up in a duffel bag crammed in the corner of my closet , never to be seen again. This jacket is gonna get worn a ...

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I'm a recovering  Albuter-holic

I'm a recovering Albuter-holic

Rick, the author of the Respiratory Therapy Cave , wrote to me the other day talking about what it was like growing up with severe asthma. One of the things he mentioned that I thought was kinda funny, ...

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Circa 1981

Circa 1981

Attending the recent taping of Barry Manilow's Music& Passion Special in Las Vegas and checking out all the sound production equipment and everything, made me flash back to a time when I was actually doing sound production for a living. ...

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The first few days are the worst

The first few days are the worst

First of all , thank you everyone! for all the nice comments. They mean a lot to me. My apologizes for the self pity thing in the previous post. I guess even us butch super hero ...

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The meeting

Before I begin, let me preface this post by saying that I haven't made up my mind as to whether I would even want lung transplant surgery, should it ever get to that point. I wanted however, to see ...

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Off to the Eternal city

Off to the Eternal city

(Piazza Navona) Well, after a close call with my lungs this weekend , in just a few hours and with a ton medications in tow, I'll be on a plane to Italy for the start of my Roman adventure. This ...

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Walk kind of walker are you?

Walk kind of walker are you?

Just as runners come in a variety of flavors (joggers, runners, sprinters, hurdlers, marathoners, ultramarathoners, etc.),not all walkers are alike. They also come in an assortment of flavors. ( Marciatori Racewalking Track... Circa 1900 ) (Italy's Ugo Frigerio wins the 10-kilometer ...

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I'm Hardcore Now

I'm Hardcore Now

GOT A NEW TATT !!! Hmmm...piercing sounds interesting too. Maybe next time.

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Reflecting

Reflecting

It's weird, but when I look at my marathon photos, it's almost like I'm looking at a stranger . It's as though someone else did this race for me and I just went along for the ride. ...

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The nights are the worse.

The nights are the worse.

Ever notice the time stamp on many of my blog entries? I usually compose and publish them in the early morning hours...sometimes way before dawn. You know why? Because I'm usually awake at 3 or 4 in ...

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Walking Expenses

Walking Expenses

Living on a fixed income, I have to track all of my expenses closely. I just figured out that in the last 6 months ,I spent a total of $1175.97 on walking related stuff . This includes fees ...

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My cat has a shoe fetish

My cat has a shoe fetish

This has been going on long before I started fitness walking..............

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Battle Scars......Electrode Gum

Battle Scars......Electrode Gum

Can anyone out there relate to this...... You've been home from the hospital for a few days now, and you still can't get all that electrode gum off your chest? It's like a black rubber ...

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World Cup Racewalking Championships

Just wanted to send good vibes out to my friend and racewalking coach, Dave Mc Govern who will be competing this weekend at the World Cup championships in Chihuahua Mexico. Dave will be doing the 50K race ….that’s 31 miles!

I was checking the local weather report for Chihuahua, and the temperature for the 50K at race time on Saturday morning is expected to be 70 degrees F, and heating up to 89 degrees later in the day. Yikes.. that’s pretty warm weather to be doing a 31 mile racewalk in, but if anyone can do it, Dave can. Luckily the relative humidity is supposed to below at 25%.

Jeff Savage will be providing some commentary and photos of the event on his website RACEWALK.COM The IAAF will have the official results well.

USA Team Members

Ray Sharp (50K) , Dave McGovern (50K), Trevor Barron (10K Junior),DanSeriani(20K),JonathonMatthews(50K),MaryanneDaniel(MedicalStaff),AlexChavez(10K Junior), Solomiya Logan (20K),Tyler Sorensen (10K Junior), Patrick Stroupe (20K), Jolene Moore (Junior Coach), Philippe Gonzalez (Head Coach)

Good luck to all of our racewalkers !

No Thermoplasty for Steve


Ive been getting a lot of email lately from people asking me if I’m gonna have the new Bronchial Thermoplasty procedure done. The answer is No. Unfortunately, my asthma is too severe even for the thermoplasty ,which is being touted as a treatment reserved for the most severe form of asthma …go figure. Actually, I don’t have a lot of the reactive smooth muscle in my larger airways that Thermoplasty targets. Most of my airway narrowing takes place deep down in my lungs in the smaller airways, where they cant reach with this device.

