…..Well, not exactly. I’m still getting my fix through steroid inhalers, but as far as the prednisone goes…..I’m totally off it ! ( at least for the time being.) I was on a low dose of it continuously for 14 months, but decided to stop, as it didn’t seem to prevent the more severe flare-ups.

It’s now been a full 2 weeks since I tapered off that poison, and so far, so good .My adrenals seems to be working fine, doing what they’re supposed to do. My peak flow readings, though a little lower overall, seem to be less wobbly (variable) and have been consistently in the green zone. My dyspnea level has been for the most part…mild. About the only negative thing I can think of, is that my neck and back and shoulder pain have increased 10 fold , but that was to be expected . Too me though, pain is the lesser of the two evils and I can deal with that.

I guess only time will tell how this is all going to effect me. One things for sure, from now on I’m only taking the drug when I get really really sick, and then, just long enough to recover.

Again with the disclaimer…This is a personal choice I made after discussing it with my doctors.

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4 thoughts on “I’m Steroid free

  1. Jay says:

    It’s good to hear….and see! I’ve been watching your stats and they are noticeably better.

  2. Joey says:

    Ah, the joys of coming off the evil candy, I totally know what you’re going through as I went through the same when I was 21 and five years on, I don’t regret it apart from when I’m really sick and the docs are trying to get me to take it because they don’t realise that a short course isn’t short at all as it means a 1mg a week taper down and that just ain’t fun.

    Good for you!

  3. This post is really good. It is a breath of fresh air, no pun intended, to hear someone promoting staying drug free as a choice. Good going.

  4. BeckyG says:

    Wow! Amazing! Don’t push yourself though, and do consider going back on a small dose if you have withdrawl symptoms. I’m so envious though (I’ve been on high dose pred for 11.5 years now) and salute you for having the courage to try without the pred, and congratulate you on your success! Excellent!

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