My first 7 weeks on Dupilumab

A lot of people have been asking me, do you feel any better since starting the drug? Because my asthma is so severe it’s really hard to tell which, if any, of the medications I’m currently taking ( including daily prednisone and semi daily azithromycin, and now Dupilumab), is having an impact on my breathing, […]

And so it begins….Dupilumab

After waiting nearly 17 months with one setback after another and texting a friend saying “I’ll believe it the day the drug is actually inside my body” , well now I can actually say that, because today, Nov 6th 2017, I finally received my first two injections of a new anti IL-4 IL-13 biologic drug […]

#131

I haven’t written about an asthma hospitalization since my 104th admission back in May of 2011, which by my calculations makes a total of 27 more severe exacerbations requiring hospitalization in just a 6 year period. That’s just plain crazy, which is why Im writing about this topic again. So here goes #131 This particular […]

No transplant for me, but that’s OK.

If you’ve been following my medical journey, you might recall that last summer I began the evaluation process for lung transplant at UCSF medical center. The conclusion of that evaluation came 6 months later in Dec 2016. At that time I was deemed a suitable candidate for transplant, but that my listing with UNOS would […]

Dupilumab

3 and half years ago I wrote about the exciting news regarding a game changing drug called Dupilumab. Dr Wenzel and others believed that this drug was going to revolutionize the way certain forms of severe asthma are treated. Well, very soon now I’ll get to try it out myself! This past week I received […]

New asthma drugs in the Pipeline

While doing some research and advocating for myself in hopes of obtaining the anti-IL drug, Dupilumab (on a compassionate use basis), I discovered that there are several other biologics in this new generation of targeted asthma therapy drugs that are in various stages of development. Here’s a list of some of the new biologics coming […]

No matter how well I take care of myself

Not sure what’s going on. Since 2003 when my asthma started to get really bad, it was for the most part, relatively stable and the symptoms tolerable for several months at a time. Even the exacerbations, while still very severe on occasion, were somewhat predictable. Likewise, my lung function, specifically my FEV1 and FVC, though […]

Dupilumab , A Game Changer ?

When I heard the news today that there’s a new drug in the pipeline for severe asthma, I about fell out of my chair. When you hear one of the world’s most respected asthma researchers proclaiming that this new drug is a “game changer”, you can’t help but feel a little more optimistic about the […]