Hopefully this new treatment will help a few people, but I’m not convinced that this is the magic bullet that we’ve all been waiting for. It also seems that the company’s definition of “very severe asthma”, is somewhat different than my own. Ironically, I was denied entry into the clinical trials phase of this new procedure back in 2006, because my asthma was deemed “too severe” by the study investigators.

People with very severe chronic asthma usually have a fair amount of scarring, and some have less twitchiness in their large airways. It would seem to me, that this new procedure has a better chance of success on those individuals who have mild to moderate persistent asthma, whose primary problem is spastic airways and who don’t have a lot of airway remodeling. Although in both cases, inflammation can play a significant role in asthma and its symptoms. Bronchial thermoplasty is not known to do anything to inflammation.

Even if I was a suitable candidate for the procedure, I’m not really sure I’d want to have it done. There just hasn’t been enough research on it in the real world, and any scientific proof that it actually works, is marginal at best. Now that this device is approved for use in the US, I think it would be wise to wait a while and see what the outcomes will be like.

Asthma

My drugs are still in the closet

(Get it?) Actually, I was inspired by Kerri’s messy drug drawer posts, to straighten up my own medicine storage area. ( There’s all kinds of double meanings here) No , this isn’t my medication drawer, it’s my medication ROOM! I have so many boxes of Albuterol/Atrovent nebules.. I could open up a pharmacy ( a [...]

Achievements

Lessons learned from Boston/

It’s been just over 2 weeks now since I did the Boston marathon, and except for today, which I can’t blame on the marathon, Ive managed to stay pretty healthy. That hasn’t always been the case right after a big race. Looking back on how things played out on Boston weekend, I think the strategy [...]

Asthma

WAD 2010

May 4th is WORLD ASTHMA DAY! ASTHMATICS WANTED! Can’t think of a better time to recruit people for our Severe Asthma Facebook Group. If you, or someone you know has difficult asthma, please join us. To Dr

Respiratory Therapy

I’m renewing my RCP License

You might recall that over the past couple of years, Ive been trying to decide whether or not I should State of California continuously for more than 25 years now , and retiring it just because I’m no longer able to work, would be a shame. I’m an RT whether I practice the profession for [...]

Boston Marathon

Boston to Big Sur

Francis, for completing the Boston to Big Sur Challenge this past Sunday. These 2 wonderfully nutty people, along with a couple hundred other crazy people, ran BOTH the Boston marathon in Massachusetts AND the Big Sur marathon in California just 6 days apart. Two tough marathons in less than a week on opposite sides of [...]

Achievements

Behind that finish line smile

Ok, so I look really strong in some of my finish line photos, but believe me.. looks can be very very deceiving. I’m an expert at hiding what I feel inside (I think most asthmatics are, to some degree.) Behind those smiles were waves of excruciating pain shooting down my legs. My breathing was really [...]

Achievements

More images from the 2010 Boston marathon

During this trip I took close to 500 still photos and about 20 different video clips, which I still haven’t sorted completely. I’ll be adding more photos to these albums as I get them. ______SOME SCENES BEFORE THE RACE______ ______SCENES DURING THE RACE______ ______SCENES AFTER THE RACE______ Still more to come about this amazing experience…Stay [...]

Achievements

Boston marathon video highlights

Rather than bore you with a mile-by-mile account of everything that happened during this entire 7 hour-17 minute very fun but challenging, and at times a excruciatingly painful journey, this year I decided only to post what I can consider to be the highlights. The experience was a little overwhelming and with so many pictures [...]

Articles about me

Racewalk Planet Radio Interview

Check out my radio interview with Chris Rael over at Chris is an awesome racewalker and coach. It was a video of Chris racewalking(Dave Mc Governs advanced racewalking clinic in Solana Beach last October.

Achievements

Boston—-7 hours 17 minutes and change

20 feet from the finish line Details and tons of more photos and videos in the following days. ( This is also the very first blog post Ive ever published from my cell phone…pretty cool)

Asthma

Bound for Beantown

( read more) Well, after all the training, all the planning, and all the hoping like crazy that my sore foot will somehow heal in time and that my lungs won’t act up too bad, for better or worse, to finish or not, the big daddy of race weekends is finally here! Saturday night I [...]

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Today, Friday , September 3rd, 2010

Symptoms: Breathing pretty good today.

Fitness: Walking a total of 13 miles today. 11 miles this morning in San Francisco and 2 miles this evening in Crockett.

Other News: Next race is only 4 weeks away!

FEV1:41% O2 SAT: ⇧ 98% Peak Flows:⇧ 87%

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