No matter how well I take care of myself

Posted on 8 CommentsPosted in Asthma, asthma awareness, Asthma Education, Asthma exacerbations, Asthma hospitalization, Asthma Medications, Intubation, Severe asthma, Ventilator

Not sure what’s going on. Since 2003 when my asthma started to get really bad, it was for the most part, relatively stable and the symptoms tolerable for several months at a time. Even the exacerbations, while still very severe on occasion, were somewhat predictable. Likewise, my lung function, specifically my FEV1 and FVC, though […]

ICU delirium got a hold on me

Posted on 3 CommentsPosted in Asthma, asthma awareness, Asthma hospitalization, Bipap, Dyspnea, Intubation, intubation, Shortness of Breath, Steroids ( prednisone), Ventilator

If you’ve suffered from asthma for any length of time and/or have been hospitalized for it, no doubt you’ve experienced some of the not so pleasant side effects of corticosteroids, or possible psychosis from being in the intensive care unit for any length of time. Being in and out of the hospital and on steroids […]

What’s it like to be intubated for asthma?

Posted on 8 CommentsPosted in Arterial Blood gases, Asthma, Asthma hospitalization, Hospitals, Intubation, Ventilator

The search term “Intubation” comes up fairly often on my blog’s traffic logs, so I thought I take a moment to write about it. Heaven knows I’ve had my share of them(35 times as of Mar 2017). I truly hope your asthma never gets to point where you actually need to be intubated for it, […]

I’m phenotyped

Posted on 2 CommentsPosted in Asthma, asthma phenotypes, Sally Wenzel, SARP, Severe asthma

Thanks to the efforts of the SARP researchers and the new era of severe asthma phenotyping, my particular flavor of the disease has finally been described. Drum roll please………………… It’s called “Long duration Th2 low/mast cell high with remodeling“, asthma. It probably sounds like a bunch of googly gob, but about half the people with […]

Can smart peak flow meters help prevent asthma attacks?

Posted on 2 CommentsPosted in Asthma, Asthma exacerbations, FEV1, Gadgets, Peak Flows

As a person with life long chronic asthma, my exacerbations usually develop slowly, sometimes over several days affording me enough time to take some type of pre-preemptive measure. But last week I experienced an acute asthma attack that came on instantly and out of nowhere. At the time, we were in the sleepy little town […]

Downsizing

Posted on 3 CommentsPosted in Asthma

Makes me kinda sad seeing this (makes my wallet sad too, $150 down the drain). This is the race I was supposed to do in October. It would have been my 10th full marathon, a nice round number to retire with. I registered for it way back in January on the heels of last years […]

23rd time’s a charm

Posted on 3 CommentsPosted in Arterial Blood gases, Asthma, Bipap, Intubation, Nebulizer treatments, Shortness of Breath

No..not as in hospitalizations ( I’ve lost count of those,) I’m talking about my 23rd endotracheal intubation with mechanical ventilation for respiratory failure. You heard that right, Ive been intubated 23 times now! (as of 3-17-2017, make that 35 times). That’s gotta be some kind of weird worlds record or something. How is this even […]