From the Archives

Dupilumab

3 and half years ago I wrote about the exciting news regarding a game changing drug called Dupilumab. Dr Wenzel and others believed that this drug was going to revolutionize the way certain forms of severe asthma are treated. Well, very soon now I'll get to try it out myself! ...

Read More

Thank you,  I  try very hard to give that impression.

But you look so healthy

How many of you with asthma problems can relate..... "But you don't look sick", or "Your sats are OK" or " "Maybe it's just anxiety" or "If you're so sick, how are you able to exercise and do normal things?" As a person with very severe lung disease who publicly ...

Read More

Don't forget the upper body!

If you've spent much time reading my blog, you've probably figured out that Im a huge promoter of daily exercise for people with lung disease. My favorite fitness activity of course, is distance walking. Aerobic exercise such as walking, uses large muscle groups to move at a steady, rhythmic pace. ...

Read More

Exercise like your life depends on it

Everyone knows how important daily exercise is for maintaining good health, but I believe this is even more true when you suffer from a chronic breathing disorder such as asthma or COPD. And I don't make that claim lightly. For 10 years now, Ive demonstrated through my own example, what ...

Read More

What's it like to be intubated for asthma?

The search term "Intubation" comes up fairly often on my blog's traffic logs, so I thought I take a moment to write about it. Heaven knows I've had my share of them. I truly hope your asthma never gets to point where you actually need to be intubated for it, ...

Read More

Im not crazy, I swear

I feel your pain

Feeling like shit right now? Is your asthma, COPD or other breathing disorder flaring up or bothering you more than usual? Were you searching the web for asthma related stuff as a way to cope with your own crappy breathing? Is that how you reached my blog? Well ...

Read More

The Recovery phases of a severe asthma exacerbation

Suffice it to say, I wasn't exactly a happy camper when I wrote that

Read More

Do you know when it's time to go in?

The idea for this post came to me during the middle a recent severe exacerbation. Actually, it was the same exacerbation that put me in the hospital for 12 days, for which I am still recovering. Foremost on my mind during an asthma excerbation is the question....how bad will ...

Read More

O2 sats and asthma attacks revisited

After 9 years of blogging about life with severe asthma, I still get a lot of traffic from people searching the web for specific information about O2 saturation and how it relates to asthma or the severity of an asthma attack. So for those who might have missed my earlier ...

Read More

Double Whammy Asthma

I often find it frustrating that here I am, a life long asthmatic, a Respiratory therapist and an asthma educator, yet still unable in normal conversation, to describe what makes my type of asthma so different from others. When asked to define asthma in general, I usually give the ...

Read More

6 times a day

I had planned to write a post about my nebulizer treatment routine, but then I thought what the heck... I'll just video it! The point Im trying to make in the clip, is that the daily nebbing routine for many of us is a lot more time consuming than one ...

Read More

Not just Asthma, Severe Asthma!

Not to downplay the heartache and suffering that people with milder forms of asthma have to sometimes contend with; obviously it's a big deal when you can't breath, but the healthcare establishment needs to stop lumping all asthmatics together under the same general heading of "asthma".This is a problem because ...

Read More

For the 112th time

Gee I haven't written about a good ole hospital admission for quite sometime. Since I just completed my 112th, maybe now's a good time. The theme for this latest admission is fun with steroid psychosis and why IV fluids should always be monitored closely. The fun begins The trigger to the flare leading ...

Read More

Recovering Albuter-holic

Rick, the author of the Respiratory Therapy Cave , wrote to me the other day talking about what it was like growing up with severe asthma. One of the things he mentioned that I thought was kinda funny, was how he used to sleep with an inhaler ...

Read More

Asthma Purgatory

Whenever the weather is bad, so is my asthma. My lungs are extremely sensitive to humidity in the air and/or the slightest changes in barometric pressure. Changes in the climate, changes in the seasons, you name it.... my lungs will react to it. I'm a walking weather ...

Read More

Venous Access Port ( VAP)

After an estimated 104 hospital admissions for asthma and probably 10 times that number of IV sticks, I have no peripheral venous access left. A half a century of IV steroids has rendered my veins useless. The only place they can get lines in, are in my knuckles and toes. ...

Read More

The not so glamorous side of being a severely asthmatic marathon walker

Yeah, I made it to Boston , Ive walked the Rome and Portland marathons a couple times, and yeah Ive been written up in lots of walk magazines and medical journals, but I think a lot of people who hear about me or read my blog, assume that ...

Read More

Just another week in the life of a hardcore asthmatic

I usually don't post about my hospital experiences because its not a subject I like to re-live. Its an unwanted , terrifying , but necessary part of my life. When it happens , I just try to get through it and then I try to blank it out ...

