From the Archives
Thank you,  I  try very hard to give that impression.

But you look so healthy

How many of you with asthma problems can relate..... "But you don't look sick", or "Your sats are OK" or " "Maybe it's just anxiety" or "If you're so sick, how are you able to exercise and do normal things?" As a person with very severe lung disease who publicly ...

Read More

Don't forget the upper body!

If you've spent much time reading my blog, you've probably figured out that Im a huge promoter of daily exercise for people with lung disease. My favorite fitness activity of course, is distance walking. Aerobic exercise such as walking, uses large muscle groups to move at a steady, rhythmic pace. ...

Read More

Exercise like your life depends on it

Everyone knows how important daily exercise is for maintaining good health, but I believe this is even more true when you suffer from a chronic breathing disorder such as asthma or COPD. And I don't make that claim lightly. For 10 years now, Ive demonstrated through my own example, what ...

Read More

What's it like to be intubated for asthma?

The search term "Intubation" comes up fairly often on my blog's traffic logs, so I thought I take a moment to write about it. Heaven knows I've had my share of them. I truly hope your asthma never gets to point where you actually need to be intubated for it, ...

Read More

Im not crazy, I swear

I feel your pain

Feeling like shit right now? Is your asthma, COPD or other breathing disorder flaring up or bothering you more than usual? Were you searching the web for asthma related stuff as a way to cope with your own crappy breathing? Is that how you reached my blog? Well ...

Read More

The Recovery phases of a severe asthma exacerbation

Suffice it to say, I wasn't exactly a happy camper when I wrote that Dr W helped me get through this awful time by reassuring me that what anguish I was experiencing was a normal response after suffering such a severe flare up, and that my complaints were ...

Read More

Do you know when it's time to go in?

The idea for this post came to me during the middle a recent severe exacerbation. Actually, it was the same exacerbation that put me in the hospital for 12 days, for which I am still recovering. Foremost on my mind during an asthma excerbation is the question....how bad will ...

Read More

O2 sats and asthma attacks revisited

After 9 years of blogging about life with severe asthma, I still get a lot of traffic from people searching the web for specific information about O2 saturation and how it relates to asthma or the severity of an asthma attack. So for those who might have missed my earlier ...

Read More

Double Whammy Asthma

I often find it frustrating that here I am, a life long asthmatic, a Respiratory therapist and an asthma educator, yet still unable in normal conversation, to describe what makes my type of asthma so different from others. When asked to define asthma in general, I usually give the ...

Read More

6 times a day

I had planned to write a post about my nebulizer treatment routine, but then I thought what the heck... I'll just video it! The point Im trying to make in the clip, is that the daily nebbing routine for many of us is a lot more time consuming than one ...

Read More

Not just Asthma, Severe Asthma!

Not to downplay the heartache and suffering that people with milder forms of asthma have to sometimes contend with; obviously it's a big deal when you can't breath, but the healthcare establishment needs to stop lumping all asthmatics together under the same general heading of "asthma".This is a problem because ...

Read More

For the 112th time

Gee I haven't written about a good ole hospital admission for quite sometime. Since I just completed my 112th, maybe now's a good time. The theme for this latest admission is fun with steroid psychosis and why IV fluids should always be monitored closely. The fun begins The trigger to the flare leading ...

Read More

Recovering Albuter-holic

Rick, the author of the Respiratory Therapy Cave , wrote to me the other day talking about what it was like growing up with severe asthma. One of the things he mentioned that I thought was kinda funny, was how he used to sleep with an inhaler ...

Read More

Asthma Purgatory

Whenever the weather is bad, so is my asthma. My lungs are extremely sensitive to humidity in the air and/or the slightest changes in barometric pressure. Changes in the climate, changes in the seasons, you name it.... my lungs will react to it. I'm a walking weather ...

Read More

Venous Access Port ( VAP)

After an estimated 104 hospital admissions for asthma and probably 10 times that number of IV sticks, I have no peripheral venous access left. A half a century of IV steroids has rendered my veins useless. The only place they can get lines in, are in my knuckles and toes. ...

Read More

The not so glamorous side of being a severely asthmatic marathon walker

Yeah, I made it to Boston , Ive walked the Rome and Portland marathons a couple times, and yeah Ive been written up in lots of walk magazines and medical journals, but I think a lot of people who hear about me or read my blog, assume that ...

Read More

Just another week in the life of a hardcore asthmatic

I usually don't post about my hospital experiences because its not a subject I like to re-live. Its an unwanted , terrifying , but necessary part of my life. When it happens , I just try to get through it and then I try to blank it out ...

Read More

Buried Alive

The photo is from the movie "Awake", but what happened to me last September was not fiction.. It was the real deal! Back on Sept 20th of 2010, I was admitted to the hospital for a severe asthma exacerbation(so what else is new). About 8 hours into the exacerbation, my ...

