Severe Asthma: The Part-Time Edition

Back in 2018, I wrote a post titled “23/7” where I talked about how managing my severe asthma felt like a full-time job. I don’t want to jinx myself, but fast forward to today, and while life with this disease is still challenging, it’s become more like a part-time job rather than a fulltime one thanks to new medications, including biologics, that have given me more “good” breathing hours.

The New Normal
Don’t get me wrong, living with very severe asthma is still a daily battle, but the introduction of biologics, which I’ve been on now for over two years, has improved my quality of life. These new drugs have reduced the frequency and severity of my asthma exacerbations, allowing me to enjoy more moments of normalcy. Instead of spending most of my day tethered to nebulizers and inhalers and doctors ‘offices, I now have more time to focus on other aspects of my life. In 2024 I was only hospitalized one time. Compared to past years, that’s pretty amazing.

Medication Management
While I still rely on a combination of medications, not as many now and the side effects are more manageable. The biologics have minimized my need for high doses of steroids, which means fewer side effects like muscle cramps and mood swings. I still experience some discomfort, but it’s a small price to pay for the increased freedom and better breathing.

Balancing Act
Asthma management is still a balancing act, but it’s no longer all-consuming. I can plan my days with more flexibility, knowing that I won’t be sidelined by severe symptoms as often. This has allowed me to re-engage with activities I love, like walking, spending time outdoors and traveling without the constant fear of an asthma flare-up.

The Role of Fitness Walking
One of the key factors that has contributed to my longevity and overall well-being is my commitment to fitness walking. Over the years, maintaining a regular walking routine has not only helped me stay physically active but has also played a significant role in managing my asthma. Most people with my severity of lung disease rarely live as long as I have, and I believe that my dedication to fitness walking has been a crucial part of my journey. It has improved my lung capacity, boosted my overall health, and provided a sense of accomplishment and control over my condition. I’ve completed 11 full marathons (walking them) all over the world and completed a 9 day hike in Italy. My walking accomplishments are what actually started this blog nearly 20 years ago. It’s more than just a daily stroll; it’s become a way of life, a defiance, proving that a person with severely reduced lung function can do what healthy athletes can.

The Emotional Toll
The emotional toll of living with asthma is still present, but it’s a little less overwhelming. The anxiety and stress that come with intubations and lengthy ICU stays have lessened, thanks to the stability provided by the new treatments. I still have really tough days, but they seem to be fewer in number.

Looking Forward
While asthma will always be a part of my life, its become less of a defining feature. As severe as my disease is, the advancements in treatment have given me hope and a renewed sense of control over my health. I look forward to continuing this journey with a bit more ease and a lot more optimism.

Wishing you and yours, a very Happy and Healthy Holiday season??