Thanks to the efforts of the SARP researchers and the new era of severe asthma phenotyping, my particular flavor of the disease has finally been described. Drum roll please………………… It’s called “Long duration Th2 low/mast cell high with remodeling“, asthma. It probably sounds like a bunch of googly gob, but about half the people with … Read moreI’m phenotyped
As a person with life long chronic asthma, my exacerbations usually develop slowly, sometimes over several days affording me enough time to take some type of pre-preemptive measure. But last week I experienced an acute asthma attack that came on instantly and out of nowhere. At the time, we were in the sleepy little town … Read moreCan smart peak flow meters help prevent asthma attacks?
Exposure to this …… And this…. Is there anything Im not allergic too? I think I need to live in one of these… So two hospitalization in just two months has me and my Pulmonologists scratching our heads as to what it is that keeps causes my asthma to spiral out of control so often. … Read moreJust call me Bubble Boy.
Had my bi monthly follow up visit at the UCSF Chest Clinic on Wednesday. This is the latest plan: Asthma Care Plan –We tweaked my current asthma action plan whereby I won’t come into the hospital for treatment unless my peak flows drops below 250 and remains there for more than 24hours. The way it … Read moreAsthma Laundry List
After taking Xolair injections for a full 12 months, the verdicts in…..It’s not helping me. In fact, I’ve been sicker this year than in most. We gave it a good try, but at a thousand dollars a pop, I can’t really justify continuing the injections. It’s one of those drugs that seems to work wonders … Read moreDidn’t care for Xolair