Read More

Asthma guilt trip

How many times have you had a really bad asthma flare, but had serious trepidations about going to the emergency room for treatment? How many times have you felt guilty that maybe you weren't sick enough to be admitted to the hospital? Well, that's pretty much been the ...

Read More

Questions for Dr. Wenzel

Last week after finding out just how damaged my lungs really are, the only thing going through my head was..WHY? All of the assumptions I had made about my asthma throughout the years, suddenly didn't seem to make sense anymore. I was beginning to wonder if I really ever ...

Read More

Written by

Self Observations: FEV1 and Breathlessness

Always curious about things, earlier this week I did a series of FEV1 measurements on myself. I wanted to see if my dyspnea(shortness of breath)which waxes and wanes throughout the day, would correlate with my FEV1 readings. I took the first reading early in the morning when my breathing is at its best. I blew […]

May 14, 2014 3
Asthma obits Google images
Written by

Survivors Guilt

Every time I hear about someone who died from asthma, especially when it’s a child, I can’t help but feel just a little guilty for living as long as I have. Despite having one of the lowest asthma mortality rates in the world, 3500-4000 people still die from asthma each year in the United States, […]

May 9, 2014 2
Written by

The positives

Even though it sucks living with severe asthma, things could be worse.. much worse. I’m fortunate on so many fronts. I tend to post a lot about the negatives, so here are a few positives: * Despite more than 100 hospitalizations and some close calls with this disease, Ive managed to survive 59 years and […]

April 28, 2014 4
bg_fbpo
Written by

SARP Newsletter

The Severe Asthma Research Program’s first Newsletter. Well worth reading! A Breath of Fresh Air Related Posts:A SARP’in we will go…….In other news this month.But you look so healthyHow low can it go?Don’t forget the upper body!Treatment overload

March 19, 2014 0
anxiety
Written by

The “A” word

Im talking about the other A word…. ANXIETY As a Respiratory Therapist and a lifelong asthmatic, I know all too well that anxiety and breathlessness usually go hand in hand. Still, I often catch myself getting a little defensive when a medical person abruptly brings up the A word and asthma in the same sentence, […]

March 7, 2014 15
Dr Wenzel and I
Written by

SARP III complete

Well, almost. The study actually lasts for 3 years, but the bulk of the testing can usually be completed in 4 half day visits. After that, it’s annual follow ups and the occasional online questionnaire. Because I had a separate clinic appointment with Dr Wenzel, and because there has to be a 3 week space […]

February 21, 2014 1
Hosp 10-2013
Written by

Not just Asthma, Severe Asthma!

Not to downplay the heartache and suffering that people with milder forms of asthma have to sometimes contend with; obviously it’s a big deal when you can’t breath, but the healthcare establishment needs to stop lumping all asthmatics together under the same general heading of “asthma”.This is a problem because severe asthma is not the […]

February 16, 2014 2
Written by

Self observations : Steriod insomnia

For probably the first time in 50 years of cycling on and off of steroids, it came to me in a flash last night, that the reason I can’t sleep when on steroids, is not because I have too much steroid in me, but rather not enough. For the past 14 days Ive been in […]

February 12, 2014 0
pillow ,Dia
Written by

Lung Art

I thought this was so clever. A few months ago a good friend of mine from Toronto, asked me if I could she use one of the images I had of some mast cells and lung tissue that was collected from my airways during an earlier bronchoscopy. She was going to somehow use them for […]

January 9, 2014 1
January 4, 2014 1
100_6270
Written by

Prednisone Skin

Just one of the many joys of taking prednisone. I know chronic steroid use can cause paper thin skin ( what we call “crepe paper” skin in the biz), which then makes you more susceptible to spontaneous bruising, but Ive noticed lately that if I brush up against almost any surface, no matter how gently, […]

November 15, 2013 16
header for AI
Written by

UMPC Asthma Support Group

Starting this month and every month going forward, I’ll be posting the minutes from the UMPC (University of Pittsburgh Medical Center) Severe Asthma Support Group conference calls. The calls are sponsored by the Asthma Institute at UMPC and moderated by Dr Sally Wenzel Pulmonologist and Deborah A. Gillman PhD, Clinical Psychologist. If you have difficult […]

November 6, 2013 0
Written by

For the 112th time

Gee I haven’t written about a good ole hospital admission for quite sometime. Since I just completed my 112th, maybe now’s a good time. The theme for this latest admission is fun with steroid psychosis and why IV fluids should always be monitored closely. The fun begins The trigger to the flare leading up to […]

October 23, 2013 6
Page 5 of 51« First...«345678»...Last »
Have a question about asthma, or just wanna share your experiences with this disease ?
Drop me a line

Leading the Research

Advocasy

Racewalking

Winston