I’m phenotyped

Posted on 2 CommentsPosted in Asthma, asthma phenotypes, Sally Wenzel, SARP, Severe asthma

Thanks to the efforts of the SARP researchers and the new era of severe asthma phenotyping, my particular flavor of the disease has finally been described. Drum roll please………………… It’s called “Long duration Th2 low/mast cell high with remodeling“, asthma. It probably sounds like a bunch of googly gob, but about half the people with […]

Can smart peak flow meters help prevent asthma attacks?

Posted on 2 CommentsPosted in Asthma, Asthma exacerbations, FEV1, Gadgets, Peak Flows

As a person with life long chronic asthma, my exacerbations usually develop slowly, sometimes over several days affording me enough time to take some type of pre-preemptive measure. But last week I experienced an acute asthma attack that came on instantly and out of nowhere. At the time, we were in the sleepy little town […]

Downsizing

Posted on 3 CommentsPosted in Asthma

Makes me kinda sad seeing this (makes my wallet sad too, $150 down the drain). This is the race I was supposed to do in October. It would have been my 10th full marathon, a nice round number to retire with. I registered for it way back in January on the heels of last years […]

23rd time’s a charm

Posted on 3 CommentsPosted in Arterial Blood gases, Asthma, Bipap, Intubation, Nebulizer treatments, Shortness of Breath

No..not as in hospitalizations ( I’ve lost count of those,) I’m talking about my 23rd endotracheal intubation with mechanical ventilation for respiratory failure. You heard that right, Ive been intubated 23 times now! (as of 11-23-2016, make that a whopping 34 times). That’s gotta be some kind of weird worlds record or something. How is […]

Survive an attack, register for a marathon

Posted on 7 CommentsPosted in Asthma, asthma advocacy, asthma awareness, Exercise&Fitness, Fitness Walking, Marathons, People, Places and Events, Recovering from severe asthma attack, Walking

Makes sense to me…… Get really sick, spend time in the hospital, come home exhausted and depressed, and then immediately sign up to do a 26.2 mile foot race. But then again I’m probably not your typical chronic lunger. After finishing my 8th marathon back in 2011, I had basically shrugged off the notion of […]

Let’s build some Bridges

Posted on 5 CommentsPosted in Asthma

As a Respiratory Therapist, Ive worked with the entire age range of asthmatics, from infants to adults, both in the hospital setting and out. As a health advocate, I try my best to educate the public, including health professionals, about asthma and the various aspects of living with a chronic lung disease in general. I’m […]

PFTs Du Jour

Posted on 1 CommentPosted in Asthma, Asthma medical tests, COPD, FEV1, Peak Flows, Pulmonary function tests, SARP

For those interested, here are my latest spirometry results from last weeks SARP follow-up visit at UCSF last week. It’s kind of a bad-good-bad then good-good-bad story. Starting with the not so good news… my initial FEV1 was only 28% (.83 liters) this time. That’s down 4 percentage points from last years visit. The good […]

I feel your pain

Posted on 5 CommentsPosted in Air-trapping, Asthma, asthma advocacy, Asthma Support Group, blogging, COPD Awareness, Dyspnea, Shortness of Breath, Wheeze

Feeling like shit right now? Is your asthma, COPD or other breathing disorder flaring up or bothering you more than usual? Were you searching the web for asthma related stuff as a way to cope with your own crappy breathing? Is that how you reached my blog? Well I can tell you that you’re not […]