Didn’t I just blog about my 133rd hospitalization for asthma? Well make that 134 now. This is getting F’ing ridiculous. This latest flare wasn’t triggered by some massive chest infection or the flu, but by a simple cold….aka Rhinovirus. Id been feeling pretty decent in recent weeks, but just like millions of other people during … Read moreA common cold with not so common asthma
Never let your guard down or be fooled into thinking that you have this disease under total control. No matter how good the drugs are or how long you’ve been symptom free or at your baseline, asthma can lurk in the shadows for months, years, even decades, then WHAM! just when you think the tables … Read moreNever trust asthma
If you’ve been following my medical journey, you might recall that last summer I began the evaluation process for lung transplant at UCSF medical center. The conclusion of that evaluation came 6 months later in Dec 2016. At that time I was deemed a suitable candidate for transplant, but that my listing with UNOS would … Read moreNo transplant for me, but that’s OK.
Need proof of just how expensive asthma can be? These are my hospital bills for the last two years, coming in at just over 2.1 million and change. 2016 2015 Related Posts:A common cold with not so common asthma104th trip to the slammer for AsthmaThe Recovery phases of a severe asthma exacerbationNumber 96 Number 95My … Read more2 years, 2 million dollars
After a year long collaboration with some talented engineering friends of mine, the app we’ve been working on is finally available for I phone with Android following shortly. Introducing Ourbreeze . The first Asthma app that monitors multiple environmental indices, all of which can trigger or worsen symptoms in people with lung disease. You can … Read moreThe asthma app is finally here.
How many of you with asthma problems can relate? “But you don’t look sick”, or “Your sats are OK” or ” “Maybe it’s just anxiety” or “If you’re so sick, how are you able to exercise and do normal things?” As a person with very severe lung disease who publicly flaunts his fitness achievements, Ive … Read moreBut you look so healthy
Yes, another update about treatment options. Things seem to be changing at a lightening pace now and it’s making my head explode. Too much for an over-thinker like me to think about. Gotta slow down and literally catch my breath. So my 3rd hospitalization and 5th intubation in just the first 4 months of this … Read moreTreatment overload
Some people put them in the dishwasher, some clean them in sink, some soak them in vinegar, some use ultrasonic cleaning devices……. I just boil mine on the stove. At last count I have about 20 reusable nebulizer sets to go with the 5 portable compressors that I keep in various places around the house … Read moreNebulizer Stew
Everyone knows how important daily exercise is for maintaining good health, but I believe this is even more true when you suffer from a chronic breathing disorder such as asthma or COPD. And I don’t make that claim lightly. For 10 years now, Ive demonstrated through my own example, what a positive impact aerobic exercise … Read moreExercise like your life depends on it
Makes sense to me…… Get really sick, spend time in the hospital, come home exhausted and depressed, and then immediately sign up to do a 26.2 mile foot race. But then again I’m probably not your typical chronic lunger. After finishing my 8th marathon back in 2011, I had basically shrugged off the notion of … Read moreSurvive an attack, register for a marathon
I had planned to write a post about my nebulizer treatment routine, but then I thought what the heck… I’ll just video it! The point Im trying to make in the clip, is that the daily nebbing routine for many of us is a lot more time consuming than one would think. Managing asthma, COPD, … Read more6 times a day
As a Respiratory Therapist, Ive worked with the entire age range of asthmatics, from infants to adults, both in the hospital setting and out. As a health advocate, I try my best to educate the public, including health professionals, about asthma and the various aspects of living with a chronic lung disease in general. I’m … Read moreLet’s build some Bridges
Feeling like shit right now? Is your asthma, COPD or other breathing disorder flaring up or bothering you more than usual? Were you searching the web for asthma related stuff as a way to cope with your own crappy breathing? Is that how you reached my blog? Well I can tell you that you’re not … Read moreI feel your pain