Comments on: The nights are the worse. http://breathinstephen.com/the-nights-are-the-worse/ Diary of a severely asthmatic wannabe endurance athlete Sat, 31 Jul 2010 13:26:39 +0000 hourly 1 http://wordpress.org/?v=3.0.1 By: beth http://breathinstephen.com/the-nights-are-the-worse/comment-page-1/#comment-1292 beth Sat, 07 Nov 2009 23:01:53 +0000 http://breathinstephen.com/?p=8874#comment-1292 I haven't tried it yet, I have just had some experiences that made it sound useful. And everything I have read so far has people staying on drugs, just using less. And I am a traditional medicine person -- hence the questions and looking for people that might have tried it. I haven't tried it yet, I have just had some experiences that made it sound useful. And everything I have read so far has people staying on drugs, just using less. And I am a traditional medicine person — hence the questions and looking for people that might have tried it.

]]> By: Joey http://breathinstephen.com/the-nights-are-the-worse/comment-page-1/#comment-1291 Joey Sat, 07 Nov 2009 11:33:42 +0000 http://breathinstephen.com/?p=8874#comment-1291 Hi Stephen, The nights are always the worst, because it's dark, everyone is asleep and I just can't breathe. I totally understand what you're saying and as always, your blog has educated many in the difficulties of living and surviving with a disease like this. As others have also said, and you have pointed out, I've got strong opinon on methods such as the Buteyko method, I even blogged about it a while back. Makes me angry that they take people's money and yet can acually make them so much more worse than before because their methodd just doesn't work for severe and brittle asthmatics. Stay well Joey Hi Stephen,
The nights are always the worst, because it's dark, everyone is asleep and I just can't breathe. I totally understand what you're saying and as always, your blog has educated many in the difficulties of living and surviving with a disease like this.

As others have also said, and you have pointed out, I've got strong opinon on methods such as the Buteyko method, I even blogged about it a while back. Makes me angry that they take people's money and yet can acually make them so much more worse than before because their methodd just doesn't work for severe and brittle asthmatics.

Stay well
Joey

]]> By: Olive http://breathinstephen.com/the-nights-are-the-worse/comment-page-1/#comment-1286 Olive Fri, 06 Nov 2009 22:32:28 +0000 http://breathinstephen.com/?p=8874#comment-1286 Hi Stephen, I can sympathise with the night time symtoms. I call it night time madness as I never know what makes it worse and why it gets so bad. My drs tries switching my pred dose to the evening but it didnt make much difference at night other than keeping me wide awake but my asthma was still bad and not taking them in the morning meant i struggled during the day. Like some others have said i favor traditional medicine over alternative therapies. mainkly because I have tried some of them and suffered the consequences of them so am very sceptical now. take care Olive Hi Stephen,
I can sympathise with the night time symtoms. I call it night time madness as I never know what makes it worse and why it gets so bad. My drs tries switching my pred dose to the evening but it didnt make much difference at night other than keeping me wide awake but my asthma was still bad and not taking them in the morning meant i struggled during the day.

Like some others have said i favor traditional medicine over alternative therapies. mainkly because I have tried some of them and suffered the consequences of them so am very sceptical now.

take care Olive

]]> By: breathinstephen http://breathinstephen.com/the-nights-are-the-worse/comment-page-1/#comment-1285 breathinstephen Fri, 06 Nov 2009 18:13:33 +0000 http://breathinstephen.com/?p=8874#comment-1285 Hey Gayle, I know you have pretty severe asthma too. If you get the opportunity, you should consider taking part in one of the SAPR studies around the country. The more asthmatics they can recruit, the better the understanding they'll have about how to better treat this sucky disease. Now here I go pitching advice....lol You keep on keeping on too! Hey Gayle, I know you have pretty severe asthma too. If you get the opportunity, you should consider taking part in one of the SAPR studies around the country. The more asthmatics they can recruit, the better the understanding they'll have about how to better treat this sucky disease. Now here I go pitching advice….lol

You keep on keeping on too!

]]> By: GayleMyrna http://breathinstephen.com/the-nights-are-the-worse/comment-page-1/#comment-1284 GayleMyrna Fri, 06 Nov 2009 17:41:27 +0000 http://breathinstephen.com/?p=8874#comment-1284 Stephen, thanks again for your very, very educational posts. Like you, I have strong opinions in favor of traditional medicine rather than alternative options. Plus, once you have a chronic medical condition everyone wants to provide one with well-meaning but un-asked for advice. I just got an e-mail yesterday from a relative informing me of the Buteyko method, which of course I've read about for years. I replied something to the effect that I don't have the energy, time, or money to try the many, many, many treatments people suggest, some of which might even be harmful. I prefer to stick to what I've learned from my physicians, legitimate medical websites, and RTs. Anyhow, keep on keeping on...! GayleMyrna Stephen, thanks again for your very, very educational posts. Like you, I have strong opinions in favor of traditional medicine rather than alternative options. Plus, once you have a chronic medical condition everyone wants to provide one with well-meaning but un-asked for advice. I just got an e-mail yesterday from a relative informing me of the Buteyko method, which of course I've read about for years. I replied something to the effect that I don't have the energy, time, or money to try the many, many, many treatments people suggest, some of which might even be harmful. I prefer to stick to what I've learned from my physicians, legitimate medical websites, and RTs.
Anyhow, keep on keeping on…!
GayleMyrna

