No transplant for me, but that’s OK.

If you’ve been following my medical journey, you might recall that last summer I began the evaluation process for lung transplant at UCSF medical center. The conclusion of that evaluation came 6 months later in Dec 2016. At that time I was deemed a suitable candidate for transplant, but that my listing with UNOS would […]

Aerogen Nebulizer Gets an A+

Last week I was in the hospital again for my asthma resulting in yet another intubation. As sometimes happens, a few hours after coming off the ventilator I began to tire out and get tight again. The re-started interval neb treatments weren’t cutting it anymore, so they decided to put me back on continuous nebs. […]

Those damn stickers

Things get lost or disappear in a busy hospital,so I totally understand the need to properly identify a patients personal belongs. On plastic bags, documents, even on clothing is fine. But seriously, don’t put them on my phone or favorite leather wallet that you’ve now ruined and will have to pay for. If it hasn’t […]

I almost forgot who I am

I’m so much more than just the quirky little dude with bad lungs. I’m the original badass asthmatic. I made the words “fitness” and “lung disease” sound cool together. Im the first and only person with really severe asthma ever to finish the Boston marathon. Not once…but 3 times. Im also one who doesn’t gets […]

Prelude to an asthma flare

So my asthma is acting up again and I feel like I have the proverbial elephant sitting on my chest. I say my asthma is acting up, but in actuality it’s always acting up. So I guess what I really mean is that my symptoms are ramping up from my norm, getting more intense by […]

2 years, 2 million dollars

Need proof of just how expensive asthma can be? These are my hospital bills for the last two years, coming in at just over 2.1 million and change. 2016 2015 Related Posts:A common cold with not so common asthma104th trip to the slammer for AsthmaThe Recovery phases of a severe asthma exacerbationNumber 96 Number 95My […]

Bipap trial

It’s too soon to tell if it’s helping, but 4 weeks ago I started on a trial of home Bipap. Essentially Im sleeping hooked up to a non -invasive ventilator. I’ve been using a full face mask which Im gradually getting used to. Right now I’m averaging about 4- 5 hours per night on the […]

I feel like I got run over by a truck

Im sure you’ve heard the expression “I feel like I was run over by a truck” to describe the aftermath of a really bad asthma exacerbation or some other aliment. Ive used it several times myself in my blog posts, but this time around Im not using it as an expression, I actually did get […]

I live in the yellow zone

Always trying to figure out why my asthma is so difficult to control, I decided to look at my daily peak flow numbers, neb treatments and symptom data over the last 3 years to see if anything stood out. This is what emerged: Despite being on 1000mcg of inhaled inhaled steroids and a long acting […]

Transplant candidate rules

In addition to a litany of medical tests, UCSF requires all of their lung transplant candidates to follow a strict set of rules, including having a caregiver plan in place during the initial recovery process. They require you to have someone with you around the clock while staying at a local hotel for a period […]

Its what he DIDN’T say

If you’ve been dealing with complicated or persistent asthma for a long time, your doctor has no doubt given you the not so surprising…. “I don’t know what else we can do for you” talk. My doctors ran out of ideas years ago, so Im pretty used to hearing it, but at last weeks hospital […]

Thankful for the little things.

Little, as in little charges. Like this prescription of Ambien, which cost me whopping 45 cents! I couldn’t believe it. Or how about a 30 day supply of prednisone for 60 cents. I get super low prices for my blood pressure and cholesterol meds as well, all thanks to the medicare prescription plan I started […]

The asthma app is finally here.

After a year long collaboration with some talented engineering friends of mine, the app we’ve been working on is finally available for I phone with Android following shortly. Introducing Ourbreeze . The first Asthma app that monitors multiple environmental indices, all of which can trigger or worsen symptoms in people with lung disease. You can […]