Read More

Buried Alive

The photo is from the movie "Awake", but what happened to me last September was not fiction.. It was the real deal! Back on Sept 20th of 2010, I was admitted to the hospital for a severe asthma exacerbation(so what else is new). About 8 hours into the exacerbation, my ...

Read More

Written by

Plan B

Yesterday I completed my final “test” walk in a series of trial walks that started a month ago to see if training for a future marathon might be doable. The plan was to do the Portland marathon this October ( my 3rd time) and then hopefully obtain a qualifying time to enter Boston in 2014 […]

May 6, 2013 0
Written by

Just call me Bubble Boy.

Exposure to this …… And this…. Is there anything Im not allergic too? I think I need to live in one of these… So two hospitalization in just two months has me and my Pulmonologists scratching our heads as to what it is that keeps causes my asthma to spiral out of control so often. […]

April 30, 2013 4
Written by

Self Service

Just one of the advantages of being an asthmatic Respiratory Therapist, though the hospital staff might not be so thrilled. They get a little grouchy when the patients start adjusting ventilator settings 🙂 Now for the serious educational part: The rational for using non -invasive bipap therapy during a severe asthma exacerbations is simply to […]

April 8, 2013 9
Written by

Musical friends hard at work

My friend Don is up for a Juno award next month. Couldn’t have happened to a nicer guy. If you haven’t yet, check out his music 2013 has also been a really busy year for friend and bass mentor Rick Shaw. He just completed an 8 show tour in Japan with the Gordon Goodman’s Big […]

March 27, 2013 2
Written by

3 Good Weeks

For the life of me I can’t figure out why my breathing was so good from those last 2 weeks in January all the way till Feb 3rd. When I say “good” I don’t mean like a return to normal lung function or even a significant decrease in symptoms, but still what I experienced during […]

March 16, 2013 5
Duke
Written by

Duke …aka snuggle bug

When it rains it pours. Our hearts have never been so broken for so long. Why does this keep happening to the ones that bring us so much joy. It’s barely been 4 weeks since Milo’s passing, and now this morning we had to put to asleep yet another one of out beloved cats. His […]

March 14, 2013 5
Written by

Yes, I still walk.

Haven’t trained for or entered any races, or even taken any walks greater than 5 miles in almost 2 years now. However,come rain or shine, crappy breathing or not, I still get out and walk 3 to 4 miles almost every single day. My main motivation for doing so nowadays, is mostly to preserve what […]

February 19, 2013 8
Written by

Farewell Sweet Angel

The oldest of our 4 cats who shared his live with us for almost 19 years, was given back to god at 10:10 am February 13th,2013 Milo was a proud and fiercely independent little Persian kitty that we adopted from the SF SPCA in 1996 and became a huge part of our family unit. Milo […]

February 14, 2013 5
Written by

Guest Post by Kerri

It’s a real pleasure to have my good friend and asthma advocacy partner Kerri MacKay here as my first guest poster. Thank you Kerri!   For as long as I can remember, defining moments in my life have had some sort of musical connection to them. To use two very cool album titles in the […]

January 26, 2013 13
Written by

What’s in a number?

I still have a hard time believing it, especially the way Ive been feeling this past year, but during my most recent Pulmonary function test a few weeks ago, I blew an incredible FEV1 of 50%! OK, blowing an FEV1 of only half of normal may not sound like a big deal, but it’s the […]

January 9, 2013 6
Written by

My Trip to Churchill

My journey begins in Winnipeg (my very first time crossing the Canadian border). Just 2 days earlier there had been a pretty bad snow storm and potential weather delays at the airport were a big concern.Fortunately things worked out and I got there on time without any problems. Within minutes of stepping off the plane […]

November 20, 2012 11
Written by

12 month Update

It’s almost 2013 and I just realized I really haven’t posted a breathing status update in almost a year. Probably the biggest change that I’m noticing, is that my dyspnea is getting more pronounced and more constant. Where I used get 8 or so “good” breathing hours a day, I’m down now to less than […]

November 8, 2012 6
Written by

The next great adventure

This one doesn’t involve marathon walking , or music, or sightseeing through an ancient city. Nope, this adventure is totally different. I’m going on a Polar Bear expedition in Churchill Manitoba in north eastern Canada. Okay, so maybe the word expedition is a slight exaggeration. I guess a more appropriate description would be “Tour”, but […]

October 24, 2012 5
Page 7 of 51« First...«5678910»...Last »
Have a question about asthma, or just wanna share your experiences with this disease ?
Drop me a line

Asthma Tools

Community

/

Research

Advocasy

Racewalking

Winston