]]> By: breathinstephen http://breathinstephen.com/the-nights-are-the-worse/comment-page-1/#comment-1283 breathinstephen Fri, 06 Nov 2009 16:17:32 +0000 http://breathinstephen.com/?p=8874#comment-1283 Hi and thanks for stopping by. I have to let you know, that as an RT by profession and a life-long asthmatic, I have very strong opinions on alternative therapies, especially the Buteyko method! While it may sometimes work for people with very mild asthma, severe asthma is a totally different disease. Encouraging people to slow they're breathing down and take less drugs, could be sending a potentially deadly message to them. Not to mention the hundreds of dollars one has to fork over, for this so-called treatment. Just my opinion, but when it comes to this disease, I'll put my faith into traditional science. Having said that, Im glad its working for you. Hi and thanks for stopping by. I have to let you know, that as an RT by profession and a life-long asthmatic, I have very strong opinions on alternative therapies, especially the Buteyko method! While it may sometimes work for people with very mild asthma, severe asthma is a totally different disease. Encouraging people to slow they're breathing down and take less drugs, could be sending a potentially deadly message to them. Not to mention the hundreds of dollars one has to fork over, for this so-called treatment. Just my opinion, but when it comes to this disease, I'll put my faith into traditional science.

Having said that, Im glad its working for you.

]]> By: beth http://breathinstephen.com/the-nights-are-the-worse/comment-page-1/#comment-1282 beth Fri, 06 Nov 2009 15:23:03 +0000 http://breathinstephen.com/?p=8874#comment-1282 First , thanks for you blog. Even though my asthma is not as severe as yours, I have found a number of your post to be very helpful. It is so hard to explain how angry asthma makes me feel. I also have diabetes. That was easy to adjust to , it rarely gets in my way. My sisters and I have just started reading about the buteyko method from Russia. US studies seem to indicate that it does nothing for the numbers ( peak flow) , but the people that practice this breathig method use less drugs and have less hospital visits. I am interested because I have found that if I can slow down my breathing and get control, asthma attacks are shorter. Have you tried the Buteyko method? two things like so far - 1) they don't tell you to get off your drugs and 2) this is not a miracle scure -- it takes 5 to 6 months of practice. here's hopong last night was peaceful First , thanks for you blog. Even though my asthma is not as severe as yours, I have found a number of your post to be very helpful. It is so hard to explain how angry asthma makes me feel. I also have diabetes. That was easy to adjust to , it rarely gets in my way.

My sisters and I have just started reading about the buteyko method from Russia. US studies seem to indicate that it does nothing for the numbers ( peak flow) , but the people that practice this breathig method use less drugs and have less hospital visits. I am interested because I have found that if I can slow down my breathing and get control, asthma attacks are shorter. Have you tried the Buteyko method?

two things like so far – 1) they don't tell you to get off your drugs and 2) this is not a miracle scure — it takes 5 to 6 months of practice.

here's hopong last night was peaceful

]]> By: marsh http://breathinstephen.com/the-nights-are-the-worse/comment-page-1/#comment-1277 marsh Fri, 06 Nov 2009 02:57:35 +0000 http://breathinstephen.com/?p=8874#comment-1277 stephen i swear we were seperated at birth????? i kept tellin my self that it was the ghost in my house that kept wakin me up at 333 am i know half of the devil but nope it was and always has been just my struggle for air but i have found something that seems to work for me it a whole body vibration machine and it seems to relax me mabe give it a try!!!!!! at least your dr.s will give you something to help you sleep mine say you'll forget to breath????? i'mean that happened once but at least i got some rest 6 weeks on life support but your damed if you do !!! hope you sleep tonight marsh p.s. did you know it was a full moon i never sleep during full moooooooons ??????? marsh stephen i swear we were seperated at birth????? i kept tellin my self that it was the ghost in my house that kept wakin me up at 333 am i know half of the devil but nope it was and always has been just my struggle for air but i have found something that seems to work for me it a whole body vibration machine and it seems to relax me mabe give it a try!!!!!! at least your dr.s will give you something to help you sleep mine say you'll forget to breath????? i'mean that happened once but at least i got some rest 6 weeks on life support but your damed if you do !!! hope you sleep tonight marsh p.s. did you know it was a full moon i never sleep during full moooooooons ??????? marsh

