I’m phenotyped

Posted on 2 CommentsPosted in Asthma, asthma phenotypes, Sally Wenzel, SARP, Severe asthma

Thanks to the efforts of the SARP researchers and the new era of severe asthma phenotyping, my particular flavor of the disease has finally been described. Drum roll please………………… It’s called “Long duration Th2 low/mast cell high with remodeling“, asthma. It probably sounds like a bunch of googly gob, but about half the people with […]

A SARP’in we will go…….

Posted on 1 CommentPosted in Asthma, asthma advocacy, asthma awareness, asthma phenotypes, Asthma research, Doctor appointments, People, Places and Events, Sally Wenzel, SARP, Severe asthma

In a few weeks I’m off to Pittsburgh again to participate in SARP III. The focus of SARP III is to study the stability of clinical and molecular phenotypes of severe Asthma. Basically they’re looking for the bio signature of certain mast cells in the serum and plasma and whether they are maintained over the […]

Asthma Phenotypes

Posted on Leave a commentPosted in Asthma, asthma awareness, Asthma Education, asthma phenotypes, Sally Wenzel, SARP, Severe asthma

Physician researchers at the University of Pittsburgh Asthma Institute at UPMC are now using molecular and genetic information to identify asthma phenotypes and customize therapies in order to improve patient outcomes. If you have asthma and would like to contribute to this on going research, please consider volunteering for

Dupilumab , A Game Changer ?

Posted on 4 CommentsPosted in Asthma, asthma awareness, Asthma Medications, asthma phenotypes, Asthma research, Sally Wenzel, Severe asthma

When I heard the news today that there’s a new drug in the pipeline for severe asthma, I about fell out of my chair. When you hear one of the world’s most respected asthma researchers proclaiming that this new drug is a “game changer”, you can’t help but feel a little more optimistic about the […]

Lunch with Sally

Posted on 7 CommentsPosted in Asthma, asthma awareness, Asthma Education, Asthma research, People, Places and Events, Sally Wenzel, SARP

Had the great fortune of having lunch last week with one of my most favorite people in the whole world. Dr Wenzel was in town for the annual AAAAI convention in San Francisco and managed to squeeze in some private time with me in between her busy presentation schedule. Although we keep in close contact […]

Bound for Beantown

Posted on 7 CommentsPosted in Asthma, Asthma research, Boston Marathon, Exercise&Fitness, Inspiration, Marathon walking, Marathons, People, Places and Events, Walking, walking events

( read more) Well, after all the training, all the planning, and all the hoping like crazy that my sore foot will somehow heal in time and that my lungs won’t act up too bad, for better or worse, to finish or not, the big daddy of race weekends is finally here! Saturday night I […]

Hospital stay #97

Posted on 27 CommentsPosted in Arterial Blood gases, Asthma, Asthma exacerbations, Asthma hospitalization, Asthma medical tests, Asthma Medications, Bipap, Dyspnea, Exacerbation Recovery, Intubation, Nebulizer treatments, oxygen, Peak Flows, Pulmonary function tests, Respiratory Therapy, Sally Wenzel, Shortness of Breath, Ventilator, Wheeze

Battle scars: 4 failed arterial line attempts and 12 failed IV attempts. I have no veins left and my radial arteries are so scarred up from previous insertions, that it’s virtually impossible to get access unless they put a central line in. Very frustrating for the doctors and very painful for me. I’d been having […]

Closing the loop on Asthma–Sally Wenzel

Posted on 1 CommentPosted in Asthma, Asthma research, Inspiration, People, Places and Events, Sally Wenzel, SARP

Found this interesting and informative article about Dr Sally Wenzel, and why she decided to get involved in severe asthma research. It gets a little technical in the middle , but well worth the read. The more I hear about this amazing women and all of her contributions to the study of this disease, the […]

Im going to Pennsylvania to be studied.

Posted on 11 CommentsPosted in Asthma, Asthma medical tests, Asthma research, People, Places and Events, Pulmonary function tests

SARP for short), is a collaborative research effort involving 4 different Universities, each adding their own research specialties to the mix. The basic goal of the SARP is to determine what make “severe” asthma different than the moderate of mild forms of the disease. The information they gain by studying people like me, is added […]