Posts from the Past
No Thermoplasty for Steve

No Thermoplasty for Steve

[JP-Facebook-Like] Ive been getting a lot of email lately from people asking me if I'm gonna have the new clinical trials phase of this new procedure back in 2006, because my asthma was deemed “too severe” by the study investigators. People with ...

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#97 , misinformation and a virus from Hell

#97 , misinformation and a virus from Hell

[JP-Facebook-Like] Battle scars: 4 failed arterial line attempts and 12 failed IV attempts. I have no veins left and my radial arteries are so scarred up from previous insertions, that it's virtually impossible to get access unless they put a ...

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Propofol

Propofol

[JP-Facebook-Like] This is a picture of me on a ventilator last year during a severe asthma exacerbation ( what they call status asthmaticus). See the little IV bottle inside the blue rectangle with the milky looking stuff inside ? ...

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The not so glamorous side of being a severely asthmatic marathon walker

[JP-Facebook-Like] Yeah, I made it to Boston , Ive walked the Rome and Portland marathons a couple times, and yeah Ive been written up in lots of walk magazines and medical journals, but I think a lot of people who ...

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I look too Healthy

I look too Healthy

[JP-Facebook-Like] I get this all the time......... "You look so healthy" "You don't look like you have a disability" "You can walk farther then I can" "You look amazingly fit for someone with severe asthma" "You make ...

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Cracking the stems off of Primatine mist bottles.

Cracking the stems off of Primatine mist bottles.

[JP-Facebook-Like] I don't usually write about my childhood, because frankly, its too painful and because most of it is so outrageous, that a lot of people wouldn't believe it anyway. But just for kicks, I thought Id share one of my ...

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A quarter million puffs

A quarter million puffs

[JP-Facebook-Like] Care for some Albuterol? (Hey.....how did the primatine mist get in there?) I sometimes jokingly claim that Ive

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The Recuperative phases of a severe asthma exacerbation

[JP-Facebook-Like] Suffice it to say, I wasn't exactly a happy camper when I wrote that Dr W helped me get through this awful time by reassuring me that what anguish I was experiencing, was a normal response after suffering such ...

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Another piece of the asthma puzzle

Another piece of the asthma puzzle

[JP-Facebook-Like] Just got my lung biopsy report back from SARP study, are starting to paint a clearer picture of why my asthma is so severe. If there's any good news in all this, it's that there's a new drug ...

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Behind that finish line smile

Behind that finish line smile

[JP-Facebook-Like] Ok, so I look really strong in some of my finish line photos, but believe me.. looks can be very very deceiving. I'm an expert at hiding what I feel inside (I think most asthmatics are, to some degree.) ...

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The SARP experience

The SARP experience

[JP-Facebook-Like]Welcome to Pittsburgh, Pennsylvania for the

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My Lung Biopsy findings

My Lung Biopsy findings

Just got my lung biopsy report back from Dr Wenzel. Seems I have high levels of a type of cell called a mast cell. A “normal” (not cancer) cell that has long been seen in asthma patients. But, mine are ...

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Pre-Boston swag

Pre-Boston swag

Most of the marathon attire that Ive accumulated over the last 3 years usually ends up in a duffel bag crammed in the corner of my closet , never to be seen again. This jacket is gonna get worn a ...

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I'm a recovering  Albuter-holic

I'm a recovering Albuter-holic

Rick, the author of the Respiratory Therapy Cave , wrote to me the other day talking about what it was like growing up with severe asthma. One of the things he mentioned that I thought was kinda funny, ...

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Circa 1981

Circa 1981

Attending the recent taping of Barry Manilow's Music& Passion Special in Las Vegas and checking out all the sound production equipment and everything, made me flash back to a time when I was actually doing sound production for a living. ...

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The first few days are the worst

The first few days are the worst

First of all , thank you everyone! for all the nice comments. They mean a lot to me. My apologizes for the self pity thing in the previous post. I guess even us butch super hero ...

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The meeting

Before I begin, let me preface this post by saying that I haven't made up my mind as to whether I would even want lung transplant surgery, should it ever get to that point. I wanted however, to see ...

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Off to the Eternal city

Off to the Eternal city

(Piazza Navona) Well, after a close call with my lungs this weekend , in just a few hours and with a ton medications in tow, I'll be on a plane to Italy for the start of my Roman adventure. This ...

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Walk kind of walker are you?

Walk kind of walker are you?

