Moving right along……

Posted on Leave a commentPosted in Asthma, Lung Transplant, pre lung transplant, Pulmonary function tests, Severe asthma

It’s been a very busy month indeed. When they say a lung transplant evaluation is thorough and exhausting, they’re not kidding. Every time I think Ive completed all the required tests, the transplant coordinator calls to say I still have more to do. In addition, some of these test have to be repeated every few […]

But you look so healthy

Posted on 2 CommentsPosted in Asthma

How many of you with asthma problems can relate? “But you don’t look sick”, or “Your sats are OK” or ” “Maybe it’s just anxiety” or “If you’re so sick, how are you able to exercise and do normal things?” As a person with very severe lung disease who publicly flaunts his fitness achievements, Ive […]

New asthma drugs in the Pipeline

Posted on 2 CommentsPosted in Alternative Asthma treatments, Asthma, Asthma Medications

While doing some research and advocating for myself in hopes of obtaining the anti-IL drug, Dupilumab (on a compassionate use basis), I discovered that there are several other biologics in this new generation of targeted asthma therapy drugs that are in various stages of development. Here’s a list of some of the new biologics coming […]

Don’t forget the upper body!

Posted on 2 CommentsPosted in Asthma, Asthma & Exercise, Asthma Education, COPD, Exercise&Fitness, Lifestyle changes, lung disease and exercise, pre lung transplant, Shortness of Breath, Walking

If you’ve spent much time reading my blog, you’ve probably figured out that Im a huge promoter of daily exercise for people with lung disease. My favorite fitness activity of course, is distance walking. Aerobic exercise such as walking, uses large muscle groups to move at a steady, rhythmic pace. It’s an excellent way to […]

Treatment overload

Posted on Leave a commentPosted in Air-trapping, Alternative Asthma treatments, Asthma, Asthma care plan, Asthma Co-Morbidities, Asthma medical tests, Asthma Medications, Bipap, Hospitals, Intubation, Lung Transplant, Other medical problems, Other medical tests, pre lung transplant, Shortness of Breath, Steroids ( prednisone), Ventilator

Yes, another update about treatment options. Things seem to be changing at a lightening pace now and it’s making my head explode. Too much for an over-thinker like me to think about. Gotta slow down and literally catch my breath. So my 3rd hospitalization and 5th intubation in just the first 4 months of this […]

Evolving treatment plan

Posted on Leave a commentPosted in Alternative Asthma treatments, Asthma, Asthma treatments, pre lung transplant, Severe asthma, Steroids ( prednisone)

Things seems to be changing by the day. As of March 24th 2016, the latest plan is to put me back on Xolair until I can either obtain the biologic drug, Dupilumab, or until lung transplant becomes the only option left to extend my life. Sanofi/Regeneron, the makers of Dupilumab, need to get FDA permission […]

Nebulizer Stew

Posted on Leave a commentPosted in Asthma

Some people put them in the dishwasher, some clean them in sink, some soak them in vinegar, some use ultrasonic cleaning devices……. I just boil mine on the stove. At last count I have about 20 reusable nebulizer sets to go with the 5 portable compressors that I keep in various places around the house […]

Co pay assistance for two expensive asthma medications

Posted on Leave a commentPosted in Asthma, Asthma treatments

Having a serious and/or chronic disease like asthma, can be stressful enough. And for most people figuring out how you’re going to pay for some of these newer and outrageously expensive drugs, just adds to that stress. Well, here’s some information I put together from my own experiences that I hope someone out there might […]