104th trip to the slammer for Asthma

Posted on 11 CommentsPosted in Asthma, Asthma exacerbations, Exacerbation Recovery, Intubation, intubation, People, Places and Events, Recovering from severe asthma attack, Severe asthma, Ventilator

Greetings from the 14th floor isolation room a top the Moffitt building at UCSF medical center in San Francisco. Your guest host for tonight’s show is..well, me of course. I’ll be discussing how much fun it is being a patient in the hospital with severe asthma. Just happy to be alive, I was hoping to […]

Number 96

Posted on 9 CommentsPosted in Arterial Blood gases, Asthma, Asthma exacerbations, Asthma hospitalization, Asthma Symptoms, Asthma treatments, Bipap, Exacerbation Recovery, Nebulizer treatments, oxygen, Respiratory Therapy, Steroids ( prednisone)

Thanks everyone for all your kind emails while I was in the slammer. The hospital volunteer who brought the messages to my bedside, said he’d never delivered so many messages to one person , and that I must be pretty popular:-) Sorry I couldn’t respond to each one individually, but I read all one of […]

Number 94….a Bad One

Posted on 12 CommentsPosted in Arterial Blood gases, Asthma, Asthma exacerbations, Asthma hospitalization, Asthma medical tests, Asthma Medications, Asthma Symptoms, Asthma treatments, Bipap, Dyspnea, Exacerbation Recovery, Intubation, Nebulizer treatments, oxygen, Respiratory Therapy, Shortness of Breath, Ventilator, Wheeze

…………..As in my 94th hospital admission for asthma. I had been feeling really crumby most of that weekend prior. My dyspnea was increasing and my peak flows were gradually trending downward. By Sunday evening, it was pretty evident that this flare-up was getting worse, not better. I bolused myself with 60mg prednisone and decided I […]

Recording my life for science……(and $125.00 cash)

Posted on 3 CommentsPosted in Air-trapping, Asthma, Asthma research, Exercise&Fitness

This chart represents my dyspnea levels ( shortness of breath levels ), recorded daily for the past 330 days , and is part of a year long research study I’m involved in that deals with dyspnea, it’s effect on ones ability to exercise, and the most effective ways of providing education and support to those […]

Racewalking for Science

Posted on 4 CommentsPosted in Asthma, Asthma medical tests, Asthma research, Other medical tests, People, Places and Events, Pulmonary function tests, Racewalking, Shortness of Breath, Walking

As part of the Shortness of breath self-Management research study that I’m involved in over at UCSF, every 3 months I have to go into the lab where they check my PFTs and then have me do a series of physical fitness exercises. Sometimes they have me get on the treadmill and walk uphill until […]

New Reseach study

Posted on 2 CommentsPosted in Asthma, Asthma & Exercise, Asthma research, Exercise&Fitness, Fitness Walking

Next week I’ll be taking part in yet another clinical research project at UCSF. This time it’s a study about “dyspnea” ( perceived shortness of breath), related to chronic lung disease , and the efficacy of various self -management techniques , including exercise. They want to find out whether it’s better to teach patients these […]