Just as runners come in a variety of flavors (joggers, runners, sprinters, hurdlers, marathoners, ultramarathoners, etc.),not all walkers are alike. They also come in an assortment of flavors. ( Marciatori Racewalking Track... Circa 1900 ) (Italy's Ugo Frigerio wins the 10-kilometer ...

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I'm Hardcore Now

I'm Hardcore Now

GOT A NEW TATT !!! Hmmm...piercing sounds interesting too. Maybe next time.

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Reflecting

Reflecting

It's weird, but when I look at my marathon photos, it's almost like I'm looking at a stranger . It's as though someone else did this race for me and I just went along for the ride. ...

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The nights are the worse.

The nights are the worse.

Ever notice the time stamp on many of my blog entries? I usually compose and publish them in the early morning hours...sometimes way before dawn. You know why? Because I'm usually awake at 3 or 4 in ...

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Walking Expenses

Walking Expenses

Living on a fixed income, I have to track all of my expenses closely. I just figured out that in the last 6 months ,I spent a total of $1175.97 on walking related stuff . This includes fees ...

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My cat has a shoe fetish

My cat has a shoe fetish

This has been going on long before I started fitness walking..............

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Battle Scars......Electrode Gum

Battle Scars......Electrode Gum

Can anyone out there relate to this...... You've been home from the hospital for a few days now, and you still can't get all that electrode gum off your chest? It's like a black rubber ...

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In good company


There might not be very many of us (only 26 this year) and we might not be as sleek as the other runners, but there are some pretty amazing athletes who compete in the Boston marathon’s mobility impaired division.

Take for example Keven Counihan. Kevin lost part of his right foot in an accident with a lawnmower. 15 years later, he was in a near-fatal car accident that caused extensive knee, arm, hip, chest, and shoulder damage. Despite all this, and after years of rehabilitation, Kevin focused on running again and set his sights on the marathon distance. In the 7 years since he started marathon running again, Kevin has finished 99 marathons, and hopes to complete his 100th at this years Boston marathon! Pretty amazing Id say. Check out this recent article and Video about Kevin.

Then there’s Kelly Luckett, another awesome athlete. This is her 6th consecutive Boston marathon. She’s also done 21 Ultrathons (50ks) and over 80 shorter races. Kelly came in at 3rd place in this division in lasts years race. Way to go Kelly!

Can’t forget this guy. He is absolutely amazing to watch. Richard Whitehead is a congenital double amputee from the UK and quite a celebrity there. He has broken several world’s records, including the 2009 Rome marathon. I was there when he became the first amputee athlete in history, to break the 3 hour mark in a marathon. Absolutely incredible!

Last but certainly not least, there’s my good friend, Mike Mc Bride, who climbs skyscrapers for fun. Mike will pull an 80lb oxygen cart behind him for 26.2 miles. The fact that he does what he does, given his type of lung disease, still blows me away. He may not be lightning fast, but he has more fortitude and guts than most healthy people half his age. Check out this recent article in the Boston Globe

So, how does it feel to stand next to these phenomenal athletes at the starting line in Hopkinton, Massachusetts? IT FEELS INCREDIBLE !!

That’s a rap !


As they say in the movie making business…That’s a Wrap!

And what a Beautiful day to finish up on.

Training for my 2nd Boston marathon (and my 7th full marathon to date), has officially come to an end. Ive trained and prepared the best I can what with little time Ive had. In total, I trained for 10 and half weeks in the rain and sun, racking up appx 250 miles in the process. This is about hundred miles less than I put into last years training for the same race. I hope it’s enough.

Every time I train for one of these things, I always seem to be hit by at least one over-use type of injury. Last year it was a plantar facsciitis , the year before that, it was persistent calf cramps and hamstring issues. This year it’s metatarsalgia ( ball of the foot pain). Probably brought on by old age ( arthritis) and over-pronation. How much this will impact me at Boston remains to be seen, but if yesterday’s 10 mile walk is any indication, I’m not feeling very confident. I can tolerate a lot of physical pain, but I don’t feel like limping my way through a marathon. I’m going to try to stay off my feet as much as possible between now and next week. Hopefully this will make a difference.

As far as my lungs go, they’ve held out surprisingly well during the actual workouts, but not so good afterwords. Even after some of the shorter walks (5-8 miles) I find myself getting tighter and more short of breath than in previous years. And after the really long walks ( 10+ miles), I’m experiencing more and more full blown flares (the whole delayed symptom onset pnenomina thingy). Fortunately, these mini exacerbations resolved on their own which allowed me to complete my training.

