From the Archives

For the 112th time

Gee I haven't written about a good ole hospital admission for quite sometime. Since I just completed my 112th, maybe now's a good time. The theme for this latest admission is fun with steroid psychosis and why IV fluids should always be monitored closely. The fun begins The trigger to the flare leading ...

Read More

Do you know when it's time to go in?

The idea for this post came to me during the middle a recent severe exacerbation. Actually, it was the same exacerbation that put me in the hospital for 12 days, for which I am still recovering. Foremost on my mind during an asthma excerbation,is the question....how bad will it ...

Read More

Recovering Albuter-holic

Rick, the author of the Respiratory Therapy Cave , wrote to me the other day talking about what it was like growing up with severe asthma. One of the things he mentioned that I thought was kinda funny, was how he used to sleep with an inhaler ...

Read More

The photos say it all

What is Status Asthmaticus? Lucky me, on July 23th 2014, I survived my 115th hospital admission and 20th intubation for asthma. I didn't think I was that sick, but apparently I was.

Read More

The not so glamorous side of being a severely asthmatic marathon walker

Yeah, I made it to Boston , Ive walked the Rome and Portland marathons a couple times, and yeah Ive been written up in lots of walk magazines and medical journals, but I think a lot of people who hear about me or read my blog, assume that ...

Read More

The Recovery phases of a severe asthma exacerbation

Suffice it to say, I wasn't exactly a happy camper when I wrote that Dr W helped me get through this awful time by reassuring me that what anguish I was experiencing was a normal response after suffering such a severe flare up, and that my complaints were ...

Read More

Not just Asthma, Severe Asthma!

Not to downplay the heartache and suffering that people with milder forms of asthma have to sometimes contend with; obviously it's a big deal when you can't breath, but the healthcare establishment needs to stop lumping all asthmatics together under the same general heading of "asthma".This is a problem because ...

Read More

Asthma Purgatory

Whenever the weather is bad, so is my asthma. My lungs are extremely sensitive to humidity in the air and/or the slightest changes in barometric changes. Changes in the climate, changes in the seasons, you name it.... my lungs will react to it. I'm a walking weather ...

Read More

O2 sats and asthma attacks revisited

After 9 years of blogging about life with severe asthma, I still get a lot of traffic from people searching the web for specific information about O2 saturation and how it relates to asthma or the severity of an asthma attack. So for those who might have missed my earlier ...

Read More

Venous Access Port ( VAP)

After an estimated 104 hospital admissions for asthma and probably 10 times that number of IV sticks, I have no peripheral venous access left. A half a century of IV steroids has rendered my veins useless. The only place they can get lines in, are in my knuckles and toes. ...

Read More

Double Whammy Asthma

I often find it frustrating that here I am, a life long asthmatic, a Respiratory therapist and an asthma educator, yet still unable in normal conversation, to describe what makes my type of asthma so different from others. When asked to define asthma in general, I usually give the ...

Read More

Just another week in the life of a hardcore asthmatic

I usually don't post about my hospital experiences because its not a subject I like to re-live. Its an unwanted , terrifying , but necessary part of my life. When it happens , I just try to get through it and then I try to blank it out ...

Read More

Buried Alive

The photo is from the movie "Awake", but what happened to me last September was not fiction.. It was the real deal! Back on Sept 20th of 2010, I was admitted to the hospital for a severe asthma exacerbation(so what else is new). About 8 hours into the exacerbation, my ...

Read More

Asthma guilt trip

How many times have you had a really bad asthma flare, but had serious trepidations about going to the emergency room for treatment? How many times have you felt guilty that maybe you weren't sick enough to be admitted to the hospital? Well, that's pretty much been the ...

Read More

Questions for Dr. Wenzel

Last week after finding out just how damaged my lungs really are, the only thing going through my head was..WHY? All of the assumptions I had made about my asthma throughout the years, suddenly didn't seem to make sense anymore. I was beginning to wonder if I really ever ...

Read More

Propofol

Propofol

This is a picture of me on a ventilator last year during a severe asthma exacerbation ( what they call status asthmaticus). See the little IV bottle inside the blue rectangle with the milky looking stuff inside ? That's Propofol ! Also known as ...

Read More

15 months Intubation Free!

It feels good to brag about something positive for a change. This week marks 15 whole months since Ive had to have a tube shoved down my windpipe in order to breath. Ive had zero, what I would call "critical condition" type hospitalizations in that time period as well. Granted, ...

Read More

My Trip to Churchill

My journey begins in Winnipeg (my very first time crossing the Canadian border). Just 2 days earlier there had been a pretty bad snow storm and potential weather delays at the airport were a big concern.Fortunately things worked out and I got there on time without any problems. ...

