SARP ends, but the research continues

Posted on 1 CommentPosted in Asthma, asthma awareness, Sally Wenzel, SARP, Severe asthma, University of Pittsburgh Asthma Institute

Though still in operation, the NIH funded Severe Asthma Research Program (SARP), which started 14 years ago, is now officially closed to new enrollees. Sadly, it looks like SARP will be the last large observational study of severe asthmatics, at least for the foreseeable future. The good news, is that there’s still a lot of […]

The Wonderful Side effects of frequent asthma flares

Posted on Leave a commentPosted in Asthma, Asthma medical tests, Asthma Medications, Asthma treatments, Exacerbation Recovery, Secondary conditions, Steroids ( prednisone)

Think a severe asthma exacerbation only effects your lungs? Check out the photos below. Each photo was taken appx 2-3 weeks after being discharged from the hospital after a serious asthma flare. Dehydrated? Perhaps, but interestingly, most people retain water while on prednisone. The thing about frequent severe asthma exacerbations and frequent use of steroids, […]

Techno-Patient

Posted on Leave a commentPosted in Arterial Blood gases, Asthma, Hospitals, Other medical tests, Respiratory Therapist

The Hospital I go to when my asthma gets really bad, recently upgraded their electronic charting and patient care computer systems. They’re using the EPIC system, which includes a patient portal via the web. It’s pretty cool because things like labs and xray results are made available to patient almost as soon as they’re available […]

Im an A hole when Im sick

Posted on 7 CommentsPosted in Asthma, Dyspnea, Exacerbation Recovery, Hospitals, Recovering from severe asthma attack, Severe asthma, Shortness of Breath

Most people will tell you Im one of the sweetest, most caring people you’ll ever meet. But make no mistake, when Im recovering from a bad asthma exacerbation, I can become an obnoxious asshole… I get anxious, I get irritable, I get angry and nasty all at the same time. I snap at everyone and […]

Steve – 9, Lung disease—a big fat ZERO!

Posted on 3 CommentsPosted in Achievements, Asthma, Fitness Walking, Fitness/Training Update, Marathon Training, Marathon walking, Portland Marathon, Post Marathon recovery, Walking, walking events

This might sound corny, but I feel like Ive just been reborn. On Oct 5th I finished my 9th marathon at the Portland Marathon. If you’ve been reading my updates, this was a scheme I had hatched while hospitalized back in July. I was feeling incredibly down at the time and was curious to see […]

Self Observations: Severe Asthma and Endurance walking

Posted on Leave a commentPosted in Asthma, Asthma Symptoms, Exercise&Fitness, Fitness Walking, Fitness/Training Update, Marathon Training, Marathon walking, Portland Marathon, training progress, Walking

Ive been doing endurance walks now for about 10 years, and because of the severity of my lung disease, I often experience significant symptom exacerbations afterwards. Well something quite unexpected and encouraging has happened recently during the peak of this current training cycle, or should I say…didn’t happen! On 3 separate occasions over a 4 […]

Training update Aug 2014

Posted on 1 CommentPosted in Asthma, Fitness Walking, Fitness/Training Update, lung disease and exercise, Marathon Training, Marathon walking, Marathons, Portland Marathon, Shortness of Breath, training progress, Walking, walking events

Dang… I haven’t written one of the training updates in years. Trying to get in shape to do this race has been challenging to say the least. It’s been 3 years since Ive attempted something crazy like this and I almost forgot just how grueling it can be when you don’t have any functional lung […]

The impatient patient

Posted on 5 CommentsPosted in Asthma, Asthma exacerbations, Asthma hospitalization, Intubation, Marathon Training, Marathon walking, Portland Marathon, Steroids ( prednisone), Ventilator

Oh goody, another post about asthma exacerbation recovery. After being discharged from the hospital only 3 days ago, it’s probably a little early to be writing about this topic again, but something is definitely different this time around. The recovery seems excruciatingly slow( gee, where have I heard that before?). In my mind I should […]

Are ER Asthma Treatment Protocols changing?

Posted on 3 CommentsPosted in Asthma, asthma awareness, Asthma Education, Asthma Symptoms, Asthma treatments, Doctor appointments, Hospitals, Respiratory Therapist, Respiratory Therapy

Is it just me or are things changing? Being a frequently flyer in the ER asthma world, Ive noticed more and more changes over the years in the ER treatment protocols for acute asthma flares. Most notably are the changes in dosage and frequency of administering steroids and certain bronchodilators. When it comes to IV […]