Downsizing

Posted on 3 CommentsPosted in Asthma

Makes me kinda sad seeing this (makes my wallet sad too, $150 down the drain). This is the race I was supposed to do in October. It would have been my 10th full marathon, a nice round number to retire with. I registered for it way back in January on the heels of last years […]

23rd time’s a charm

Posted on 3 CommentsPosted in Arterial Blood gases, Asthma, Bipap, Intubation, Nebulizer treatments, Shortness of Breath

No..not as in hospitalizations ( I’ve lost count of those,) I’m talking about my 23rd endotracheal intubation with mechanical ventilation for respiratory failure. You heard that right, Ive been intubated 23 times now! (as of 11-23-2016, make that a whopping 34 times). That’s gotta be some kind of weird worlds record or something. How is […]

Survive an attack, register for a marathon

Posted on 7 CommentsPosted in Asthma, asthma advocacy, asthma awareness, Exercise&Fitness, Fitness Walking, Marathons, People, Places and Events, Recovering from severe asthma attack, Walking

Makes sense to me…… Get really sick, spend time in the hospital, come home exhausted and depressed, and then immediately sign up to do a 26.2 mile foot race. But then again I’m probably not your typical chronic lunger. After finishing my 8th marathon back in 2011, I had basically shrugged off the notion of […]

Let’s build some Bridges

Posted on 5 CommentsPosted in Asthma

As a Respiratory Therapist, Ive worked with the entire age range of asthmatics, from infants to adults, both in the hospital setting and out. As a health advocate, I try my best to educate the public, including health professionals, about asthma and the various aspects of living with a chronic lung disease in general. I’m […]

PFTs Du Jour

Posted on 1 CommentPosted in Asthma, Asthma medical tests, COPD, FEV1, Peak Flows, Pulmonary function tests, SARP

For those interested, here are my latest spirometry results from last weeks SARP follow-up visit at UCSF last week. It’s kind of a bad-good-bad then good-good-bad story. Starting with the not so good news… my initial FEV1 was only 28% (.83 liters) this time. That’s down 4 percentage points from last years visit. The good […]

I feel your pain

Posted on 5 CommentsPosted in Air-trapping, Asthma, asthma advocacy, Asthma Support Group, blogging, COPD Awareness, Dyspnea, Shortness of Breath, Wheeze

Feeling like shit right now? Is your asthma, COPD or other breathing disorder flaring up or bothering you more than usual? Were you searching the web for asthma related stuff as a way to cope with your own crappy breathing? Is that how you reached my blog? Well I can tell you that you’re not […]

SARP ends, but the research continues

Posted on 1 CommentPosted in Asthma, asthma awareness, Sally Wenzel, SARP, Severe asthma, University of Pittsburgh Asthma Institute

Though still in operation, the NIH funded Severe Asthma Research Program (SARP), which started 14 years ago, is now officially closed to new enrollees. Sadly, it looks like SARP will be the last large observational study of severe asthmatics, at least for the foreseeable future. The good news, is that there’s still a lot of […]

The Wonderful Side effects of frequent asthma flares

Posted on Leave a commentPosted in Asthma, Asthma medical tests, Asthma Medications, Asthma treatments, Exacerbation Recovery, Secondary conditions, Steroids ( prednisone)

Think a severe asthma exacerbation only effects your lungs? Check out the photos below. Each photo was taken appx 2-3 weeks after being discharged from the hospital after a serious asthma flare. Dehydrated? Perhaps, but interestingly, most people retain water while on prednisone. The thing about frequent severe asthma exacerbations and frequent use of steroids, […]

Techno-Patient

Posted on Leave a commentPosted in Arterial Blood gases, Asthma, Hospitals, Other medical tests, Respiratory Therapist

The Hospital I go to when my asthma gets really bad, recently upgraded their electronic charting and patient care computer systems. They’re using the EPIC system, which includes a patient portal via the web. It’s pretty cool because things like labs and xray results are made available to patient almost as soon as they’re available […]