Read More

Racewalking for Science

As part of the Shortness of breath self-Management research study that I'm involved in over at UCSF, every 3 months I have to go into the lab where they check my PFTs and then have me do a series of physical fitness exercises. Sometimes they have me get ...

Read More

Lung Lingo

Yes it's true, we asthmatics have a language all our own.   Here's my current list. Please feel free to add new words and definitions to it .   Yellow Zoning When someone is stuck in their yellow breathing zone. Cradle Asthmatic A person who has had asthma since earlier childhood or ...

Read More

Milo 1994-2013
Written by

Farewell Sweet Angel

The oldest of our 4 cats who shared his live with us for almost 19 years, was given back to god at 10:10 am February 13th,2013 Milo was a proud and fiercely independent little Persian kitty that we adopted from the SF SPCA in 1996 and became a huge part of our family unit. Milo […]

February 14, 2013 5
beach1
Written by

Guest Post by Kerri

It’s a real pleasure to have my good friend and asthma advocacy partner Kerri MacKay here as my first guest poster. Thank you Kerri!   For as long as I can remember, defining moments in my life have had some sort of musical connection to them. To use two very cool album titles in the […]

January 26, 2013 13
Written by

What’s in a number?

I still have a hard time believing it, especially the way Ive been feeling this past year, but during my most recent Pulmonary function test a few weeks ago, I blew an incredible FEV1 of 50%! OK, blowing an FEV1 of only half of normal may not sound like a big deal, but it’s the […]

January 9, 2013 6
100_4085
Written by

My Trip to Churchill

My journey begins in Winnipeg (my very first time crossing the Canadian border). Just 2 days earlier there had been a pretty bad snow storm and potential weather delays at the airport were a big concern.Fortunately things worked out and I got there on time without any problems. Within minutes of stepping off the plane […]

November 20, 2012 11
Written by

12 month Update

It’s almost 2013 and I just realized I really haven’t posted a breathing status update in almost a year. Probably the biggest change that I’m noticing, is that my dyspnea is getting more pronounced and more constant. Where I used get 8 or so “good” breathing hours a day, I’m down now to less than […]

November 8, 2012 6
03-polar-bear-lg
Written by

The next great adventure

This one doesn’t involve marathon walking , or music, or sightseeing through an ancient city. Nope, this adventure is totally different. I’m going on a Polar Bear expedition in Churchill Manitoba in north eastern Canada. Okay, so maybe the word expedition is a slight exaggeration. I guess a more appropriate description would be “Tour”, but […]

October 24, 2012 5
Bassist extraordinaire
Written by

Bassist Extraordinaire…. Rick Shaw

A couple of Saturdays ago I had the pleasure of meeting one of my favorite bassists of all time, Rick Shaw. Rick has worked with all kinds of recording artists and is also the bassist for Johnny Mathis and Gordon Goodwin’s Big Phat Band, my favorite jazz band. As a novice bass player, it’s difficult […]

October 4, 2012 3
Written by

Temporary Reprieve

Earlier this week I had my long awaited lung transplant evaluation at Stanford University. Dr Weill and the other team members were awesome. I learned a lot and am satisfied with the outcome. In fact I think everyone involved in my care to this point has learned something. Very few asthmatics are ever referred for […]

August 18, 2012 2
Written by

Lung Transplant Evaluation Approved.

It’s been way too long since I posted to my blog. Been doing most of my updating via my asthma support group on Facebook. So anyways, after 6 months of going around and around with the insurance company, they have finally agreed to pay for a full lung transplant evaluation. My appointment is scheduled for […]

July 21, 2012 10
asthma search phrases
Written by

So,what brings you here?

Over the years Ive built up a pretty loyal following of friends who are interested in what Ive been up to and how I’m doing health wise , but the bulk of visitors to this blog still get here while searching for answers to asthma related questions or topics. The following (in order of popularity) […]

March 26, 2012 8
london7 002
Written by

UK Adventure

Some photos of my recent trip to England. Had a great time and my lungs held out brilliantly. Traveled all over the central and western part of the country from Portsmouth to Liverpool. While in London I had the pleasure of meeting long time blogger Susannah and her husband Julian. How cool is that? Can’t […]

December 6, 2011 8
vap 018
Written by

Venous Access Port ( VAP)

After an estimated 104 hospital admissions for asthma and probably 10 times that number of IV sticks, I have no peripheral venous access left. A half a century of IV steroids has rendered my veins useless. The only place they can get lines in, are in my knuckles and toes. So rather than endure hours […]

November 2, 2011 1
curly 1
Written by

My New Old Passion

It’s actually not a new passion, more like the reigniting of an on again, off again love affair Ive had since early childhood. I’m referring of course to the bass guitar, or for that matter any other heavy string instrument. My introduction into the world of making music actually began at the age of 8. […]

August 2, 2011 0
Page 5 of 49« First...«345678»...Last »

Racewalking

Winston