The big concern now is, how bad will I flare up after the race? That’s assuming of course, that I’m luck enough to actually finish the race given my foot problems. To try and stave off a potentially serious flare-up following the race, I’m going to prophylactically bolus myself with a one time dose of 40mg prednisone the morning of the race. Timing is going to be critical here, because if I take the drug too early in the morning, it could make me really nauseated, if I take it too late, it won’t have time to kick in. This is the first time Ive ever increased my pred during a race, so I have no idea what the effects will be. Hopefully it will keep me out of the slammer.

Articles about me

Posts from the Past

You may or may or may not have noticed, that I haven’t been updating my blog as often as I have in the past. There are several reasons for this, the main one being is that Ive just been preoccupied with training and preparing for this upcoming race. There are however, other times when I [...]

Asthma

Boston crew

You might be surprised by how many people it takes to get 2 severely lung challenged athletes and an 80 lb oxygen cart across the finish line of the world’s most prestigious foot race. Introducing the crew ! Our spotters……………………………………Lizzy and Chuck Not only I am privileged to participate again in this incredible race with [...]

Asthma

Training Update

Training for a marathon is no picnic..it’s hard work, but I’m a happy to report that I’m now 3/4′s finished with my training. With the exception of a minor, but troublesome foot injury, I’ve managed to survive this training session better than some of my previous ones. My lungs have been holding up pretty good [...]

Boston Marathon

Boston Wardrobe

A few changes and some new additions to my racing apparel for the upcoming marathon. Starting with the shoes… On Dave Mc Govern’s recommendation, I switched to a slightly more supportive shoe. I over-pronate big time and the shoes that I had been wearing for the last year or so, though very comfortable, offered absolutely [...]

Achievements

#22194

This years highly coveted Here

Asthma

My old yellow is my new green

Just a year ago I was routinely hitting 370- 380 on the peak flow meter, representing the upper end of my green zone. Well, looks like those days are over. Though Ive been breathing pretty decent lately with no major flares, on a good day Ive only been hitting 310-320, maybe 330 on a stellar [...]

Exercise&Fitness

Hardcore

On Thursday I did this…….. for this many miles ⇩ and I used this 6-8 times After I finished the walk, I did this…….. AND THEN THIS⇩ Holy S**T ! Intense exercise actually causes microtrauma, or tiny tears in muscle fibers. This muscle damage not only stimulates muscle cell activity and helps repair the damage [...]

Exercise&Fitness

Tiburon Racewalking Clinic

For the photo album, page (The 2010 Tiburon Racewalking Alumni) This was my 4th World Class racewalking clinic in 3 years, and as always, I got to meet some really nice people , had a great workout, a great time, and I learned a lot. I wanna thank our wonderful host, over-pronate quite a bit [...]

Boston Marathon

2010 Boston Swag on the cheap

Remember my Boston marathon jacket from 2009? Well, with the high cost of anything related to the “Boston” . You should see how many people are wearing these jackets at Logan airport, the weekend of the race. It’s kind of a badge of honor. People will walk up to you out of the blue and [...]

Asthma

Another piece of the asthma puzzle

Just got my lung biopsy report back from SARP study, are starting to paint a clearer picture of why my asthma is so severe. If there’s any good news in all this, it’s that there’s a new drug in the pipeline that could possibly help people like me who have this cellular abnormality. Dr Wenzel [...]

Asthma

Training update– weeks 8 & 9

Wait a minute…….. what the heck happened to weeks 1-7? Well, weeks 1 and 2, (January 1st-8th) I was in the hospital(on a ventilator). Week 3, I was too wiped out from said hospitalization to do any exercise. Week 4, I actually managed to pull off a 10 mile walk. Weeks 5&6 , (January 27th- [...]

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Today, Friday , September 3rd, 2010

Symptoms: Breathing pretty good today.

Fitness: Walking a total of 13 miles today. 11 miles this morning in San Francisco and 2 miles this evening in Crockett.

Other News: Next race is only 4 weeks away!

FEV1:41% O2 SAT: ⇧ 98% Peak Flows:⇧ 87%

Categories

Ive managed to stay out of HERE


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199
whole days

Approaching a record number of days that Ive been hospital -free!

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HFCS
82
days ago

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