Transplant candidate rules

In addition to a litany of medical tests, UCSF requires all of their lung transplant candidates to follow a strict set of rules, including having a caregiver plan in place during the initial recovery process. They require you to have someone with you around the clock while staying at a local hotel for a period … Read moreTransplant candidate rules

SARP ends, but the research continues

Though still in operation, the NIH funded Severe Asthma Research Program (SARP), which started 14 years ago, is now officially closed to new enrollees. Sadly, it looks like SARP will be the last large observational study of severe asthmatics, at least for the foreseeable future. The good news, is that there’s still a lot of … Read moreSARP ends, but the research continues

SARP III complete

Well, almost. The study actually lasts for 3 years, but the bulk of the testing can usually be completed in 4 half day visits. After that, it’s annual follow ups and the occasional online questionnaire. Because I had a separate clinic appointment with Dr Wenzel, and because there has to be a 3 week space … Read moreSARP III complete

Mixing pleasure with business

With almost 2 hours to kill in between medical appointments last week over at UCSF, I decided to put that otherwise wasted time to good use and do something Ive always wanted to…. I racewalked the Kezar stadium! That’s right…. I racewalked 5.5 miles around the track, and I did it while wearing jeans and … Read moreMixing pleasure with business

72 hours of hell.

I always try to write a little something about each and every hospitalization Ive experienced, but this is one Id just as soon forget about. In total , I spent 7 days in the hospital, 6 of them in the Intensive care unit, 3 of those days spent on continuous Bipap with an Albuterol bleed-in … Read more72 hours of hell.

Long week of Medical stuff

Monday, Visit with Dyspnea specialist Dr.Susan Jansen She spent a generous amount of time with me (almost 2 hours) and I actually learned quite a bit. I was impressed by her knowledge of pulmonary mechanics and the neuro-mechanisms of dyspnea . Because she knew I was an RT by trade, she was able to speak … Read moreLong week of Medical stuff

Asthma Laundry List

Had my bi monthly follow up visit at the UCSF Chest Clinic on Wednesday. This is the latest plan: Asthma Care Plan –We tweaked my current asthma action plan whereby I won’t come into the hospital for treatment unless my peak flows drops below 250 and remains there for more than 24hours. The way it … Read moreAsthma Laundry List