From the Archives

For the 112th time

Gee I haven't written about a good ole hospital admission for quite sometime. Since I just completed my 112th, maybe now's a good time. The theme for this latest admission is fun with steroid psychosis and why IV fluids should always be monitored closely. The fun begins The trigger to the flare leading ...

Read More

Do you know when it's time to go in?

The idea for this post came to me during the middle a recent severe exacerbation. Actually, it was the same exacerbation that put me in the hospital for 12 days, for which I am still recovering. Foremost on my mind during an asthma excerbation is the question....how bad will ...

Read More

Recovering Albuter-holic

Rick, the author of the Respiratory Therapy Cave , wrote to me the other day talking about what it was like growing up with severe asthma. One of the things he mentioned that I thought was kinda funny, was how he used to sleep with an inhaler ...

Read More

The photos say it all

What is Status Asthmaticus? Lucky me, on July 23th 2014, I survived my 115th hospital admission and 20th intubation for asthma. I didn't think I was that sick, but apparently I was.

Read More

The not so glamorous side of being a severely asthmatic marathon walker

Yeah, I made it to Boston , Ive walked the Rome and Portland marathons a couple times, and yeah Ive been written up in lots of walk magazines and medical journals, but I think a lot of people who hear about me or read my blog, assume that ...

Read More

The Recovery phases of a severe asthma exacerbation

Suffice it to say, I wasn't exactly a happy camper when I wrote that Dr W helped me get through this awful time by reassuring me that what anguish I was experiencing was a normal response after suffering such a severe flare up, and that my complaints were ...

Read More

Not just Asthma, Severe Asthma!

Not to downplay the heartache and suffering that people with milder forms of asthma have to sometimes contend with; obviously it's a big deal when you can't breath, but the healthcare establishment needs to stop lumping all asthmatics together under the same general heading of "asthma".This is a problem because ...

Read More

Asthma Purgatory

Whenever the weather is bad, so is my asthma. My lungs are extremely sensitive to humidity in the air and/or the slightest changes in barometric changes. Changes in the climate, changes in the seasons, you name it.... my lungs will react to it. I'm a walking weather ...

Read More

O2 sats and asthma attacks revisited

After 9 years of blogging about life with severe asthma, I still get a lot of traffic from people searching the web for specific information about O2 saturation and how it relates to asthma or the severity of an asthma attack. So for those who might have missed my earlier ...

Read More

Venous Access Port ( VAP)

After an estimated 104 hospital admissions for asthma and probably 10 times that number of IV sticks, I have no peripheral venous access left. A half a century of IV steroids has rendered my veins useless. The only place they can get lines in, are in my knuckles and toes. ...

Read More

Double Whammy Asthma

I often find it frustrating that here I am, a life long asthmatic, a Respiratory therapist and an asthma educator, yet still unable in normal conversation, to describe what makes my type of asthma so different from others. When asked to define asthma in general, I usually give the ...

Read More

Just another week in the life of a hardcore asthmatic

I usually don't post about my hospital experiences because its not a subject I like to re-live. Its an unwanted , terrifying , but necessary part of my life. When it happens , I just try to get through it and then I try to blank it out ...

Read More

Buried Alive

The photo is from the movie "Awake", but what happened to me last September was not fiction.. It was the real deal! Back on Sept 20th of 2010, I was admitted to the hospital for a severe asthma exacerbation(so what else is new). About 8 hours into the exacerbation, my ...

Read More

Asthma guilt trip

How many times have you had a really bad asthma flare, but had serious trepidations about going to the emergency room for treatment? How many times have you felt guilty that maybe you weren't sick enough to be admitted to the hospital? Well, that's pretty much been the ...

Read More

Questions for Dr. Wenzel

Last week after finding out just how damaged my lungs really are, the only thing going through my head was..WHY? All of the assumptions I had made about my asthma throughout the years, suddenly didn't seem to make sense anymore. I was beginning to wonder if I really ever ...

Read More

Propofol

Propofol

This is a picture of me on a ventilator last year during a severe asthma exacerbation ( what they call status asthmaticus). See the little IV bottle inside the blue rectangle with the milky looking stuff inside ? That's Propofol ! Also known as ...

Read More

15 months Intubation Free!

It feels good to brag about something positive for a change. This week marks 15 whole months since Ive had to have a tube shoved down my windpipe in order to breath. Ive had zero, what I would call "critical condition" type hospitalizations in that time period as well. Granted, ...

Read More

My Trip to Churchill

My journey begins in Winnipeg (my very first time crossing the Canadian border). Just 2 days earlier there had been a pretty bad snow storm and potential weather delays at the airport were a big concern.Fortunately things worked out and I got there on time without any problems. ...

