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Category: Severe asthma

My 133rd hospitalization for asthma

October 17, 2017January 30, 2018 by Breathinstephen Leave a Comment

My 133rd hospitalization occurred on 10-9-2017. The trigger wasn’t the usual environmental allergies or resp infection, this time it was smoke from wildfires that have been devastating portions of northern California the past couple weeks. I woke that morning (4am) to a house full of smoke . It was so bad, we had to put […]

My 8th year in the SARP

April 28, 2017July 1, 2018 by Breathinstephen Leave a Comment

Hard to believe, but this week I began my 8th year as a research subject for the Severe Asthma Research Program (SARP). This is actually the 3rd study (SARP III) in a series of 3 that started back in the early 2000s. Each had a different focus. They stopped recruiting new participants for SARP a […]

Prelude to an asthma flare

February 9, 2017November 24, 2017 by Breathinstephen Leave a Comment

So my asthma is acting up again and I feel like I have the proverbial elephant sitting on my chest. I say my asthma is acting up, but in actuality it’s always acting up. So I guess what I really mean is that my symptoms are ramping up from my norm, getting more intense by […]

2 years, 2 million dollars

February 5, 2017March 21, 2017 by Breathinstephen Leave a Comment

Need proof of just how expensive asthma can be? These are my hospital bills for the last two years, coming in at just over 2.1 million and change. 2016 2015 Related Posts:A common cold with not so common asthma104th trip to the slammer for AsthmaThe Recovery phases of a severe asthma exacerbationNumber 96 Number 95My […]

Moving right along……

August 31, 2016January 7, 2017 by Breathinstephen Leave a Comment

It’s been a very busy month indeed. When they say a lung transplant evaluation is thorough and exhausting, they’re not kidding. Every time I think Ive completed all the required tests, the transplant coordinator calls to say I still have more to do. In addition, some of these test have to be repeated every few […]

Evolving treatment plan

March 26, 2016April 30, 2016 by Breathinstephen Leave a Comment

Things seems to be changing by the day. As of March 24th 2016, the latest plan is to put me back on Xolair until I can either obtain the biologic drug, Dupilumab, or until lung transplant becomes the only option left to extend my life. Sanofi/Regeneron, the makers of Dupilumab, need to get FDA permission […]

No matter how well I take care of myself

February 2, 2016May 23, 2017 by Breathinstephen Leave a Comment

Not sure what’s going on. Since 2003 when my asthma started to get really bad, it was for the most part, relatively stable and the symptoms tolerable for several months at a time. Even the exacerbations, while still very severe on occasion, were somewhat predictable. Likewise, my lung function, specifically my FEV1 and FVC, though […]

I’m phenotyped

October 17, 2015April 10, 2017 by Breathinstephen Leave a Comment

Thanks to the efforts of the SARP researchers and the new era of severe asthma phenotyping, my particular flavor of the disease has finally been described. Drum roll please………………… It’s called “Long duration Th2 low/mast cell high with remodeling“, asthma. It probably sounds like a bunch of googly gob, but about half the people with […]

SARP ends, but the research continues

February 16, 2015February 16, 2015 by Breathinstephen Leave a Comment

Though still in operation, the NIH funded Severe Asthma Research Program (SARP), which started 14 years ago, is now officially closed to new enrollees. Sadly, it looks like SARP will be the last large observational study of severe asthmatics, at least for the foreseeable future. The good news, is that there’s still a lot of […]

Im an A hole when Im sick

December 11, 2014November 22, 2017 by Breathinstephen Leave a Comment

Most people will tell you Im one of the sweetest, most caring people you’ll ever meet. But make no mistake, when Im recovering from a bad asthma exacerbation, I can become an obnoxious asshole… I get anxious, I get irritable, I get angry and nasty all at the same time. I snap at everyone and […]

Training to walk my 9th marathon

July 8, 2014July 11, 2014 by Breathinstephen Leave a Comment

Hard to believe that it’s been 3 years since I’ve trained for a race. I came close to doing one last year, but a lot of stuff was happening and I was getting sick too often. Well except for my little dental mishap a couple weeks ago, things have been much better lately and that’s […]

SARP Newsletter

March 19, 2014April 5, 2014 by Breathinstephen Leave a Comment

The Severe Asthma Research Program’s first Newsletter. Well worth reading! A Breath of Fresh Air Related Posts:Asthma 23/7The do- another- race verdict is in.Steroids, less is always betterA common cold with not so common asthmaMy first 7 weeks on DupilumabMy 133rd hospitalization for asthma

Not just Asthma, Severe Asthma!

February 16, 2014September 24, 2017 by Breathinstephen Leave a Comment

Not to downplay the heartache and suffering that people with milder forms of asthma have to sometimes contend with; obviously it’s a big deal when you can’t breath, but the healthcare establishment needs to stop lumping all asthmatics together under the same general heading of “asthma”.This is a problem because severe asthma is not the […]

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Here are my legs 6 years ago when I was only averaging 1-2 serious hospitalizations per year.

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