Its what he DIDN’T say

If you’ve been dealing with complicated or persistent asthma for a long time, your doctor has no doubt given you the not so surprising…. “I don’t know what else we can do for you” talk. My doctors ran out of ideas years ago, so Im pretty used to hearing it, but at last weeks hospital […]

What’s up with the lung transplant eval?

Ive been posting fairly frequently, either here or on my Facebook page, about what’s been going on with my asthma treatment in the conventional sense, but a lot of people have been asking me what’s up with the lung transplant stuff. Things like, am I still considering it? Am I a potential candidate? Hows the […]

Treatment overload

Yes, another update about treatment options. Things seem to be changing at a lightening pace now and it’s making my head explode. Too much for an over-thinker like me to think about. Gotta slow down and literally catch my breath. So my 3rd hospitalization and 5th intubation in just the first 4 months of this […]

Evolving treatment plan

Things seems to be changing by the day. As of March 24th 2016, the latest plan is to put me back on Xolair until I can either obtain the biologic drug, Dupilumab, or until lung transplant becomes the only option left to extend my life. Sanofi/Regeneron, the makers of Dupilumab, need to get FDA permission […]

The OTHER Breathinsteven

His human name is Steve Ferkau, and his story is truly amazing. Related Posts:Its what he DIDN’T sayWhat’s up with the lung transplant eval?Treatment overloadEvolving treatment planThe meetingThe SARP experience

The meeting

Before I begin, let me preface this post by saying that I haven’t made up my mind as to whether I would even want lung transplant surgery, should it ever get to that point. I wanted however, to see what some of my Pulmonologists views were on this subject, and to get a feel for […]