Read More

Racewalking for Science

As part of the Shortness of breath self-Management research study that I'm involved in over at UCSF, every 3 months I have to go into the lab where they check my PFTs and then have me do a series of physical fitness exercises. Sometimes they have me get ...

Read More

Lung Lingo

Yes it's true, we asthmatics have a language all our own.   Here's my current list. Please feel free to add new words and definitions to it .   Yellow Zoning When someone is stuck in their yellow breathing zone. Cradle Asthmatic A person who has had asthma since earlier childhood or ...

Read More

anxiety
Written by

The “A” word

Im talking about the other A word…. ANXIETY As a Respiratory Therapist and a lifelong asthmatic, I know all too well that anxiety and breathlessness usually go hand in hand. Still, I often catch myself getting a little defensive when a medical person abruptly brings up the A word and asthma in the same sentence, […]

March 7, 2014 14
Dr Wenzel and I
Written by

SARP III complete

Well, almost. The study actually lasts for 3 years, but the bulk of the testing can usually be completed in 4 half day visits. After that, it’s annual follow ups and the occasional online questionnaire. Because I had a separate clinic appointment with Dr Wenzel, and because there has to be a 3 week space […]

February 21, 2014 1
Hosp 10-2013
Written by

Not just Asthma, Severe Asthma!

Not to downplay the heartache and suffering that people with milder forms of asthma have to sometimes contend with; obviously it’s a big deal when you can’t breath, but the healthcare establishment needs to stop lumping all asthmatics together under the same general heading of “asthma”.This is a problem because severe asthma is not the […]

February 16, 2014 2
Written by

Self observations : Steriod insomnia

For probably the first time in 50 years of cycling on and off of steroids, it came to me in a flash last night, that the reason I can’t sleep when on steroids, is not because I have too much steroid in me, but rather not enough. For the past 14 days Ive been in […]

February 12, 2014 0
pillow ,Dia
Written by

Lung Art

I thought this was so clever. A few months ago a good friend of mine from Toronto, asked me if I could she use one of the images I had of some mast cells and lung tissue that was collected from my airways during an earlier bronchoscopy. She was going to somehow use them for […]

January 9, 2014 1
January 4, 2014 1
100_6270
Written by

Prednisone Skin

Just one of the many joys of taking prednisone. I know chronic steroid use can cause paper thin skin ( what we call “crepe paper” skin in the biz), which then makes you more susceptible to spontaneous bruising, but Ive noticed lately that if I brush up against almost any surface, no matter how gently, […]

November 15, 2013 9
header for AI
Written by

UMPC Asthma Support Group

Starting this month and every month going forward, I’ll be posting the minutes from the UMPC (University of Pittsburgh Medical Center) Severe Asthma Support Group conference calls. The calls are sponsored by the Asthma Institute at UMPC and moderated by Dr Sally Wenzel Pulmonologist and Deborah A. Gillman PhD, Clinical Psychologist. If you have difficult […]

November 6, 2013 0
Written by

For the 112th time

Gee I haven’t written about a good ole hospital admission for quite sometime. Since I just completed my 112th, maybe now’s a good time. The theme for this latest admission is fun with steroid psychosis and why IV fluids should always be monitored closely. The fun begins The trigger to the flare leading up to […]

October 23, 2013 6
100_5753
Written by

Industrial scale nebbing

It’s delivery day for my Albuterol/Atrovent vials. I’ll go though this amount in about 8 weeks They supply 4 nebulizer machines I have throughout the house My main nebbing station is an art deco table from a 1930s cocktail lounge Do I do anything on a normal scale? No. Related Posts:6 times a dayMulti-taskingCool new […]

October 3, 2013 2
Print
Written by

A SARP’in we will go…….

In a few weeks I’m off to Pittsburgh again to participate in SARP III. The focus of SARP III is to study the stability of clinical and molecular phenotypes of severe Asthma. Basically they’re looking for the bio signature of certain mast cells in the serum and plasma and whether they are maintained over the […]

September 28, 2013 1
RBB
Written by

Dear Blackie Fish (1997-2013)

Dear Sampson, aka Blackie Fish ( nicknamed for his long black fur and star shaped paws), You were the awkward stepchild, the middle child of 2 other cats who shared our home. We adopted you from a cat rescue in Woodland California in 1999 when you were 2 years old. We suspected you came from […]

September 26, 2013 4
asthma pnenotypes
Written by

Asthma Phenotypes

Physician researchers at the University of Pittsburgh Asthma Institute at UPMC are now using molecular and genetic information to identify asthma phenotypes and customize therapies in order to improve patient outcomes. If you have asthma and would like to contribute to this on going research, please consider volunteering for

September 19, 2013 0
Page 3 of 49«123456»...Last »

Racewalking

Winston