I feel your pain

Posted on 5 CommentsPosted in Air-trapping, Asthma, asthma advocacy, Asthma Support Group, blogging, COPD Awareness, Dyspnea, Shortness of Breath, Wheeze

Feeling like shit right now? Is your asthma, COPD or other breathing disorder flaring up or bothering you more than usual? Were you searching the web for asthma related stuff as a way to cope with your own crappy breathing? Is that how you reached my blog? Well I can tell you that you’re not […]

SARP ends, but the research continues

Posted on 1 CommentPosted in Asthma, asthma awareness, Sally Wenzel, SARP, Severe asthma, University of Pittsburgh Asthma Institute

Though still in operation, the NIH funded Severe Asthma Research Program (SARP), which started 14 years ago, is now officially closed to new enrollees. Sadly, it looks like SARP will be the last large observational study of severe asthmatics, at least for the foreseeable future. The good news, is that there’s still a lot of […]

The Wonderful Side effects of frequent asthma flares

Posted on Leave a commentPosted in Asthma, Asthma medical tests, Asthma Medications, Asthma treatments, Exacerbation Recovery, Secondary conditions, Steroids ( prednisone)

Think a severe asthma exacerbation only effects your lungs? Check out the photos below. Each photo was taken appx 2-3 weeks after being discharged from the hospital after a serious asthma flare. Dehydrated? Perhaps, but interestingly, most people retain water while on prednisone. The thing about frequent severe asthma exacerbations and frequent use of steroids, […]

Techno-Patient

Posted on Leave a commentPosted in Arterial Blood gases, Asthma, Hospitals, Other medical tests, Respiratory Therapist

The Hospital I go to when my asthma gets really bad, recently upgraded their electronic charting and patient care computer systems. They’re using the EPIC system, which includes a patient portal via the web. It’s pretty cool because things like labs and xray results are made available to patient almost as soon as they’re available […]

Im an A hole when Im sick

Posted on 7 CommentsPosted in Asthma, Dyspnea, Exacerbation Recovery, Hospitals, Recovering from severe asthma attack, Severe asthma, Shortness of Breath

Most people will tell you Im one of the sweetest, most caring people you’ll ever meet. But make no mistake, when Im recovering from a bad asthma exacerbation, I can become an obnoxious asshole… I get anxious, I get irritable, I get angry and nasty all at the same time. I snap at everyone and […]

Steve – 9, Lung disease—a big fat ZERO!

Posted on 3 CommentsPosted in Achievements, Asthma, Fitness Walking, Fitness/Training Update, Marathon Training, Marathon walking, Portland Marathon, Post Marathon recovery, Walking, walking events

This might sound corny, but I feel like Ive just been reborn. On Oct 5th I finished my 9th marathon at the Portland Marathon. If you’ve been reading my updates, this was a scheme I had hatched while hospitalized back in July. I was feeling incredibly down at the time and was curious to see […]

Self Observations: Severe Asthma and Endurance walking

Posted on Leave a commentPosted in Asthma, Asthma Symptoms, Exercise&Fitness, Fitness Walking, Fitness/Training Update, Marathon Training, Marathon walking, Physical and emotional triggers in asthma and chronic lung disease, Portland Marathon, training progress, Walking

Ive been doing endurance walks now for about 10 years, and because of the severity of my lung disease, I often experience significant symptom exacerbations afterwards. Well something quite unexpected and encouraging has happened recently during the peak of this current training cycle, or should I say…didn’t happen! On 3 separate occasions over a 4 […]

Training update Aug 2014

Posted on 1 CommentPosted in Asthma, Fitness Walking, Fitness/Training Update, lung disease and exercise, Marathon Training, Marathon walking, Marathons, Portland Marathon, Shortness of Breath, training progress, Walking, walking events

Dang… I haven’t written one of the training updates in years. Trying to get in shape to do this race has been challenging to say the least. It’s been 3 years since Ive attempted something crazy like this and I almost forgot just how grueling it can be when you don’t have any functional lung […]

The impatient patient

Posted on 5 CommentsPosted in Asthma, Asthma exacerbations, Asthma hospitalization, Intubation, Marathon Training, Marathon walking, Portland Marathon, Steroids ( prednisone), Ventilator

Oh goody, another post about asthma exacerbation recovery. After being discharged from the hospital only 3 days ago, it’s probably a little early to be writing about this topic again, but something is definitely different this time around. The recovery seems excruciatingly slow( gee, where have I heard that before?). In my mind I should […]