The do- another- race verdict is in.

After spending the last several months testing the waters to see how my body and lungs might react to doing another race, the verdict is finally in. Assuming I can work out some nagging foot issues…..I’m going for it! On Oct 14th, with my lung function the lowest its ever been, I hope to attempt […]

Steroids, less is always better

Ive always had a hunch, but now there seems to be more and more scientific evidence that less is better when it comes to our favorite poison…corticosteroids! ( ie, prednisone pills and IV steroids.) And that applies not only to daily maintenance doses, but also to the treatment of severe exacerbations that require emergency hospital […]

A common cold with not so common asthma

Didn’t I just blog about my 133rd hospitalization for asthma? Well make that 134 now. This is getting F’ing ridiculous. This latest flare wasn’t triggered by some massive chest infection or the flu, but by a simple cold….aka Rhinovirus. Id been feeling pretty decent in recent weeks, but just like millions of other people during […]

My first 7 weeks on Dupilumab

A lot of people have been asking me, do you feel any better since starting the drug? Because my asthma is so severe it’s really hard to tell which, if any, of the medications I’m currently taking ( including daily prednisone and semi daily azithromycin, and now Dupilumab), is having an impact on my breathing, […]

My 133rd hospitalization for asthma

My 133rd hospitalization occurred on 10-9-2017. The trigger wasn’t the usual environmental allergies or resp infection, this time it was smoke from wildfires that have been devastating portions of northern California the past couple weeks. I woke that morning (4am) to a house full of smoke . It was so bad, we had to put […]

Flavor of the month

My asthma and the various sub-labels used to describe it seems to change day by day. First it was ACOS ( Asthma COPD overlap Syndrome), but because of it’s broad description it seems to be loosing favor with my doctors. One of my Pulmonologists even calls my asthma “Steve Gaudet Asthma” because to him it […]

#131

I haven’t written about an asthma hospitalization since my 104th admission back in May of 2011, which by my calculations makes a total of 27 more severe exacerbations requiring hospitalization in just a 6 year period. That’s just plain crazy, which is why Im writing about this topic again. So here goes #131 This particular […]

Never trust asthma

Never let your guard down or be fooled into thinking that you have this disease under total control. No matter how good the drugs are or how long you’ve been symptom free or at your baseline, asthma can lurk in the shadows for months, years, even decades, then WHAM! just when you think the tables […]

Sally doing her thing

Im referring to Dr Sally Wenzel of course. I never get tired of listening to her speak and educating others on the subject of asthma, particularly severe asthma. So here’s a full hour of Sally goodness! The audience in the video are physicians, but even if you’re not a medical person, if you’ve lived with […]

Aerogen Nebulizer Gets an A+

Last week I was in the hospital again for my asthma resulting in yet another intubation. As sometimes happens, a few hours after coming off the ventilator I began to tire out and get tight again. The re-started interval neb treatments weren’t cutting it anymore, so they decided to put me back on continuous nebs. […]

I almost forgot who I am

I’m so much more than just the quirky little dude with bad lungs. I’m the original badass asthmatic. I made the words “fitness” and “lung disease” sound cool together. Im the first and only person with really severe asthma ever to finish the Boston marathon. Not once…but 3 times. Im also one who doesn’t gets […]

2 years, 2 million dollars

Need proof of just how expensive asthma can be? These are my hospital bills for the last two years, coming in at just over 2.1 million and change. 2016 2015 Related Posts:A common cold with not so common asthma104th trip to the slammer for AsthmaThe Recovery phases of a severe asthma exacerbationNumber 96 Number 95My […]

Bipap trial

It’s too soon to tell if it’s helping, but 4 weeks ago I started on a trial of home Bipap. Essentially Im sleeping hooked up to a non -invasive ventilator. I’ve been using a full face mask which Im gradually getting used to. Right now I’m averaging about 4- 5 hours per night on the […]