After a year long collaboration with some talented engineering friends of mine, the app we’ve been working on is finally available for I phone with Android following shortly.
Introducing Ourbreeze . The first Asthma app that monitors multiple environmental indices, all of which can trigger or worsen symptoms in people with lung disease. You can easily input your Peak Flows/FEV1 through the phone app or your PC and track your numbers over time. Additionally, alerts can be set for all parameters, allowing the user to take precautionary measures to prevent potential flare ups.
Currently the app works in the US and the United Kingdom with more countries coming soon Check it out.
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Dear Stephen
I am still following you and getting incensed about some of the things you write about. A few weeks ago you wrote about people not believing the severity of your asthma, and the problem you had getting such nonsense out of your record. I so identify with that. In my case one consultant early on in this crazy tortuous saga said there was nothing wrong with me. And I believe that the effects of that are still reverberating. It’s as if there’s a notice on my head, invisible to me, that reads “There is nothing wrong with this patient, don’t believe anything she says.” And in order to defend that position they have distorted/ignored/rubbished test results.
The other thing that upsets me is the financial aspect of your situation. We are so lucky over here. We never have to think of the financial implications of our investigations and treatments. I think we should know how much it costs because it might make people more aware and more grateful. A friend down the road has had four endobronchial valves put in her lungs for emphysema, they are £5000 each, and they have not worked!
I do hope this latest drug works.
Thank you very much for what you, how you do it and above all for your inspirational attitude and spirit.
Well done you
Kate
I also have issues with people dismissing the severity of my disease or believing that I am over reacting (mainly co-workers who are, understandably, upset that I have had to take so much time off lately). I am lucky that my primary MD advocates for me. She got me to a new pulmonologist, who is treating me very aggressively, and is doing his best to find out what exactly is going on. My former pulmonologist told me back in may (after my first of 3 hospital admissions this summer) that I had a reactive airway disease that has improved and see me in 3 mos. I din’t think so. Even his partner was perplexed by his attitude
I feel more betrayed by my co-workers (I am a nurse). A couple asked me if it was as serious as I made it out to be, even though I spent 6 days in the hospital, and 2 in the ICU. Sadly, there is not enough education about Asthma. I want to change that.
I am going back to school to get my MSN and hopefully PhD in nursing research and want to focus on respiratory illnesses. My end goal is to teach in a nursing school setting but if I can get new nurses to understand that asthma is a very serious disease, I’ll be happy.
Unfortunately, this is an all to common reality for many asthmatics, but Im happy to hear that you plan to do something about it by educating other Nurses.