]]> By: Heather http://breathinstephen.com/the-nights-are-the-worse/comment-page-1/#comment-1276 Heather Fri, 06 Nov 2009 00:38:52 +0000 http://breathinstephen.com/?p=8874#comment-1276 Being up at night can get really lonely, not to mention not being able to breathe. I feel for ya. I know sometimes it's contraindicated for asthma, and it's pretty obvious but have you tried Benadryl? I find it just knocks me out when I get really bad. Being up at night can get really lonely, not to mention not being able to breathe. I feel for ya.

I know sometimes it's contraindicated for asthma, and it's pretty obvious but have you tried Benadryl? I find it just knocks me out when I get really bad.

]]> By: Elisheva http://breathinstephen.com/the-nights-are-the-worse/comment-page-1/#comment-1275 Elisheva Thu, 05 Nov 2009 23:46:07 +0000 http://breathinstephen.com/?p=8874#comment-1275 Sorry you have to experience that. Evenings are supposed to be the most relaxing part of the day. I agree with Kerri. Good thing you have a blog to vent in. Asthma totally sucks. Sorry you have to experience that. Evenings are supposed to be the most relaxing part of the day. I agree with Kerri. Good thing you have a blog to vent in. Asthma totally sucks.

]]> By: breathinstephen http://breathinstephen.com/the-nights-are-the-worse/comment-page-1/#comment-1273 breathinstephen Thu, 05 Nov 2009 19:42:51 +0000 http://breathinstephen.com/?p=8874#comment-1273 Thanks Danielle, I suppose it I could pin it down to just exercising too much during the day, I would stop exercising all together. Honestly though, I thinks it's just the disease catching up to me. It's a amazing Ive gotten by this long without have severe symptoms ALL the time. I need new lungs, but don't want a transplant. Thanks Danielle, I suppose it I could pin it down to just exercising too much during the day, I would stop exercising all together. Honestly though, I thinks it's just the disease catching up to me. It's a amazing Ive gotten by this long without have severe symptoms ALL the time. I need new lungs, but don't want a transplant.

]]> By: Danielle http://breathinstephen.com/the-nights-are-the-worse/comment-page-1/#comment-1272 Danielle Thu, 05 Nov 2009 19:06:50 +0000 http://breathinstephen.com/?p=8874#comment-1272 This sounds absolutely horrible. I also have a switch that goes off in the evenings, at around 8PM and I'll regularly feel tight from then on for no apparent reason. I have thought that for me it's related to exercise because I have worse nights if I have run that day or have been running a lot in general, though I may need a few more nights to base my theory on ; ) So, I seriously doubt I experience any of this at anywhere near the intensity you do, but I can see that we've got a similar pattern going on. Sorry you go through this night after night, it's a really crappy disease. Danielle This sounds absolutely horrible. I also have a switch that goes off in the evenings, at around 8PM and I'll regularly feel tight from then on for no apparent reason. I have thought that for me it's related to exercise because I have worse nights if I have run that day or have been running a lot in general, though I may need a few more nights to base my theory on ; )

So, I seriously doubt I experience any of this at anywhere near the intensity you do, but I can see that we've got a similar pattern going on. Sorry you go through this night after night, it's a really crappy disease.

Danielle

]]> By: kerri http://breathinstephen.com/the-nights-are-the-worse/comment-page-1/#comment-1271 kerri Thu, 05 Nov 2009 18:30:53 +0000 http://breathinstephen.com/?p=8874#comment-1271 Heck yes :) Keep it up! Heck yes :) Keep it up!

]]> By: breathinstephen http://breathinstephen.com/the-nights-are-the-worse/comment-page-1/#comment-1270 breathinstephen Thu, 05 Nov 2009 17:43:05 +0000 http://breathinstephen.com/?p=8874#comment-1270 Thanks Kerri, Another reason why blogs are theraputic eh? Thanks Kerri, Another reason why blogs are theraputic eh?

]]> By: kerri http://breathinstephen.com/the-nights-are-the-worse/comment-page-1/#comment-1269 kerri Thu, 05 Nov 2009 17:32:40 +0000 http://breathinstephen.com/?p=8874#comment-1269 Steve, Thanks for sharing this with us. I think most of us really have no idea what this disease is like for you, and I appreciate the insight. Hugs, --Kerri Steve,
Thanks for sharing this with us. I think most of us really have no idea what this disease is like for you, and I appreciate the insight.
Hugs,
–Kerri

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